Living with pain in ankylosing spondylitis: a qualitative study

Bağçıvan, Gülcan; Çınar, Fatma İlknur; Çınar, Muhammet; Oflaz, Fahriye; Uzun, Şenay; Pay, Salih

doi:10.1080/10376178.2016.1157028

Cited by 22 publications

(39 citation statements)

References 51 publications

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“…Within the workplace, a major barrier to worker retention is discord with managers and colleagues [109,110]. Research suggests that people working with MSK conditions perceive their colleagues to view them as a liability in the workplace, and believe that their 'healthy' colleagues prefer for 'sick' employees to experience high absenteeism rates, rather than presenting to work [93].…”

Section: The Organisationmentioning

confidence: 99%

Musculoskeletal health in the workplace

Crawford

Berkovic

Erwin

et al. 2020

Best Practice & Research Clinical Rheumatology

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Section: The Organisationmentioning

confidence: 99%

Musculoskeletal health in the workplace

Crawford

Berkovic

Erwin

et al. 2020

Best Practice & Research Clinical Rheumatology

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“…AS is also a young-onset disease, with initial symptoms occuring before the age of 40 in about 90% of patients [7]. Along with its physical impacts on patients' pain and disability [8][9][10], studies have also shown the association of AS with physical complications including various cardiovascular diseases [11,12].…”

Section: Introductionmentioning

confidence: 99%

The incidence of depression and anxiety in patients with ankylosing spondylitis: a systematic review and meta-analysis

et al. 2020

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Background: As awareness for the importance of mental health continues to expand in rheumatology, it is important to understand the epidemiology of psychiatric complications in ankylosing spondylitis (AS) with the ultimate goal of future prevention and improved quality of care. This study aims to review evidence on the incidence and determinants of depression and/or anxiety among patients with AS. Methods: We searched Medline, Embase, Cochrane Database of Systematic Reviews, CINAHL Complete, and PsycINFO for full-length observational studies that involved a sample or population of patients with AS and assessed depression and/or anxiety. Primary outcomes extracted were: 1) risk estimates for depression and/or anxiety (e.g., relative risk [RR]); and 2) determinants or factors identified as independent predictors of depression and/or anxiety using multivariable regression approaches and corresponding estimates (e.g., odds ratios [OR]). Where relevant, we pooled estimates using random effects models. Results: Out of 783 titles from our search strategy, we reviewed 39 manuscripts. Four studies assessed the incidence of depression and meta-analyzing reported estimates from three of these studies yielded a pooled RR of 1.51 (95% CI 1.28 to 1.79). Differences in risk of depression among men and women with AS were inconclusive, suggesting need for further study. The incidence of anxiety was comparatively less studied with only one included study reporting a hazard ratio of 1.85 (95% CI 1.37 to 2.49). Education level was a key determinant, with lower levels associated with higher odds of depression (OR 6.65; 9% CI 1.36 to 32.51) and anxiety (OR 9.31; 9% CI 1.39 to 62.19) among AS patients. Conclusions: Our systematic review and meta-analysis shows an increased risk of depression and anxiety among patients with AS. These findings suggest the importance of monitoring and care for psychiatric conditions in AS.

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“…46 While we found that work colleagues were a source of considerable support in enabling task flexibility, other studies have reported that unsatisfactory or slow work was a source of potential conflict with colleagues and employers. 49 The differing ways in which people now participate with work also raise questions about how we define presenteeism, sick absence and fitness for work.…”

Section: Discussionmentioning

confidence: 99%

Outcomes and treatment responses, including work productivity, among people with axial spondyloarthritis living in urban and rural areas: a mixed-methods study within a national register

et al. 2020

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ObjectiveTo examine differences in clinical and patient-reported outcomes, including work, in individuals with axial spondyloarthritis (axSpA) living in rural and urban settings.MethodsUsing a sequential, explanatory mixed-method design, data from the British Society for Rheumatology Biologics Register for Ankylosing Spondylitis were used to (1) characterise participants with axSpA living in rural and urban areas and (b) assess any differences in outcome after commencement of biologic therapy (phase 1). Semistructured interviews (phase 2) further explored the results from phase 1.ResultsPatients with axSpA living in rural areas were older and more likely to work in a physical job. Among patients prescribed biologics, there were no differences in response to biologics, but after adjustment for age, sex and local area deprivation rural dwellers reported more presenteeism and overall work impairment. Work effects could be explained by accounting for individual differences in disease activity, fatigue, physical function and job type. Interviews highlighted the complex relationship between clinical factors, contextual factors (work environment, job demands) and work disability. The ability to work and flexibility in terms of what, when and how tasks are undertaken were important. Support from employers was variable and healthcare professionals were often perceived as unsupportive.ConclusionsPatients with axSpA living in rural areas report a greater impact of their disease on work productivity. New measures are needed to capture important contextual factors and comprehensively determine the impact of long-term conditions on work. Future European League Against Rheumatism axSpA recommendations should include support to work as a target to optimise quality of life in patients with axSpA.

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Living with pain in ankylosing spondylitis: a qualitative study

Abstract: Added to being asked about the quantity of pain, patients with AS should be questioned about how pain affects their lives.

Cited by 22 publications

References 51 publications

Musculoskeletal health in the workplace

Musculoskeletal health in the workplace

The incidence of depression and anxiety in patients with ankylosing spondylitis: a systematic review and meta-analysis

Outcomes and treatment responses, including work productivity, among people with axial spondyloarthritis living in urban and rural areas: a mixed-methods study within a national register

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