Living with rheumatoid arthritis: The role of daily spirituality and daily religious and spiritual coping

Keefe, Francis J.; Affleck, Glenn; Lefebvre, John C.; Underwood, Lynn G.; Caldwell, David S.; Drew, Jana Brittain; Egert, Jennifer; Gibson, Jessica; Pargäment, Kenneth I.

doi:10.1054/jpai.2001.19296

Cited by 164 publications

(154 citation statements)

References 31 publications

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“…A California sample of a substance abuse population showed a two factor structure [21]. The division was different than Ellison and Fan, and they called their item subgroups theistic (1,3,4,5,7,8,9,10,15) and self-transcendence (2,6,11,13,14), after eliminating items 12 (thankful for blessings) and 16 (close to God). It is expected that for some, the more explicitly theistic items will be responded to differently, but this does not necessarily make it a separate factor in the scale as applied more generically.…”

Section: General Psychometricsmentioning

confidence: 98%

“…For example, it was used in a daily diary study of pain quite effectively [14], and in a study of effects of meditation on pain tolerance [15]. It has been used to measure change over time with various interventions in healthcare, substance abuse treatment, education, and religious settings further described in the Results section [16][17][18].…”

Section: General Psychometricsmentioning

confidence: 99%

“…A daily diary study showed DSES changes over time in rheumatoid arthritis patients, where frequent daily spiritual experiences linked with higher levels of positive mood, lower levels of daily negative mood, and higher levels of each of the social support domains [14]. It was not linked to experience of pain; however attention to pain has also been connected with diminished suffering [42].…”

Section: Dses and Physical Health-related Outcomesmentioning

confidence: 99%

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The Daily Spiritual Experience Scale: Overview and Results

Underwood¹

2011

Religions

238

170

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The Daily Spiritual Experience Scale (DSES) is a 16-item self-report measure designed to assess ordinary experiences of connection with the transcendent in daily life. It includes constructs such as awe, gratitude, mercy, sense of connection with the transcendent and compassionate love. It also includes measures of awareness of discernment/inspiration and a sense of deep inner peace. Originally developed for use in health studies, it has been increasingly used more widely in the social sciences, for program evaluation, and for examining changes in spiritual experiences over time. Also it has been used in counseling, addiction treatment settings, and religious organizations. It has been included in longitudinal health studies and in the U.S. General Social Survey which established random-sample population norms. It has publications on its psychometric validity in English, Spanish, French, Portuguese, German and Mandarin Chinese. Translations have been made into twenty languages including Hindi, Hebrew and Arabic and the scale has been effectively used in a variety of cultures. The 16-item scale does not have a psychometrically representative shorter form although a 6-item adaptation has been used. The DSES was developed using extensive qualitative testing in a variety of groups, which has helped its capacity to be useful in a variety of settings. It was constructed to reflect an overlapping circle model of spirituality/religiousness and contains items that are more specifically theistic in nature, as well as items to tap the spiritual experience of those who are not comfortable with theistic language. The scale has been used in over 70 published studies. This paper will provide an overview of the scale itself, describe why it has proved useful, and discuss some studies using the scale. See http://www.dsescale.org/ for more information on the scale.

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Section: General Psychometricsmentioning

confidence: 98%

Section: General Psychometricsmentioning

confidence: 99%

Section: Dses and Physical Health-related Outcomesmentioning

confidence: 99%

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The Daily Spiritual Experience Scale: Overview and Results

Underwood¹

2011

Religions

238

170

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“…Psychosocial factors such as illness representations (Baumann, Han, & Love, 1997;Edgar & Skinner, 2003;Glasgow, Hampson, Stryker, & Ruggiero, 1997;Griva, Myers, & Newman, 2000;Leventhal, Meyer, & Nerenz, 1980;O'Neill, 2002), emotional distress (Grisby, Anderson, Freedland, Clouse, & Lustman, 2002;Karlsen, Bru, & Hanestad, 2002;Roy & Roy, 2001;Thomas, Jones, Scarinci, & Brantley, 2003), coping strategies Lundman, & Norberg, 1993;Peyrot, McMurray, & Kruger, 1999;Smari & Valtysdottir, 1997;White, Richter, & Fry, 1992), and coping efficacy (Aldwin, Sutton, Chiara, & Spiro, 1996;Gignac, Cott, & Badley, 2000;Keefe et al, 2001;Lefebvre et al, 1999) have been reported to influence self-regulation behavior of individuals with chronic illness. Understanding how psychological factors influence individuals'…”

Section: Statement Of Problemmentioning

confidence: 99%

“…Several studies have evaluated coping efficacy and an individual's ability to reduce or control pain (Keefe et al, 2001;Lefebvre et al, 1999;Tsay, Halstead, & McCrone, 2001). Lefebvre et al (1999) evaluated the relationship of arthritis self-efficacy to daily pain, daily mood, and daily pain coping in individuals with rheumatoid arthritis.…”

Section: Coping Efficacymentioning

confidence: 99%

Illness representations, emotional distress, coping strategies, and coping efficacy as predictors of patient outcomes in type 2 diabetes

Hart¹,

Grindel²

2010

J of Nursing and Healthcare

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hart pl & grindel cg (2010) Journal of Nursing and Healthcare of Chronic Illness2, 225–240 Illness representations, emotional distress, coping strategies, and coping efficacy as predictors of patient outcomes in type 2 diabetes Aim. To examine the relationship between illness representations, emotional distress, coping strategies, and coping efficacy as predictors of self‐care behaviour and A1c levels in individuals with type 2 diabetes. Background. Diabetes mellitus affects 23·6 million Americans and is the seventh leading cause of death in the United States. Reduction in complications can be best achieved by individuals’ adhering to appropriate lifestyle changes and maintaining tight glycemic control. Understanding the degree of influence that psychosocial factors have on individuals’ decisions to perform self‐regulation activities will give insight on strategies to encourage better decision‐making to prevent acute and chronic complications. Methods. A descriptive, correlational design examined the psychosocial factors to determine the predictive relationships with self‐care behaviour and A1c levels. Participants were 119 men and women recruited from physician offices, medical clinics, and diabetes education centers. The research was conducted from March–December 2007. Results. Participants perceived their diabetes to be a chronic, moderately cyclical condition with negative consequences and with moderate amounts of symptomatology that greatly influenced their emotional status. Hierarchical multiple linear regression analyses revealed that a) coping efficacy uniquely accounted for 9% of the variance in self‐care behaviour and b) illness representations, particularly timeline‐cyclical, uniquely accounted for 12% of the variance in A1c levels. Conclusions. The findings confirm how illness representations, emotional distress, coping strategies, and coping efficacy influence self‐care behaviour and health outcomes. Psychosocial factors can influence lifestyle behaviour changes and outcomes of individuals with diabetes mellitus. Relevance to clinical practice. Findings from the study have implications for nurses in the areas of assessment, diabetes management, coping skills training, and cognitive behavioural therapy. Nurses should incorporate these strategies into their daily practice to help individuals identify successful coping strategies, enhance coping efficacy, and change misconceptions about diabetes mellitus to improve self‐care behaviour and health outcomes.

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An 83-Year-Old Woman With Chronic Illness and Strong Religious Beliefs

Koenig¹

2002

JAMA

120

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OLD WOMAN WHO HAS MULtiple medical problems and, despite numerous medical interventions, chronic progressive pain and weakness. She feels that her faith offers the most help for coping with her illness. She lives in a senior residence near Boston and has 3 daughters, 2 sons, and many grandchildren. Mrs A attends church regularly and has a strong social support network through church. She has Medicare insurance, and her primary physician is Dr M, who practices at Beth Israel Deaconess Medical Center.Mrs A has a history of hypertension, diabetes, and goiter. In the late 1980s, she developed diffuse body pain. An evaluation found that she had polymotor and sensory neuropathy, most likely secondary to diabetes. Initially, she was treated with intravenous gamma globulin without improvement in her symptoms. She was subsequently treated with gabapentin, topiramate, mexiletine, tramadol, rofecoxib, celecoxib, acetaminophen with codeine, oxycodone/ acetaminophen, and fentanyl patch without improvement. Mrs A has also tried acupuncture and massage without benefit. The consulting neurologist does not have any further therapy to offer her.In 1999, Mrs A began experiencing worsening right lower extremity pain and weakness and was found to have spinal stenosis with L5-S1 radiculopathy. She underwent multiple lumbar epidural steroid injections without improvement in her symptoms. She has had recurrent episodes of right hip and bilateral shoulder pain from trochanteric and subacromial bursitis. She also had multiple local steroid injections with either no or short-term benefit.Her medications include losartan potassium, felodipine, hydrochlorothiazide, levothyroxine, metformin, omeprazole, and acetaminophen. She is allergic to penicillin, aspirin, and angiotensin-converting enzyme inhibitors. She lives alone and has a daughter who lives nearby. She is able to perform all her activities of daily living and independent activities of daily living and refuses any assistance from a homemaker or visiting nurse.On a recent examination, her blood pressure was 140/88 mm Hg, and she had mild restriction of motion of the left shoulder, pain with any motion of the right shoulder, pain to palpation of the small joints, and pain over the trochanteric bursa on the right. On neurologic examination, grip strength was decreased, sensation to pinprick was decreased in the digits bilaterally, and motor strength of the lower extremities was 2/5 proximally and 3/5 distally. Her reflexes were intact.Mrs A continues to have diffuse body pain as well as increasing weakness of her lower extremities. During the course of her illness, she has steadfastly maintained her independence and good spirit. She has consistently stated that her faith in God has enabled her to endure her chronic pain. She trusts that praying will help her continue to persevere.Mrs A and her physician, Dr M, continue to struggle with the lack of traditional medicine to provide her with any relief of her symptoms. Mrs A's beliefs are her one source of comfort and strength. The role thi...

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Living with rheumatoid arthritis: The role of daily spirituality and daily religious and spiritual coping

Cited by 164 publications

References 31 publications

The Daily Spiritual Experience Scale: Overview and Results

The Daily Spiritual Experience Scale: Overview and Results

Illness representations, emotional distress, coping strategies, and coping efficacy as predictors of patient outcomes in type 2 diabetes

An 83-Year-Old Woman With Chronic Illness and Strong Religious Beliefs

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