Living with severe chronic obstructive pulmonary disease (COPD): perceptions                 of patients and their carers

Seamark, David; Blake, Susan; Seamark, Clare; Halpin, David

doi:10.1191/0269216304pm928oa

Cited by 210 publications

(242 citation statements)

References 19 publications

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“…Other common manifestations of the failing body in COPD are weakness and fatigue, pain, insomnia, loss of appetite and difficulty with mobility (Elkington et al, 2005, Jones et al, 2004, Gullick & Stainton, 2008, Seamark et al, 2004. Fatigue is strongly linked to levels of breathlessness and depression and has major consequences for functional performance (Kapella et al, 2006).…”

Section: Losing Control Of the Body's Taken-for-granted Functionsmentioning

confidence: 99%

Psychosocial Dimensions of COPD for the Patient and Family

Gullick¹

2012

Chronic Obstructive Pulmonary Disease - Current Concepts and Practice

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Section: Losing Control Of the Body's Taken-for-granted Functionsmentioning

confidence: 99%

Psychosocial Dimensions of COPD for the Patient and Family

Gullick¹

2012

Chronic Obstructive Pulmonary Disease - Current Concepts and Practice

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“…Son relevantes las repercusiones familiares y en el ocio señaladas por los participantes, ya que el aislamiento social y la reducción de actividades se asocia con afrontamiento inadaptativo pasivo a la enfermedad (Seamark, Blake y Seamark, 2004).…”

Section: Discussionunclassified

Cómo vivir con EPOC: percepción de los pacientes.

Muñoz-Cobos

Guasch²,

Cuenca-del-Moral

et al. 2015

AN PSICOL-SPAIN

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The aim of this study is to determine the mental model that patients with COPD (chronic obstructive pulmonary disease<strong>)</strong>have about their illness analyzed by the Leventhal´s Common Sense of Self-Regulation Model. An exploratory-descriptive study using qualitative methodology was performed. We included COPD-diagnosed patients attending three urban and a rural primary care centres. We used video-taped group interviews and transcribed them using Atlas.Ti 5.2 program. 22 group interviews (2009 - 2011) and 58 patients were included. There were 3 additional sessions to final inform validation. The results show that patients did not have a defined mental model about COPD: this disease was insufficiently recognized; diagnosis was made in exacerbations and it was confused with other diseases; the cause of illness was related to tobacco consumption and to “something else”: fumes, colds and hard work. Patients tended to minimize their symptoms and limitations. Participants had wrong beliefs about colds, smoking only a few cigarettes effects and damage of inhaled treatment. Emotions as despair, resignation and fear were reported. We conclude that COPD patients showed confusion about many aspects of the disease (causes, symptoms, treatments). It was difficult to identify a mental model of the disease among COPD patients. <p> </p>

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“…Many studies confirm the predominance of the symptoms of breathlessness, anorexia, and constipation in severe COPD, 14,[27][28][29][30] along with significant problems with fatigue, pain, anxiety and depression, and poor sleep. The evidence base for symptom control in end-stage COPD is poor and management relies on a mix of evidence, considered best practice and experience.…”

Section: Symptomsmentioning

confidence: 95%

“…A GP is likely to have spent considerable time over a number of years in face-to-face contact with patients with COPD, 12 and increasingly more time as death approaches. 13 Patients with COPD appreciate continuity of care and reassurance provided by the primary healthcare team 14,15 and the GP is in a key position to deliver and coordinate end-oflife care for patients with COPD.…”

mentioning

confidence: 99%