Long-term follow-up after childhood cancer in France supported by the SFCE—force and weakness—current state, results of a questionnaire and perspectives

Abstract

LTFU is a major concern for French centres specialized in paediatric oncology. Organization is not well defined and difficulties still arise (Who are the best care providers? What frequency of care is most appropriate? etc.). Advances in knowledge: LTFU focused on health problems (physical, psychological, social, economic issues) that affect CCSs is needed to ensure that these patients regain the most optimal physical and emotional health possible. Practitioners suggest different ways to improve LTFU, such as national co-operation with Epidemiology Registers to promote homogenous LTFU care.

Healthcare system barriers of breast and thyroid screening for childhood and young adulthood cancer survivors in France: A qualitative study of the DeNaCaPST programme at one year

“…Four months later, one private doctor has participated. Also, with the same aim of finding the CAYACS concerned, work was carried out with the French database Pedia-RT, which is a database that prospectively records all radiotherapy performed in children since 2012, so that an automatic email is generated annually to paediatric radiotherapists listed in this database to find the patients eligible for DeNaCaPST programme [12]. Another link will be made with the FCCSS (French childhood cancer survivors study) cohort; this was planned in the initial protocol, but it was not effective during the first year of implementation of the programme due to administrative delays.…”

“…The optimal healthcare services model for long-term follow-up care (LTFU) for CAYACS is still debated [11,12]. In France, various models of care have been established: in some cities, they access LTFU care with adult healthcare professionals, while in others it depends of the paediatric oncology department or radiotherapy department [12,13]. In most cities, identified LTFU consultations are not organised for CAYACS after a solid cancer and, these patients are followed by their general practitioner who is likely to be unfamiliar with survivor followup recommendations.…”

Review of risk factors of secondary cancers among cancer survivors

“…With regard to radiotherapy, the main factors to take into account are the age of the patients, the sensitivity of the organs and the dose received by these organs. [74][75][76] In the future, physicians will also have to consider chemotherapy exposure, genetic susceptibility and environmental exposure, which modify the risks when determining the indications for cancer surveillance in cancer survivors. They will also take profit of the availability of Dicom Radiotherapy data, which will permit precise knowledge of radiation dose distributions in body organs and, therefore, a better anticipation of iatrogenic risks.…”

“…However, the literature reports that less than one-third of survivors of paediatric cancer have ever had a clinical skin examination by a physician. 75,88,89 In addition, the Children's Oncology Group recommends for survivors who were exposed to more than 30 Gy for an abdominal field to undergo colonoscopy at a minimum of every 5 years beginning at 10 years after radiation or at age 35.…”

Healthcare system barriers of breast and thyroid screening for childhood and young adulthood cancer survivors in France A qualitative study of the DeNaCaPST programme at one year

“…The optimal healthcare services model for long-term follow-up care (LTFU) for CAYACS is still debated [11,12]. In France, various models of care have been established: in some cities, they access LTFU care with adult healthcare professionals, while in others it depends of the paediatric oncology department or radiotherapy department [12,13]. In most cities, identified LTFU consultations are not organised for CAYACS after a solid cancer and, these patients are followed by their general practitioner who is likely to be unfamiliar with survivor follow-up recommendations.…”