Long-term follow-up of patients with tetralogy of Fallot: Physical health and psychopathology

Garson, M.D. Arthur; Williams, Melissa D.; Reckless, F.A.C.P. John

doi:10.1016/s0022-3476(74)80136-8

Cited by 45 publications

(11 citation statements)

References 7 publications

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“…Difficulties with this second mourning process and resultant continuing overprotection could account for our reported findings on postoperative young adults with tetralogy of Fallot [1 ]. We found that the patients who had had the least physical symptomatology preoperatively had the most psychological symptomatology postoperatively in terms of being dependent, overprotected, less well informed, self-indulgent, and lacking ambition.…”

Section: Exa Mp Lementioning

confidence: 50%

“…Between 30-60% of patients with such diseases suffer emotional disability--a rate of two to three times that of physically normal populations [1,2].…”

Section: Introductionmentioning

confidence: 99%

“…In order to explain the well documented observation [1,2,5] that patients with less severe disease have greater psychological problems, we [1] and others [2,5] have hypothesized that the indirect effects of the disease are the most important determinants of psychological outcome. The two most important factors having an indirect effect are the family's response to the child and the medical staff's response to the family.…”

Section: Introductionmentioning

confidence: 99%

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Parental reactions to children with congenital heart disease

Garson¹,

Benson²,

Ivler³

et al. 1978

Child Psych Hum Dev

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Informal discussions with 260 families of children with congenital heart disease are reported. Parents raised questions concerning etiology, timing of the diagnosis, pathophysiology and symptomatology, and need for restriction. Depending upon the stage and seriousness of the disease, common parental behavior was observed. A psychological process similar to mourning is required at the time of diagnosis and at the time of corrective surgery in order to promote the family's adaptation to the child with congenital heart disease. Management suggestions are included.

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Section: Exa Mp Lementioning

confidence: 50%

“…Between 30-60% of patients with such diseases suffer emotional disability--a rate of two to three times that of physically normal populations [1,2].…”

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Parental reactions to children with congenital heart disease

Garson¹,

Benson²,

Ivler³

et al. 1978

Child Psych Hum Dev

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“…In patients with congenital heart disease subtle developmental delay may also contribute to poor knowledge. 8 Before this study we felt that our policy for providing information to patients and their parents was adequate, but the study shows that our patients' understanding of their disease is very limited. Counselling families on the subject of congenital heart disease can be time consuming, and assessment of the eVectiveness of counselling even more so.…”

Section: Discussionmentioning

confidence: 99%

Illness understanding in children and adolescents with heart disease

Veldtman¹

2001

Western Journal of Medicine

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Aims-To evaluate illness knowledge and understanding in children and adolescents with congenital and acquired heart disease, and whether the degree of understanding is related to age, sex, or complexity of the heart disease. Design-Prospective cohort study. Setting-Tertiary paediatric cardiac centre. Methods-Patients' understanding of their congenital heart disease was assessed in a representative sample of volunteers aged between 7-18 years using semistructured interviews based upon Leventhal's illness representation model. Results-63 of 69 interviews were suitable for analysis. There were similar numbers of boys and girls and a wide distribution of heart defects. Only 30% of patients had a good understanding of their illness; 77% did not know the medical name of their condition, and 33% had a wrong or poor understanding of their illness. Understanding was unrelated to age, sex, or the nature of the heart disease. Understanding of illness duration was significantly related to age, but not to sex or to the nature of the disease. Conclusions-Illness understanding is poor in children and adolescents with heart disease, and many have an entirely wrong concept of their disease. Intensified eVorts to ensure better patient and parental understanding are needed. (Heart 2000;84:395-397)

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“…Mothers' perceptions may also be relevant in determining these differences. Even after surgery, mothers of cardiac children may underestimate their child's physical capabilities (Casey et al 1994) and may be overprotective (Garson et al 1974;Garson et al 1978).…”

Section: Badmentioning

confidence: 99%