Long-Term Outcomes After Atrioventricular Valve Operations in Patients Undergoing Single-Ventricle Palliation

Wong, Daniel J.; Iyengar, Ajay J.; Wheaton, Gavin; Ramsay, James; Grigg, Leeanne; Horton, Stephen; Konstantinov, Igor E.; Brizard, Christian P.; d’Udekem, Yves

doi:10.1016/j.athoracsur.2012.03.058

Cited by 57 publications

(46 citation statements)

References 19 publications

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“…2,3 In the setting of SVP, AVVR is a recognized risk factor for death. [4][5][6] Furthermore, achieving an adequate, durable AVV repair in patients with single-ventricle physiology is challenging. [7][8][9][10] However, reports of AVV repair in patients with uAVSD have been limited to a few small series.…”

mentioning

confidence: 99%

Successful atrioventricular valve repair improves long-term outcomes in children with unbalanced atrioventricular septal defect

Buratto¹,

Ye²,

Brink³

et al. 2017

The Journal of Thoracic and Cardiovascular Surgery

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confidence: 99%

Successful atrioventricular valve repair improves long-term outcomes in children with unbalanced atrioventricular septal defect

Buratto¹,

Ye²,

Brink³

et al. 2017

The Journal of Thoracic and Cardiovascular Surgery

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“…Subsequent contemporary reports have been small and/or limited to single surgical centers. [1][2][3][4][5][6][7][8][9][10][11][12][13][14][15] Hence, the Centers for Disease Control and Prevention has identified linkage of databases to assess the long-term outcomes of persons with CHD as filling a critical gap in knowledge. 16,17 As the oldest, and one of the largest, registries of CHD in the United States, the Pediatric Cardiac Care Consortium (PCCC) is uniquely placed to address the long-term outcomes of these patients.…”

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confidence: 99%

In‐Hospital Vital Status and Heart Transplants After Intervention for Congenital Heart Disease in the Pediatric Cardiac Care Consortium: Completeness of Ascertainment Using the National Death Index and United Network for Organ Sharing Datasets

Spector

Menk

Vinocur

et al. 2016

JAHA

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Background The long‐term outcomes of patients undergoing interventions for congenital heart disease ( CHD ) remain largely unknown. We linked the Pediatric Cardiac Care Consortium ( PCCC ) with the National Death Index ( NDI ) and the United Network for Organ Sharing Dataset ( UNOS ) registries to study mortality and transplant occurring up to 32 years postintervention. The objective of the current analysis was to determine the sensitivity of this linkage in identifying patients who are known to have died or undergone heart transplant. Methods and Results We used direct identifiers from 59 324 subjects registered in the PCCC between 1982 and 2003 to test for completeness of case ascertainment of subjects with known vital and heart transplant status by linkage with the NDI and UNOS registries. Of the 4612 in‐hospital deaths, 3873 were identified by the NDI as “true” matches for a sensitivity of 84.0% (95% CI, 82.9–85.0). There was no difference in sensitivity across 25 congenital cardiovascular conditions after adjustment for age, sex, race, presence of first name, death year, and residence at death. Of 455 known heart transplants in the PCCC , there were 408 matches in the UNOS registry, for a sensitivity of 89.7% (95% CI , 86.9–92.3). An additional 4851 deaths and 363 transplants that occurred outside the PCCC were identified through 2014. Conclusions The linkage of the PCCC with the NDI and UNOS national registries is feasible with a satisfactory sensitivity. This linkage provides a conservative estimate of the long‐term death and heart transplant events in this cohort.

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“…5,6 Like others, we have recently shown that patients born with a single ventricle had worse outcomes if they had AVVR. [7][8][9] In the current series, the incidence of heterotaxy, common AV valve, and AV regurgitation at first presentation were 46%, 36%, and 60%, respectively; in a recent study of our patients with a single ventricle, these incidences were estimated to be 12%, 14%, and 13% only. 1 There is no doubt that the difficulty of performing AV valve repair is increased by dextrocardia.…”

Section: Discussionmentioning

confidence: 45%

Surgical palliation in patients with a single ventricle and dextrocardia

Poh

Galati

et al. 2014

The Journal of Thoracic and Cardiovascular Surgery

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Long-Term Outcomes After Atrioventricular Valve Operations in Patients Undergoing Single-Ventricle Palliation

Cited by 57 publications

References 19 publications

Successful atrioventricular valve repair improves long-term outcomes in children with unbalanced atrioventricular septal defect

Successful atrioventricular valve repair improves long-term outcomes in children with unbalanced atrioventricular septal defect

In‐Hospital Vital Status and Heart Transplants After Intervention for Congenital Heart Disease in the Pediatric Cardiac Care Consortium: Completeness of Ascertainment Using the National Death Index and United Network for Organ Sharing Datasets

Surgical palliation in patients with a single ventricle and dextrocardia

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