Long-term outcomes and life satisfaction of adults who had pediatric spinal cord injuries

Vogel, Lawrence C.; Klaas, Sara J.; Lubicky, John P.; Anderson, Caroline

doi:10.1016/s0003-9993(98)90409-9

Cited by 85 publications

(56 citation statements)

References 18 publications

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“…The 14 independent studies 1, 12,14,15,26,27,[35][36][37][38][39][40][41][42][43][44] included in the meta-analysis provided data for 9868 participants (Table 1). The majority of the data originated from the USA (n ¼ 10 studies), with studies from Australia (n ¼ 2 studies), Canada (n ¼ 1 study) and Norway (n ¼ 1 study) also contributing.…”

Section: Study Characteristicsmentioning

confidence: 99%

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Psychological variables associated with employment following spinal cord injury: a meta-analysis

Kent

Dorstyn

2014

Spinal Cord

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Objectives: Spinal cord injury (SCI) research has highlighted links between psychological variables and employment outcome; however, there remains a need to consolidate the available heterogenous data. Methods: Meta-analytic techniques were used to examine and quantify differences in psychological functioning and employment status among adults with an acquired SCI. Fourteen observational studies (N ¼ 9, 868 participants) were identified from an electronic database search. Standardised mean difference scores between employed and unemployed groups were calculated using Cohen's d effect sizes. Additionally, 95% confidence intervals, fail-safe Ns, percentage overlap scores and heterogeneity statistics were used to determine the significance of d. Results: Moderate to large and positive weighted effects were noted across three broad psychological constructs: affective experience or feelings (d w ¼ 3.16), quality of life (d w ¼ 1.06) and life satisfaction (d w ¼ 0.70). However, the most compelling non-heterogeneous finding was associated with life satisfaction, a finding that was also not subject to publication bias. Inconsistent and weak associations between employment and individual measures of vocational attitude, self-efficacy, locus of control, adjustment and personality were also noted. Conclusion: Psychological factors and attributes are linked to employment post-SCI; however, the available data are limited in quantity. Longitudinal research is also needed to determine whether these variables can help to preserve employment over time.

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Section: Study Characteristicsmentioning

confidence: 99%

“…All were self-report surveys, with one study 43 specifying that assessments were undertaken in conjunction with a clinician. The most commonly used and validated SCI measure was the Satisfaction with Life Scale (n ¼ 4 studies), with the remaining outcome measures utilised by only one or two studies.…”

Section: Study Characteristicsmentioning

confidence: 99%

Psychological variables associated with employment following spinal cord injury: a meta-analysis

Kent

Dorstyn

2014

Spinal Cord

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“…In its various forms it has been used in multiple studies. As a measure of societal functioning, or how well individuals are reintegrated back into the community, 5 it has been used to investigate the relationships between handicap and depression, 12 secondary conditions, 4 life satisfaction, 29 and physical activity 30 among others.…”

Section: Measurement Of Community Needsmentioning

confidence: 99%

Quality of life, social participation, appraisals and coping post spinal cord injury: a review of four community samples

2005

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Study design: Cross-sectional or psychotherapy, questionnaire. Objectives: To examine the community needs of people with spinal cord injury (SCI) across four European countries and to identify areas of unmet needs. It is intended that this information will be of use to rehabilitation professionals in fostering greater social participation among SCI individuals. Setting: United Kingdom, Germany, Austria and Switzerland. Methods: Self-report questionnaires were sent to 1000 people with SCI resident in the community in the UK, Germany, Austria and Switzerland. Questionnaires measured current needs, community integration, mood, appraisals, coping strategies, functional independence and perceived manageability. Results: Occupation, sexual activity and pain relief were areas indicative of highest community needs in all four countries. Most participants were psychologically well adjusted and socially integrated into the community. Well-addressed needs were skin management, wheelchair needs and accommodation. Some differences that occurred in certain areas across the four countries were found. Conclusion: This study has highlighted that the main areas of unmet needs for a European community sample of people with SCI includes levels of occupation, sexual activity and pain relief. The findings will be of interest to those involved in rehabilitation of newly as well as longterm injured people and demonstrate the need to consistently readdress such issues as part of a person's long-term rehabilitation in order to achieve and maximise effective social participation.Spinal Cord (2006) 44, 95-105.

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“…These ratings are consistent with the objective information which shows that income, employment, and marriage rates are lower in this population than in the general US population of the same age. [29][30][31] It is also noteworthy that the same three domains, dating opportunities, job opportunities, and income, are three of the four factors that show the strongest association with SWLS in multiple regression analysis. Satisfaction in these three areas clearly impacts the overall subjective quality of life.…”

Section: Discussionmentioning

confidence: 98%

Domain-specific satisfaction in adults with pediatric-onset spinal cord injuries

Anderson

2003

Spinal Cord

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Study design: Interview using a structured questionnaire and standardized measures. Objectives: To determine domain-specific satisfaction levels in adults with pediatric-onset spinal cord injuries (SCI), to determine factors associated with these levels of satisfaction, and to determine the relationship of domain-specific satisfaction to overall life satisfaction in this population. Setting: US and Canada. Methods: The participants were adults who sustained SCI at age 18 years or younger and were 24 years of age or older at the time of interview and did not have significant head injury. In addition to providing information about themselves, including education level, employment, marital status, and community participation, they were asked to rate their level of satisfaction in seven domains: transportation in the community, educational achievement, employment opportunities, income, social/recreational opportunities, dating opportunities, and sexual experience. They also completed the satisfaction with life scale (SWLS), the Craig handicap assessment and reporting technique, the functional independence measure, and the short-form-12 perceived health scale. Results: A total of 216 individuals were interviewed. The mean age at injury was 14 years and the mean age at interview was 29 years. From most satisfied to least satisfied, the domains were ranked in the following order: satisfaction with transportation in the community, educational achievement, social and recreational opportunities, sexual experiences, dating opportunities, job opportunities, and income. Age at interview, gender, and perceived health were identified in regression analyses as predictors of some of the domain-specific satisfactions, but the primary predictive factors were in the area of participation. Neither severity of neurologic impairment nor level of functional independence were predictors for any of the domains. Satisfaction in each of the domains was significantly associated with SWLS and satisfaction with dating, job opportunities, education, and income were identified as predictive factors in a regression analysis. Conclusions: Dating opportunities, job opportunities, and income are the three domains in which adults with pediatric-onset SCI are least satisfied and those domains have a significant impact on overall satisfaction.

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Long-term outcomes and life satisfaction of adults who had pediatric spinal cord injuries

Cited by 85 publications

References 18 publications

Psychological variables associated with employment following spinal cord injury: a meta-analysis

Psychological variables associated with employment following spinal cord injury: a meta-analysis

Quality of life, social participation, appraisals and coping post spinal cord injury: a review of four community samples

Domain-specific satisfaction in adults with pediatric-onset spinal cord injuries

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