Long-term outcomes following Fetal Alcohol Spectrum Disorder (FASD) diagnosis in adulthood

Temple, Valerie; Prasad, Shankar; Popova, Svetlana; Lindsay, Ann

doi:10.3109/13668250.2020.1824612

Cited by 16 publications

(14 citation statements)

References 17 publications

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“…With respect to research findings, diagnostic inconsistencies are a key driver of variation in FASD prevalence statistics and government action that follows reporting [ 18 ]. On the other hand, past studies have shown that a diagnosis of FASD can be empowering for individuals and their caregivers [ 32 , 33 ]. Accurate diagnosis facilitates improved understanding of the condition, whilst providing avenues to seek and obtain appropriate support services [ 33 ].…”

Section: Discussionmentioning

confidence: 99%

International Survey of Specialist Fetal Alcohol Spectrum Disorder Diagnostic Clinics: Comparison of Diagnostic Approach and Considerations Regarding the Potential for Unification

Reid

Shanley

Logan

et al. 2022

IJERPH

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Fetal alcohol spectrum disorder (FASD) is a prevalent neurodevelopmental condition. Despite FASD being recognized as a clinical disorder there is no globally agreed set of diagnostic criteria. Accurate and timely diagnosis of FASD is imperative to inform clinical care, optimize outcomes for individuals accessing assessments and their families, as well as for research and prevention strategies. To inform movement towards a unified approach, the present study aimed to capture an international perspective on current FASD diagnostic criteria, as well as potential barriers and facilitators to unification. An online survey was created using REDCap and sent to clinics identified and contacted via internet searches. Quantitative data were presented using descriptive statistics and open-ended questions analysed using content analysis. The survey captured information about each clinic’s current diagnostic approach, whether they would support a unified method, and the barriers and facilitators for a consistent international FASD diagnostic approach. Fifty-five (37.4%) of 147 FASD clinics identified worldwide participated. The majority (n = 50, 90.9%) of respondents supported a unified approach. Content analysis identified a lack of collaboration as a key barrier, while strong leadership in guideline creation and implementation emerged as a central facilitator. These barriers and facilitators can be used to guide future collaborative efforts towards implementing consistent diagnostic criteria.

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Section: Discussionmentioning

confidence: 99%

International Survey of Specialist Fetal Alcohol Spectrum Disorder Diagnostic Clinics: Comparison of Diagnostic Approach and Considerations Regarding the Potential for Unification

Reid

Shanley

Logan

et al. 2022

IJERPH

View full text Add to dashboard Cite

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“…Feedback regarding the diagnostic outcome is an important but challenging aspect of any diagnostic assessment for both individuals and families receiving the diagnosis and for health professionals communicating the diagnosis. For individuals and their caregivers, previous research found that receiving a diagnosis of FASD can be a positive and empowering process by improving understanding of an individual's daily challenges and increasing confidence to provide and seek appropriate support and services [36][37][38]. However, the experience can also be overwhelming related to the long-term support that will be required and feelings of guilt, shame and blame [39].…”

Section: Guideline Contentmentioning

confidence: 99%

Key Stakeholder Priorities for the Review and Update of the Australian Guide to Diagnosis of Fetal Alcohol Spectrum Disorder: A Qualitative Descriptive Study

Hayes

Akison

Goldsbury

et al. 2022

IJERPH

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Since the 2016 release of the Australian Guide to the Diagnosis of Fetal Alcohol Spectrum Disorder (FASD), considerable progress has been made in the identification and diagnosis of the disorder. As part of a larger process to review and update the Guide, the aim of this study was to identify review priorities from a broad range of stakeholders involved in the assessment and diagnosis of FASD. Sixty-two stakeholders, including healthcare practitioners, researchers, other specialists, individuals with cultural expertise, lived experience and consumer representatives completed an online survey asking them to describe up to five priorities for the review of the Australian Guide to the Diagnosis of FASD. A total of 267 priorities were described. Content analysis of responses revealed priority areas relating to diagnostic criteria (n = 82, 30.7%), guideline content (n = 91, 34.1%), guideline dissemination (n = 15, 5.6%) and guideline implementation (n = 63, 23.6%). Other considerations included prevention and screening of FASD (n = 16, 6%). Engaging stakeholders in setting priorities will ensure the revised Australian Guide can be as relevant and meaningful as possible for the primary end-users and that it meets the needs of individuals with lived experience who will be most affected by the diagnosis.

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“…Angesichts aktueller Untersuchungen zum Alkoholkonsum innerhalb von jungen Erwachsenen in deutschen Metropolen wird die Thematik auch in Zukunft weiter aktuell bleiben 29 . Die FASD-Diagnostik im Erwachsenenalter kann für zukünftige Generationen präventiv relevant sein, da viele unserer Patient*innen bereits selber Eltern sind, was sich auch mit anderen klinischen Erhebungen deckt 34 .…”

Section: Diskussionunclassified

Fetale Alkoholspektrum-Störungen im Erwachsenenalter – Ergebnisse aus einer diagnostischen Sprechstunde

Sappok

Tergeist

Kruse

et al. 2022

Fortschr Neurol Psychiatr

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Zusammenfassung Ziel der Studie Fetale Alkoholspektrum-Störungen sind nicht nur häufig, sie sind aufgrund des hohen Risikos für psychiatrische Komorbiditäten auch im Erwachsenenalter klinisch relevant. Die diagnostische Abklärung im Erwachsenenalter ist die Voraussetzung für eine zielgerichtete Behandlung und bedarfsgerechte Unterstützung. Methodik In einer Metropolenregion wurde zwischen Mai 2015 und Juli 2020 bei 80 Personen der Verdacht auf eine FASD diagnostisch abgeklärt. Die Ergebnisse dieser interdisziplinären Diagnostik wurden systematisch ausgewertet und die klinischen Charakteristika der Personen mit bzw. ohne FASD analysiert. Ergebnisse Bei ca. 70% der Inanspruchnahmepopulation wurde eine Diagnose aus dem FAS-Spektrum gestellt. Personen mit FASD zeigten häufiger eine Lernbehinderung (50 vs. 33%) oder Intelligenzminderung (40 vs. 10%), während keine Gruppenunterschiede für Alter und Geschlecht bestanden. Psychiatrische Komorbiditäten, insbesondere Depressionen (39%) und Abhängigkeitserkrankungen (31%), waren in beiden Gruppen häufig. Schlussfolgerung Im Rahmen einer multiprofessionellen standardisierten Diagnostik ist die FASD Abklärung auch im Erwachsenenalter möglich und nötig. Die Entwicklung standardisierter und spezifischer Diagnosekriterien für Erwachsene ist sinnvoll.

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Long-term outcomes following Fetal Alcohol Spectrum Disorder (FASD) diagnosis in adulthood

Cited by 16 publications

References 17 publications

International Survey of Specialist Fetal Alcohol Spectrum Disorder Diagnostic Clinics: Comparison of Diagnostic Approach and Considerations Regarding the Potential for Unification

International Survey of Specialist Fetal Alcohol Spectrum Disorder Diagnostic Clinics: Comparison of Diagnostic Approach and Considerations Regarding the Potential for Unification

Key Stakeholder Priorities for the Review and Update of the Australian Guide to Diagnosis of Fetal Alcohol Spectrum Disorder: A Qualitative Descriptive Study

Fetale Alkoholspektrum-Störungen im Erwachsenenalter – Ergebnisse aus einer diagnostischen Sprechstunde

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