Longitudinal changes in well-being of parents of individuals with developmental or mental health problems

Sloan, Carlie J.; Mailick, Marsha R.; Hong, Jinkuk; Ha, Jung Hwa; Greenberg, Jan S.; Almeida, David M.

doi:10.1016/j.socscimed.2020.113309

Cited by 9 publications

(10 citation statements)

References 22 publications

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“…These results are consistent with previous studies that have illustrated health problems facing caregivers of a child with SPID. 5 Similar to the depression rate mentioned above, the somatization rate in this study is significantly higher than previously found in parents of children with disabilities in general. 31 The results might be related to the severity of the children's disabilities in this study.…”

Section: Discussionsupporting

confidence: 86%

“…4 However, studies have demonstrated various challenges, including emotional, health, and economic, faced by caregivers of a child with IDD residing at home. 5 Specifically, studies have shown adverse mental health impacts on the family members, including depression and anxiety, 6 stress, 6 and negative emotions, such as shame and guilt. 7 In addition, parents raising children with IDD at home reported poor physical health, including sleep problems, headaches, and musculoskeletal symptoms.…”

mentioning

confidence: 99%

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Family Quality of Life in Children with Severe or Profound Disability: Home Versus Residential Care

Karni-Visel

Nasser

Manishevitch³

et al. 2023

J Dev Behav Pediatr

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Background: Most children with severe and profound intellectual disability (SPID) are cared for in their homes, according to current recommendations. Yet, their families face marked emotional, health, and economic challenges. Aims: The aim of this study was to examine family quality of life (FQOL) along with psychological and health factors among families who raise children with SPID at home versus those residing in residential care. Methods: Sixty caregivers of children aged 2 to 18 years (M = 8.81, SD = 4.62) with SPID (developmental quotient/intellectual quotient <35), living at home (38 caregivers—“home group”) or in residential care (22 caregivers—“residential group”), completed the FQOL Survey, Beck Depression Inventory, Parental Stress Index, Shame and Guilt Scale, and Health and Demographic questionnaires. Results: FQOL for most domains and dimensions was rated better among families whose child resides in residential care compared with families who raise their child at home. Similarly, parental stress relating to the child was worse among families who raise their children at home. No significant differences between the 2 groups were noted on other psychological or health measures. Conclusion: Family and individual needs for those raising a child with SPID at home should be addressed when planning policy and interventions.

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Section: Discussionsupporting

confidence: 86%

mentioning

confidence: 99%

Family Quality of Life in Children with Severe or Profound Disability: Home Versus Residential Care

Karni-Visel

Nasser

Manishevitch³

et al. 2023

J Dev Behav Pediatr

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“…Despite some positive aspects of parenting DD children (Beighton and Wills, 2017), numerous studies have identified psychological and physical costs of caring for DD children (Song et al, 2016(Song et al, , 2018Namkung et al, 2018;Sloan et al, 2020). Yet, extant studies have paid little attention to how the association between having DD children and parents' health can be confounded by early-life factors of parents.…”

Section: Introductionmentioning

confidence: 99%

Gendered racial disparities in health of parents with children with developmental disabilities

2022

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BackgroundThere is little information on (1) how adverse experiences in early life are associated with the risk of having a child with health problems and (2) whether the health of racial and gender minority groups would be particularly compromised if they have developmentally disabled (DD) children.ObjectiveBy integrating life-course perspectives and the intersectionality framework, we examine (1) the extent to which parents’ early-life adversities (ELAs) are associated with having children with DD or other health issues and (2) whether the association between having DD children and parental (physical and mental) health varies across race–gender groups after accounting for ELAs.MethodsUsing data from Black and White parents from the Midlife in the US Study (n = 7,425; 18% Black), we employed (1) multinomial logistic regression models to investigate the degree to which ELAs are associated with parenting types (having a child with DD, a child with recent illness, or a child without these health issues) and (2) multiple regression models with a three-way interaction term to investigate whether the gender–parenting type association differs by race.ResultsWith more adversities, the probability of having children with health issues increases for all race–gender groups, but most dramatically for Black women. Having DD children is associated with more chronic illnesses and functional limitations for women than men, with the largest burden for Black women, yet neither gender nor racial differences in depressive symptoms. Our results highlight that while raising children with DD takes a toll on the health of all parents, the strain might be larger for Black mothers.ConclusionThe adverse effects of parenting a child with DD is more pronounced for Black women than for other race–gender groups indicating opportunities to promote community-based programs for these parents.

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“…Children with speech impairment are at risk of future academic and socioemotional difficulties, activity limitations and participation restrictions (4). Caring for a child with profound developmental delay, such as speech impairment, could place caregivers at risk of poor mental health status, including symptoms of emotional exhaustion, anxiety, depression, hopelessness, pessimism and possible psychological comorbidities (5)(6)(7)(8)(9). For example, one study in Germany found that the proportion of depressive disorders and anxiety disorders among mothers of children with speech-impairments is 11% and 28%, respectively (10).…”

Section: Introductionmentioning

confidence: 99%

Relationships Between Anxiety Symptoms, Hopelessness and Suicidal Ideation Among Parental Caregivers of Mandarin-Speaking Children With Speech Impairment: The Mediating Effect of Depressive Symptoms

Lai

Yang

et al. 2021

Front. Psychiatry

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Background: Determining the mental health status of parents who chronically care for a child with speech impairment is important for developing appropriate interventions to improve both parents' and children's health and achieve a win-win situation. Unfortunately, no study in China has explored this issue. This study investigated the differences in four aspects of mental health between maternal and paternal caregivers for the Mandarin-speaking children with speech impairment and determine whether depressive symptoms mediate the relationships between anxiety symptoms and suicidal ideation, hopelessness and suicidal ideation.Methods: This cross-sectional questionnaire survey was conducted in February 2020 by sending a link to the predesigned electronic questionnaire in WeChat. Standardized assessment tools were employed. Hierarchical multiple logistic regression was conducted to examine the associations between various factors and suicidal ideation, and two separate structural equation models were performed to evaluate the mediating effects of depressive symptoms in the relationship between anxiety symptoms and suicidal ideation as well as between hopelessness and suicidal ideation.Results: This study included 446 parental caregivers of Mandarin-speaking children with speech impairment. Paternal caregivers had greater score than maternal caregivers on loss of motivation (one of the subdomains of hopelessness). Somatic complications of the child (OR = 2.73, 95% CI: 1.09–6.67) and depressive symptoms (OR = 3.38, 95% CI: 1.83–6.30) were positively associated with caregivers' suicidal ideation. Having speech therapy of child (OR = 0.54, 95% CI: 0.29–0.98) was negatively correlated with caregivers' suicidal ideation. There was direct effect of depressive symptoms on suicidal ideation. Depressive symptoms play mediating roles on the relationships between anxiety symptoms (β = 0.171, p < 0.001) as well as between hopelessness and suicidal ideation (β = 0.187, p < 0.001).Conclusions: Paternal and maternal caregivers of Mandarin-speaking children with speech impairment suffered from mental health problems. Preventive strategies and interventions to ameliorate parental psychological well-being, and health care policies to increase the accessibility to speech therapy care of children with speech impairment are imperative.

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Longitudinal changes in well-being of parents of individuals with developmental or mental health problems

Cited by 9 publications

References 22 publications

Family Quality of Life in Children with Severe or Profound Disability: Home Versus Residential Care

Family Quality of Life in Children with Severe or Profound Disability: Home Versus Residential Care

Gendered racial disparities in health of parents with children with developmental disabilities

Relationships Between Anxiety Symptoms, Hopelessness and Suicidal Ideation Among Parental Caregivers of Mandarin-Speaking Children With Speech Impairment: The Mediating Effect of Depressive Symptoms

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