Longitudinal study of patients’ health-related quality of life using EQ-5D-3L in 11 Swedish National Quality Registers

Teni, Fitsum Sebsibe; Rolfson, Ola; Devlin, Nancy; Parkin, David; Nauclér, Emma; Burström, Kristina

doi:10.1136/bmjopen-2020-048176

Cited by 10 publications

(8 citation statements)

References 51 publications

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“…The only previous study we have found that compares EQ-5D in Swedish national registers also showed improvement after surgery ( 4 ). Comparisons of EQ-5D among different surgical procedures are scarce but have been made locally ( 8 ) and internationally focusing on knee and hip surgery, with improvement in EQ-5D index comparable to our study ( 25 ).…”

Section: Discussionmentioning

confidence: 77%

“…Patients’ own assessments of their health status have played an increasingly important role when evaluating medical treatments, explaining why patient-reported outcome measurements (PROMs) are included in most orthopedic registries ( 1 , 2 ). Generic PROMs that are designed to measure the patient’s overall health status can be used to compare one patient population with another, regardless of disability, thereby possibly providing information to support health policy decisions ( 3 , 4 ). Most orthopedic registers in Sweden use the EQ-5D, which provides opportunities to compare patient-reported health status before and after a variety of surgical procedures ( 5 - 7 ).…”

mentioning

confidence: 99%

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Patient-reported outcome for 17,648 patients in 5 different Swedish orthopaedic quality registers before and 1 year after surgery: an observational study

Cöster

Bremander

Nilsdotter

2023

ActaO

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Background and purpose: The EQ-5D is a patientreported outcome measure (PROM). To make priorities and allocate resources between patients and surgical procedures it is necessary to evaluate outcome differences, which is why comparing PROMs between registers is important. We compared EQ-5D data and the follow-up rate for selected diagnoses reported to Swedish orthopedic registers before and 1 year after surgery.Patients and methods: Patients from 5 orthopedic registers (Swespine, Swedish Hip Arthroplasty Register, Swedish Knee Arthroplasty Register, Swedankle, and Swefoot) who, in 2014–2018, underwent surgery in southern Sweden were included in the study. Data on the EQ-5D index, individual questions, and the EQ-VAS at baseline and at the 1-year follow-up was compared.Results: 17,648 patients had completed the EQ-5D pre- and 1-year postoperatively. The follow-up rate ranged from 32% to 88%. All registers showed a statistical and clinically relevant improvement in the EQ-5D index (mean improvement 0.29–0.39), where patients who underwent hip arthroplasties experienced the largest improvement. The EQ-5D index improvements in patients with foot and ankle surgeries were larger than for patients with knee arthroplasties and spinal surgeries. The dimensions “self-care” and “usual activities” had the largest change in patients reporting “some problems.”Conclusion: All 5 registers showed a clinically relevant improvement 1 year postoperatively regarding the EQ-5D index, supporting continuous resource allocation to these groups of patients and surgical procedures. However, using PROM data to present register differences was challenged by the high number of non-responders.

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Section: Discussionmentioning

confidence: 77%

mentioning

confidence: 99%

Patient-reported outcome for 17,648 patients in 5 different Swedish orthopaedic quality registers before and 1 year after surgery: an observational study

Cöster

Bremander

Nilsdotter

2023

ActaO

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Section: Methodsmentioning

confidence: 99%

“…The EQ-5D-3L descriptive system and visual analogue scale (EQ VAS) were used in this study because the measures have previously been validated in MI patients and were found to be a valid general HRQoL measurement scale post-MI 17. Furthermore, this generic measure enables comparison of health problems among patients in different National Quality Registries, to understand the overall severity of problems experienced by patients with different diseases and treatment pathways 18…”

Section: Methodsmentioning

confidence: 99%

“…17 Furthermore, this generic measure enables comparison of health problems among patients in different National Quality Registries, to understand the overall severity of problems experienced by patients with different diseases and treatment pathways. 18 The EQ-5D questionnaire consists of questions covering five health domains, which include mobility, self-care, usual activities, pain/discomfort and anxiety/ depression. An EQ-5D single score is derived based on these five dimensions taking into account societal preference weights.…”

Section: Assessment Of Hrqolmentioning

confidence: 99%

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Sex differences in health-related quality of life trajectories following myocardial infarction: national longitudinal cohort study

et al. 2022

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ObjectivesTo investigate sex-based differences in baseline values and longitudinal trajectories of health-related quality of life (HRQoL) in a large cohort of myocardial infarction (MI) survivors after adjusting for other important factors.DesignLongitudinal cohort study.SettingPopulation-based longitudinal study the Evaluation of the Methods and Management of Acute Coronary Events study linked with national cardiovascular registry. Data were collected from 77 hospitals in England between 1 November 2011 and 24 June 2015.Participants9551 patients with MI. Patients were eligible for the study if they were ≥18 years of age.Primary and secondary outcome measuresHRQoL was measured by EuroQol five-dimension, visual analogue scale (EQ-5D, EQ VAS) survey at baseline, 1, 6 and 12 months after discharge. Multi-level linear and logistic regression models coupled with inverse probability weighted propensity scoring were used to evaluate sex differences in HRQoL following MI.ResultsOf the 9551 patients with MI and complete data on sex, 25.1% (2,397) were women. At baseline, women reported lower HRQoL (EQ VAS (mean (SD) 59.8 (20.4) vs 64.5 (20.9)) (median (IQR) 60.00 (50.00–75.00) vs 70.00 (50.00–80.00))) (EQ-5D (mean (SD) 0.66 (0.31) vs 0.74 (0.28)) (median (IQR) 0.73 (0.52–0.85) vs 0.81 (0.62–1.00))) and were more likely to report problems in each HRQoL domain compared with men. In the covariate balanced and adjusted multi-level model sex differences in HRQoL persisted during follow-up, with lower EQ VAS and EQ-5D scores in women compared with men (adjusted EQ VAS model sex coefficient: −4.41, 95% CI −5.16 to −3.66 and adjusted EQ-5D model sex coefficient: −0.07, 95% CI −0.08 to −0.06).ConclusionsWomen have lower HRQoL compared with men at baseline and during 12 months follow-up after MI. Tailored interventions for women following an MI could improve their quality of life.Trial registration numberClinicalTrials.gov (NCT04598048,NCT01808027,NCT01819103

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EQ-5D-5L value set for Norway: a hybrid model using cTTO and DCE data

Garratt,

Stavem,

Shaw

et al. 2024

Qual Life Res

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Purpose To develop the Norwegian value set for the EQ-5D-5L based on interviews with a representative sample of the Norwegian adult population. Methods Random and quota sampling were used to recruit the sample of adults (age> 18 years) representative of the Norwegian general population. Data collection followed EQ-VT 2.1 undertaken before and after the COVID-19 pandemic from November 2019 to December 2022, using PC-assisted and video conferencing interviews, respectively. Each respondent valued 10 health states using composite time trade-off (cTTO) and 7 health states using a discrete choice experiment (DCE). Different statistical models were assessed for logical consistency and predictive accuracy using cTTO and DCE data alone or in combination as hybrid models. Results Of the 1,321 respondents, 1,237 met inclusion criteria. All statistical models demonstrated logical consistency. The weighted hybrid model combining both cTTOand DCE data was preferred and had the highest predictive accuracy. Predicted values ranged from -0.453 to 1, and the dimension of anxiety/depression was the most highly valued by respondents, followed by pain/discomfort, self-care, mobility, and usual activities. These findings are not dissimilar to those for most Western European countries, and regression coefficients are closest to those for other Scandinavian countries. Conclusion This study provides the Norwegian value set for the EQ-5D-5L based on health state values obtained from members of the adult general population in Norway. This is an important contribution to economic evaluation and the broader application ofthe EQ-5D-5L in Norway including clinical and health services research, and quality measurement.

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Longitudinal study of patients’ health-related quality of life using EQ-5D-3L in 11 Swedish National Quality Registers

Cited by 10 publications

References 51 publications

Patient-reported outcome for 17,648 patients in 5 different Swedish orthopaedic quality registers before and 1 year after surgery: an observational study

Patient-reported outcome for 17,648 patients in 5 different Swedish orthopaedic quality registers before and 1 year after surgery: an observational study

Sex differences in health-related quality of life trajectories following myocardial infarction: national longitudinal cohort study

EQ-5D-5L value set for Norway: a hybrid model using cTTO and DCE data

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