Looking Behind the Fear of Becoming a Burden

Fox, Brandy M.

doi:10.1007/s10730-020-09420-w

Cited by 3 publications

(1 citation statement)

References 29 publications

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“…This also involves a responsibility to understand what values matter for the patient and prioritize these [45,46]. Not being able to employ autonomy can have a negative impact when in need of help, and damage the patient´s self-image and sense of dignity [47]. Delmar says that it is a form of neglect to equate the autonomy of a healthy person with that of a sick person and expect the latter to have the resources and capacity to take responsibility for her situation as if she was functionally healthy.…”

Section: Fixed Care -A Menace For the Elderly Patientmentioning

confidence: 99%

´You are not yourself anymore´: The place of the ethical demand in a practical home care context

Jakobsen

Lind

2022

Scandinavian Caring Sciences

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The study's rationale: The Scandinavian nursing tradition is based on caring science as the ontological backdrop. This means that meeting the patient with openness and respect is essential in care. The experiences of an elderly woman receiving home nursing provide insight into a world many healthcare workers need to understand; meaning what is important in the encounter with the fragile old patient whose voice is not often heard in the society nor in research. Caring science with its personoriented care clashes with the New Public Management's ideal for municipal health care in Norway, at the expense of the needs of the elderly patients. Aims and objectives:This article aims to express the phenomenon of lived experience as presented by an elderly woman, more specifically her experience of care in home nursing run according to the principles of new public management. Methodological design:The article is based on an empirical narrative in the form of an individual qualitative research interview. Findings:The patient has needs that cannot be defined without the nurse having an ethical understanding of what may be important in the patient´s lifeworld. The core findings are: Feeling disregarded as a human being, Broken agreements, Surrendering in anonymous relationships and Each day is a different day with altered needs. Conclusion:The system of New Public Management sets a strain on the time at hand for the nurse to develop a relationship that acknowledges and supports the patient´s life courage. The ethical demand and care ethics can explain how the patient´s will to live can be preserved, and provide knowledge of how the caregiver can best attend to the patient's ways of expressing what is important to her. Nevertheless, within the time at disposal, the nurse has an opportunity to either marginalize or strengthen the old person´s dignity.

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Section: Fixed Care -A Menace For the Elderly Patientmentioning

confidence: 99%

´You are not yourself anymore´: The place of the ethical demand in a practical home care context

Jakobsen

Lind

2022

Scandinavian Caring Sciences

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Distinctions between depression and anxiety with fear of being a burden in late life

Alfaro

Carlson

Segal

et al. 2021

Aging & Mental Health

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From ontological to relational: A scoping review of conceptions of dignity invoked in deliberations on medically assisted death

Martineau,

Hamrouni,

Hébert

2024

BMC Med Ethics

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Background Dignity is omnipresent in Western ethics, but it also provokes dissension and controversy. One of the most striking examples is the debate on medically assisted death, where dignity is invoked to support antagonistic positions. While some authors conclude that the concept is useless as an ethical reference, many others invite us to deepen our analysis from a multidimensional perspective, to enrich it and make it useful. This scoping study is intended to provide an overview of the different conceptions of dignity used in the assisted dying debate, to better grasp the multiple facets of the concept. Methods The Joanna Briggs Institute's JBI Manual for Evidence Synthesis guided the scoping review. Key words were based on the researchers' expertise and were used to identify relevant literature in French and English. Eleven databases covering the last six decades were consulted. Initially, 2,071 references were found in the databases. After excluding duplicates, screening titles, abstracts, and full texts, and after a specific literature search on the concept of relational dignity, 156 papers were found to match the identified inclusion criteria. Results The literature highlights the stark confrontation between two dominant conceptions of dignity: ontological and autonomist. However, a lesser-known conceptualization of dignity integrates these two perspectives, underlining the relational and social dimensions of dignity. As a result, dignity emerges as a dynamic, experiential, and dialogical concept, that modulates itself according to circumstances. This raises the possibility of breaking through the binary debate and questioning the current frameworks that define dignity. Conclusions This multidimensional conceptualization of dignity could lead to a more complete and nuanced understanding of the concept, as well as open richer normative horizons regarding the issue of medically assisted death. Supplementary Information The online version contains supplementary material available at 10.1186/s12910-024-01095-z.

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Looking Behind the Fear of Becoming a Burden

Cited by 3 publications

References 29 publications

´You are not yourself anymore´: The place of the ethical demand in a practical home care context

´You are not yourself anymore´: The place of the ethical demand in a practical home care context

Distinctions between depression and anxiety with fear of being a burden in late life

From ontological to relational: A scoping review of conceptions of dignity invoked in deliberations on medically assisted death

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