Looking past the obvious: experiences of altered masculinity in penile cancer

Bullen, Kathryn; Edwards, Stephen D.; Marke, Victoria; Matthews, Sarah

doi:10.1002/pon.1642

Cited by 60 publications

(70 citation statements)

References 25 publications

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“…In common with findings from a Welsh study (Bullen et al, 2010) men's narratives of masculinity were interlaced with a hegemonic discourse of stoicism, independence, robustness and resiliency. Some researchers have found that this enactment of 'maleness' is a barrier to the in-depth, nuanced account of experiences that interviews seek (Oliffe and Mróz, 2005).…”

Section: Eliciting Narrativessupporting

confidence: 60%

“…The standard treatment is to surgically remove the primary tumour; the extent of the excision is determined by the size and staging of the cancer (Pizzocaro et al, 2010). Whilst treatment is usually effective, the physical and psychological effects can be profound (Opjordsmoen and FossÅ, 1994), impacting not only on the form and function of the penis (Maddineni et al, 2009, Branney et al, 2011 but also on the self-image and mental well-being of those receiving treatment (Ficarra et al, 2000, Romero et al, 2005, Bullen et al, 2010.…”

Section: Penile Cancer and The Pepc Studymentioning

confidence: 99%

“…Qualitative research, such as in-depth interviewing is being recognised as providing an ideal tool for exploring patient experience and the complexities of men's subjective lives (Hutchinson et al, 2002) and particularly apt when the topic being researched is of a sensitive nature (Elmir et al, 2011). The growing body of qualitative research focused around men's experiences of ill health would indicate, counter to many false assumptions, some men will talk about their ill health (see for example (Ervik and Asplund, 2012, Bullen et al, 2010, Oliffe et al, 2010 but, with the notable exception of Oliffe and Mróz's (2005) guidance paper, there is limited practical advice for researchers on how to engage men in qualitative research.…”

Section: Introductionmentioning

confidence: 99%

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Engaging men with penile cancer in qualitative research: reflections from an interview-based study

et al. 2014

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Aims: To explore the challenges of engaging men with penile cancer in qualitative interview research. Background:Qualitative interviewing offers an ideal tool for exploring men's experiences of illness, complementing and providing context to gendered health inequalities identified within epidemiological research on men. But, conducting interview research with men can be challenging and with limited practical, gender sensitive guidance for researchers, embarking on a qualitative interview study with men can feel like a daunting task. Reflecting on a researcher's experience of conducting qualitative research on men with penile cancer, the current paper explores the potential challenges of interviewing this group of men, but also documents how engagement and data collection was achieved.Review methods: This is a reflective paper, informed by the experiences of a male researcher with no nurse training, conducting 27 interviews with men who have been treated for penile cancer. Researcher experience is reported in chronological order, from the methodological challenges of recruitment to those of conducting the interview itself. Conclusion:Engaging men with penile cancer in a qualitative interview study raises practical, methodological, ethical and emotional challenges for the researcher, however, in reflecting on interviews conducted with men who have received treatment for penile cancer the authors challenge false assumptions that men will not talk about their ill health.Methodological procedures must enable an open and on-going dialogue with clinical 2 gatekeepers and potential participants to promote engagement. Emotional and practical support from colleagues is an essential for any interviewer, no matter how experienced.Implications for practice/research: The paper offers a resource for the novice researcher, highlighting some advantages and disadvantages of conducting qualitative interview research in a nurse researcher role as well as recommendations on how to overcome key challenges.

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Section: Eliciting Narrativessupporting

confidence: 60%

Section: Penile Cancer and The Pepc Studymentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Engaging men with penile cancer in qualitative research: reflections from an interview-based study

et al. 2014

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“…The Welsh study that met our inclusion criteria [8][9][10] provides an example of how we could explore quality of life after treatment for penile cancer; one-on-one semi-structured interviews guided by 6-8 questions, which encourage the participant to talk about their experiences. Nevertheless, there are a wide range of qualitative data collection and analytic methods available [21] , which often draw upon unique ways of thinking about and exploring the world.…”

Section: Resultsmentioning

confidence: 99%

“…Only one Welsh study by Bullen et al, reported across three publications [8][9][10] , met our inclusion criteria and therefore a synthesis was impossible. There were 5 borderline studies (across 8 publications [11][12][13][14][15][16][17][18] ) from 4 countries (see Table 1).…”

Section: Search Outcomementioning

confidence: 99%

Clinical practice as research for a rare condition: systematic research review of qualitative research exploring patients’ experiences of penile cancer

Branney

Raine²,

Witty³

et al. 2013

Clinical Nursing Studies

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Background: Penile cancer is a rare but destructive malignancy. The aim of this study was to identify published qualitative research exploring patients' experiences of being diagnosed and treated for penile cancer. As only one study met our inclusion criteria and yet there were five borderline studies, a secondary aim that emerged was to discuss those studies to see what, if anything, we could learn. Methods:We searched ASSIA, CINAHL, EMBASE, PUBMED/MEDLINE, PsycINFO & Web of Science and found 313 papers published since 1990. Two reviewers independently selected 17 papers for potential inclusion using titles and abstracts, which were obtained and independently assessed. A synthesis was not possible as only one study met our inclusion criteria. Five borderline studies, covering 4 countries, invited closer inspection because they are often reported in guidelines on penile cancer. Results:The 5 borderline studies reported using a mixed methods design combining a psychometric measure with interviews. Unfortunately, none of these studies reported the method or process used for analysing qualitative data or for integrating the interview and psychometric findings, making it difficult to understand the interview element of their research. Conclusions:If we are to understand and improve the long-term consequences of treatment for penile cancer, qualitative studies of patients' experiences need to be conducted with high quality analysis and reporting. While pen-and-paper questionnaires may take up little of the time of clinicians conducting research about rare conditions, time could be better used by using methodologies that explore patients experiences.

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Dyadic Aspects of Sexual Well-Being in Men with Laser-Treated Penile Carcinoma

Skeppner

Fugl-Meyer

2015

Sexual Medicine

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IntroductionCoping with cancer, its treatment and recovery are dyadic processes within a relationship. Sexual dysfunctions and problems of penile cancer may add to the demands of coping.AimThe prospective study aimed to describe the dyadic aspects of sexual well-being and life satisfaction before and 1 year after organ-sparing laser treatment of penile carcinoma.MethodsA consecutive series of 29 patients with penile carcinoma suitable for laser treatment were included together with their partners, median age 60 (37–73) years and 57 (30–72) years, respectively. Median length of relationship was 29 years (1–54 years). The participants completed structured interviews before treatment, at 6 months’ and 12 months’ follow-up. The interview addressed sexual activities, sexual functions, verbal (sexual) communication, and life satisfaction.Main Outcome MeasuresThree well-validated instruments were included: Hospital Anxiety and Depression Scale, International Index of Erectile Function-5, and Life Satisfaction checklist, LiSat-11. The interviews contained the same questions for patients and partners at all three measuring points.ResultsThere was a high level of within-couple agreement on sexual activities, sexual function, and life satisfaction before and after organ-sparring treatment. No significant differences between interview data at 6 and 12 months’ follow-up occurred. Before treatment, sexual dysfunctions were common among men, especially decreased sexual interest and dyspareunia. At follow-up, increased sexual function was found, with the exception of erectile function and women’s orgasm. A rather high proportion was being unsatisfactory sexually inactive. Few had an ongoing verbal (sexual) mutual communication. Couples with an active sexual life at follow-up showed coherence in high satisfaction with life as a whole.ConclusionA high level of within-couple agreement concerning sexuality and life satisfaction points to the necessity of including an adequate sexological case history, counseling, and treatment for this group of patients and their partners.

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Looking past the obvious: experiences of altered masculinity in penile cancer

Cited by 60 publications

References 25 publications

Engaging men with penile cancer in qualitative research: reflections from an interview-based study

Engaging men with penile cancer in qualitative research: reflections from an interview-based study

Clinical practice as research for a rare condition: systematic research review of qualitative research exploring patients’ experiences of penile cancer

Dyadic Aspects of Sexual Well-Being in Men with Laser-Treated Penile Carcinoma

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