Lost in Translation: Public Policies, Evidence-based Practice, and Autism Spectrum Disorder

Dillenburger, Karola; McKerr, Lynne; Jordan, Julie-Ann

doi:10.1080/1034912x.2014.905059

Cited by 26 publications

(19 citation statements)

References 37 publications

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“…As another example, in both Northern Ireland and in the Republic of Ireland to date, none of the huge numbers of the autism reports or strategy documents have included any professionally qualified representative of ABA (Keenan 2014;McCormack 2014;Behaviour Analysis in Ireland 2013). Consequently, due to the Dunning-Kruger effect, misinformation and the associated caricatures of ABA have formed the basis of government strategies and policies (Dillenburger et al 2014a). …”

Section: Ethicsmentioning

confidence: 99%

Autism and ABA: The Gulf Between North America and Europe

Keenan

Dillenburger

Röttgers

et al. 2014

Rev J Autism Dev Disord

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Section: Ethicsmentioning

confidence: 99%

Autism and ABA: The Gulf Between North America and Europe

Keenan

Dillenburger

Röttgers

et al. 2014

Rev J Autism Dev Disord

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“…A UK government report stated that ABA was not supported by research (NICE, 2013) and some UK practitioners have simply ignored the entire concept of evidence-based practice, with some stating unequivocally that research is of little relevance to their working practices regarding autism (Hughes, 2008). This is in spite of other governments, for example in United States and Australia (Perry & Condillac, 2003;Prior, Roberts, Rodger, & Williams, 2011) although international research has demonstrated the relative ineffectiveness of other treatment approaches for individuals with autism, this evidence base is also widely ignored in the UK (Dillenburger, McKerr & Jordan, 2014).…”

Section: Challenges Faced When Disseminating Nationally and Internatimentioning

confidence: 99%

Spreading the News: History, Successes, Challenges and the Ethics of Effective Dissemination

Kelly

Martin

Dillenburger³

et al. 2018

Behav Analysis Practice

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Behavior analysts are responsible for disseminating behavior analysis by making information about the science available to the public, professional peers, and government officials. The purposes of the current paper are to outline the dissemination efforts of professional associations in the field of behavior analysis; to highlight the parallel efforts to disseminate and establish behavior analysis as a profession, including the evolution and growth of certification; to share examples of dissemination successes; to describe some challenges that have been faced when disseminating behavior analysis internationally; and to suggest some strategies for ethical and effective dissemination of behavior analysis.

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“…In Northern Ireland, for example, historically policy makers refused to engage with behaviour analysts [55,56] and hence their understanding of ABA remains limited with the consequence that people with autism and their families are denied access to ABA-based supports [48]. At the heart of the problem lies misinformation that is maintained by gatekeepers whose limited understanding of ABA is undermining government recommendations [57].…”

Section: Science and Autism Policies Elsewherementioning

confidence: 99%

“…When behaviour analysts are side-lined in major Government reviews, it is not surprising, that autism reviews repeatedly report ABA-based interventions incorrectly [56,78].…”

mentioning

confidence: 99%

How ‘Fake News’ Affects Autism Policy

Keenan

Dillenburger

2018

Societies

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Since autism was first recognised, prevalence has increased rapidly. The growing economic as well as social cost to families and society can only be mitigated by effective interventions and supports. It is, therefore, not surprising that there is much heated debate and most governments have developed public policies to address the management of autism. This paper describes how well-known 'propaganda' techniques, that have become prevalent in the helping professions have been used to influence autism policies by spreading 'fake news' about the scientific discipline of Applied Behaviour Analysis (ABA). Over the past 40-50 years, meaningful evidence has accrued showing that interventions based on ABA can help people with autism reach their potential. In view of this, nearly all of North America has laws to mandate that ABA-based interventions are available through their health care systems. In contrast, across Europe there are no such laws. In fact, the National Institute for Health and Care Excellence (NICE), the body guiding health and social policy in the UK, concluded that it could not find any evidence to support ABA, and therefore could not recommend it. This paper addresses the reasons for these diametrically opposed perspectives.

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Lost in Translation: Public Policies, Evidence-based Practice, and Autism Spectrum Disorder

Cited by 26 publications

References 37 publications

Autism and ABA: The Gulf Between North America and Europe

Autism and ABA: The Gulf Between North America and Europe

Spreading the News: History, Successes, Challenges and the Ethics of Effective Dissemination

How ‘Fake News’ Affects Autism Policy

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