<p>Measuring the Patient Experience of Mental Health Care: A Systematic and Critical Review of Patient-Reported Experience Measures</p>

Abstract

Background There is growing concern about measuring patient experience with mental health care. There are currently numerous patient-reported experience measures (PREMs) available for mental health care, but there is little guidance for selecting the most suitable instruments. The objective of this systematic review was to provide an overview of the psychometric properties and the content of available PREMs. Methods A comprehensive review following the preferred reporting items for systematic reviews and meta-analysis (PRISMA) guidelines was conducted using the MEDLINE database with no date restrictions. The content of PREMs was analyzed using an inductive qualitative approach, and the methodological quality was assessed according to Pesudovs quality criteria. Results A total of 86 articles examining 75 PREMs and totaling 1932 items were included. Only four PREMs used statistical methods from item response theory (IRT). The 1932 items covered seven key mental health care domains: interpersonal relationships (22.6%), followed by respect and dignity (19.3%), access and care coordination (14.9%), drug therapy (14.1%), information (9.6%), psychological care (6.8%) and care environment (6.1%). Additionally, a few items focused on patient satisfaction (6.7%) rather than patient experience. No instrument covered the latent trait continuum of patient experience, as defined by the inductive qualitative approach, and the psychometric properties of the instruments were heterogeneous. Conclusion This work is a critical step in the creation of an item library to measure mental health care patient-reported experience that will be used in France to develop, validate, and standardize item banks and computerized adaptive testing (CAT) based on IRT. It will also provide internationally replicable measures that will allow direct comparisons of mental health care systems. Trial Registration NCT02491866.

interRAI Subjective Quality of Life Scale for Mental Health and Addiction Settings: A Self-Reported Measure Developed From a Multi-National Study

“…Another growing consensus is the importance of incorporating perspectives of mental health service users in evaluating clinical trials, services, and policies. Consequently, the interest in patientreported measures of QoL has gained prominence in mental health practice (3)(4)(5).…”

Capturing the experiences of patients with inherited optic neuropathies: a systematic review of patient-reported outcome measures (PROMs) and qualitative studies

“…For qualitative studies, any identified themes and direct patient quotes/extracts were extracted. The psychometric quality of each identified PROM instrument was assessed using previously described quality criteria [8], based on the FDA guidance document and the 'COnsensus-based Standards for the selection of health Measurement INstruments' (COSMIN) risk of bias assessment tool [Appendix 2]. The quality of qualitative studies was assessed using the 'Critical Appraisal Skills Programme' (CASP) checklist for qualitative studies [9].…”

Reporting Inpatients’ Experiences and Satisfaction in a National Psychiatric Facility: A Study Based on the Random Forest Algorithm

“…Meanwhile, it is imperative to distinguish between patient-reported experience and satisfaction and study the interrelation between these two constructs. Patient-reported experience refers to interaction on specific aspects of care, while satisfaction is about the degree of fulfilling patients’ expectations or needs ( 21 , 22 ). Worth mentioning in this context, and according to our best knowledge, no studies in Bahrain—the country in which this research took place—have been conducted to explore the association between patients’ experiences of care and satisfaction in the inpatient psychiatric ward.…”

“…A recent systematic review study has identified a total of 86 articles and examined 75 patient-reported experience measures for mental health care. It has indicated the diversity of experience factors and the necessity to focus on the most relevant ones meeting psychiatric care providers’ needs ( 21 ). Alongside the treatment delivery experience ( 22 ), many other relational and environmental experience factors have been invaluable and could play a vital role in the mental health setting.…”