Lung cancer, caring for the caregivers. A qualitative study of providing                 pro-active social support targeted to the carers of patients with lung cancer

Ryan, P. J.; Howell, Veronica; Jones, Jacqueline; Hardy, EJ

doi:10.1177/0269216307087145

Cited by 30 publications

(32 citation statements)

References 12 publications

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“…A previous study of carers of patients with lung cancer found that the main component of emotional support for them was having someone to listen and talk to. 33 We suggest this support should be available not just in the terminal phase or in bereavement but at the four key transitions: at diagnosis, at home after treatment, at recurrence, and in the terminal stage. These findings are likely to apply to carers of people affected by other cancers that are characterised by rapid decline.…”

Section: Research and Clinical Implicationsmentioning

confidence: 99%

Archetypal trajectories of social, psychological, and spiritual wellbeing and distress in family care givers of patients with lung cancer: secondary analysis of serial qualitative interviews

Murray

Kendall

Boyd

et al. 2010

BMJ

129

121

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Objective To assess if family care givers of patients with lung cancer experience the patterns of social, psychological, and spiritual wellbeing and distress typical of the patient, from diagnosis to death. Design Secondary analysis of serial qualitative interviews carried out every three months for up to a year or to bereavement.Setting South east Scotland.Participants 19 patients with lung cancer and their 19 family carers, totalling 88 interviews (42 with patients and 46 with carers).Results Carers followed clear patterns of social, psychological, and spiritual wellbeing and distress that mirrored the experiences of those for whom they were caring, with some carers also experiencing deterioration in physical health that impacted on their ability to care. Psychological and spiritual distress were particularly dynamic and commonly experienced. In addition to the “Why us?” response, witnessing suffering triggered personal reflections in carers on the meaning and purpose of life. Certain key time points in the illness tended to be particularly problematic for both carers and patients: at diagnosis, at home after initial treatment, at recurrence, and during the terminal stage.Conclusions Family carers witness and share much of the illness experience of the dying patient. The multidimensional experience of distress suffered by patients with lung cancer was reflected in the suffering of their carers in the social, psychological, and spiritual domains, with psychological and spiritual distress being most pronounced. Carers may need to be supported throughout the period of illness not just in the terminal phase and during bereavement, as currently tends to be the case.

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Section: Research and Clinical Implicationsmentioning

confidence: 99%

Archetypal trajectories of social, psychological, and spiritual wellbeing and distress in family care givers of patients with lung cancer: secondary analysis of serial qualitative interviews

Murray

Kendall

Boyd

et al. 2010

BMJ

129

121

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“…Yet, when patients receive high levels of support such as love and acceptance from their social network, attributions of blame may be less distressing. Network support is also an important predictor of adjustment for caregivers of patients with lung cancer (26) and experiencing supportive relationships may alleviate distress associated with blaming one's loved one for developing a life-threatening disease.…”

Section: Introductionmentioning

confidence: 99%

The Role of Blame in the Psychosocial Adjustment of Couples Coping with Lung Cancer

2012

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Background Lung cancer patients and their spouses may engage in blame attributions regarding the cancer cause, which may adversely affect their psychological adjustment. Purpose To examine whether dyadic adjustment and network support moderate the association between blame and distress in couples affected by lung cancer. Methods Patients and their spouses completed questionnaires within 1 month of treatment initiation (baseline) and at 6-month follow-up. Results Multilevel modeling of data from 158 couples revealed that, at baseline, dyadic adjustment moderated the association between blame and distress for patients but not spouses (p<.05). Controlling for baseline distress, baseline blame predicted later distress (p<.05) for both patients and spouses regardless of dyadic adjustment. Network support moderated this association at follow-up. Conclusion For patients experiencing low dyadic adjustment, blame was associated with increased distress. Not initially but later, network support may protect against low levels but not high levels of blame in patients and spouses.

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“…12Y16 In addition, care provided to support persons (ie, family or friends) is described as being more secondary and reactive rather than planned. 17 Individuals who care for lung cancer patients report the highest level of dissatisfaction with information provision in comparison to other types of cancer caregivers. 18,19 Elevated distress levels in caregivers occur when the extent of patient symptoms are not acknowledged by healthcare providers despite raised concerns by patients with lung cancer and their family caregivers.…”

mentioning

confidence: 99%

A Qualitative Analysis of “Naturalistic” Conversations in a Peer-Led Online Support Community for Lung Cancer

Lobchuk¹,

McClement

Rigney

et al. 2015

Cancer Nursing

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Lung cancer, caring for the caregivers. A qualitative study of providing pro-active social support targeted to the carers of patients with lung cancer

Cited by 30 publications

References 12 publications

Archetypal trajectories of social, psychological, and spiritual wellbeing and distress in family care givers of patients with lung cancer: secondary analysis of serial qualitative interviews

Archetypal trajectories of social, psychological, and spiritual wellbeing and distress in family care givers of patients with lung cancer: secondary analysis of serial qualitative interviews

The Role of Blame in the Psychosocial Adjustment of Couples Coping with Lung Cancer

A Qualitative Analysis of “Naturalistic” Conversations in a Peer-Led Online Support Community for Lung Cancer

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