Maintaining distance from a necessary intrusion: A postcolonial perspective on dying at home for Chinese immigrants in Toronto, Canada

Nielsen, Lisa Seto; Angus, Jan; Gastaldo, Denise; Howell, Doris; Husain, Amna

doi:10.1016/j.ejon.2013.06.006

Cited by 14 publications

(33 citation statements)

References 37 publications

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“…“Receipt of palliative care at home can change the meaning of home from a place of health, refuge, privacy, security, and living […], to a site that also accommodates and support dying”, (p. 649)…”

Section: Resultsmentioning

confidence: 99%

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Ideas of home in palliative care research: A concept analysis

2018

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Section: Resultsmentioning

confidence: 99%

“…“Care recipients and family care givers must learn to manage care through an altered space [the home] that has become a site of health care”, (p. 654)…”

Section: Resultsmentioning

confidence: 99%

Ideas of home in palliative care research: A concept analysis

2018

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“…Pelos relatos fica implícito a formação de vínculo entre profissional, paciente e família, gerando satisfação entre os envolidos (3) . O fornecimento de informações necessárias, a disponibilidade dos profissionais para uma conversa descontraída, bem como o estabelecimento de laços de confiança, permite que o paciente expresse suas dúvidas, preocupações, anseios e expectativas, assim como promove alívio de sentimentos como ansiedade, medo e angústia (19) .…”

Section: Benefícios Do Pidiunclassified

“…Esta modalidade de atenção, pode ser ofertada tanto em hospital, bem como no domicílio (3)(4) . Para tanto, torna-se necessário assim uma assistência multiprofissional/interdisciplinar, com comunicação entre equipe, família, cuidador, usuário e serviços de saúde, o que permite interações que favoreçam a formação de compromissos e articulação dos pontos de atenção, resultando na integralidade do cuidado (5) .…”

Section: Introductionunclassified

Meaning and Perceptions in Palliative Care: over view of patients on homecare / Significados e Percepções em cuidados paliativos: olhar de pacientes domiciliares / Significados y Percepciones en Cuidados Paliativos: punto de vista de pacientes...

et al. 2017

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Objective: to know the meanings and perceptions on palliative care by patients of the Interdisciplinary home care program. Method: this is a qualitative-descriptive study, which was carried out with oncological patients under palliative care, who were also bound to the Interdisciplinary Home Care Program, which is localized in Pelotas, Rio Grande do Sul, Brazil. Data collection happened through semi-structured interviews, which were done at patients' homes, from August to October of 2015. Results and Discussion: from the analysis, three categories were elaborated, which are: Feelings about the diagnosis, The benefits of the Program, and Palliative Care: (un)knowledge. Final Considerations: for the interest on investigation, it is possible to know the meanings and perceptions on palliative care by patients, which goes beyond physical conditions and directly interfere in the process of illness, additionally to the search for questions that might contribute to an effective palliative intervention, considering the individual's singularity and the looking for quality of life. Keywords: Palliative care; Home Care Services; Oncology Nursing. RESUMO Objetivo: Conhecer os significados e percepções de cuidados paliativos pelos pacientes do Programa de Internação Domiciliar Interdisciplinar. Metodologia: O estudo foi qualitativo-descritivo, realizado com pacientes oncológicos em cuidados paliativos, vinculados ao Programa de Internação Domiciliar Interdisciplinar, situado em Pelotas, Rio Grande do Sul, Brasil. A coleta de dados se deu por meio de entrevistas semiestruturadas, realizadas no domicílio dos sujeitos do estudo, de agosto a outubro de 2015. Resultados e Discussão: a partir da análise foram elaboradas três categorias, as quais foram denominadas: Impressões acerca do diagnóstico, Benefícios do PIDI, e Cuidados Paliativos: (des)conhecimentos. Considerações Finais: pode-se conhecer os significados e percepções de cuidados paliativos pelos pacientes, pelo interesse da investigação que vai além das condições físicas e que interferem diretamente no processo de adoecimento, como também a busca por questões que possam contribuir para uma assistência paliativa efetiva, levando em consideração a singularidade do sujeito e a busca pela qualidade de vida. PalavrasChave: Cuidados Paliativos; Serviços de Assistência Domiciliar; Enfermagem Oncológica. RESUMEN Objetivo: conocer los significados y percepciones de cuidados paliativos por los pacientes del Programa de Internación Domiciliaria Interdisciplinar. Método: este estudio es cualitativo-descriptivo, realizado con pacientes oncológicos en cuidados paliativos, vinculados al Programa de Internación Domiciliaria Interdisciplinar, ubicado en Pelotas, Rio Grande do Sul, Brasil. La recolecta de datos fue llevada a cabo por medio de entrevista semiestructurada, realizada en los domicilios de los sujetos de estudio, de agosto a octubre de 2015. Resultados y Discusión: a partir del análisis, fueron elaboradas tres categorías, las cuales fueron denominadas: Impresiones sobre...

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“…Place has been positioned as crucial to the nature of mental health care (Montgomery, 2001;Andes and Shattell, 2006), community health (Bender et al, 2007), home care (Duke and Street, 2003), gerontology and geriatrics (Cheek, 2004) and midwifery (Lock and Gibb, 2003). Other studies have investigated the dynamics between places and nurse-patient decisions, ethics, interactions and relationships (Purkis, 1996;Malone, 2003;Bucknall, 2003;Peter and Liaschenko, 2004;Shattell et al, 2008;Seto-Nielsen et al, 2013). Finally, the dynamics between places and intra-and inter-professional interactions and relationships (West and Barron, 2005;Barnes and Rudge, 2005;Oandasan et al, 2009;Kitto et al, 2013), and those between places and the nature and outcomes of care (including through place-based clinical interventions) (McKeever et al, 2002;Angus et al, 2003;Hodnett et al, 2005Hodnett et al, , 2009Marshall, 2008;Mesman, 2012) have been a focus of constructivist/humanist scholars.…”

Section: The Third Wave: Geographies In Nursingmentioning

confidence: 99%

Transfusing our lifeblood: Reframing research impact through inter-disciplinary collaboration between health geography and nurse education

Kyle

Atherton

Kesby

et al. 2016

Social Science & Medicine

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Geographers have long grappled with how their research can positively impact individuals, communities and society. Demonstrating research impact is an increasingly important aspect of academic life internationally. In this paper we argue that agendas for encouraging 'impact' would be well-served if impact through teaching was identified and stimulated more explicitly, and if academics better recognised and seized the opportunities that already exist for such impact. We take engagement between health geography and nurse education as an example of how social scientists could demonstrate research impact through inter-disciplinary involvement in the education of health care professionals, and specifically student nurses. We begin by showing how the UK's Research Excellence Framework (widely regarded as the key reference point for research performance management regimes internationally) has tended to produce an undervaluation of impact via education in many disciplines. A comprehensive overview of international scholarship at the intersection between geography and nursing is then presented. Here we trace three 'waves of enquiry' that have focused on research interactions before calling for a fourth focused on critical pedagogy. To illustrate the possibilities of this fourth wave, we sketch a case study that outlines how engagement with research around blood donation could help provide a foundation for critical pedagogy that challenges student nurses to practice reflexively, think geographically and act justly. Finally, we call for closer engagement between health geography and nurse education, by encouraging educators to translate, teach, and transfuse ideas and people between health geography and nurse education. In so doing, we argue that work at this interface can be mutually beneficial and demonstrate impact both within and beyond research assessment rubrics. Hence, our ideas are relevant beyond nurse education and geography insofar as this paper serves as an example of how reframing research impact can recover the importance of impact through education.

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Maintaining distance from a necessary intrusion: A postcolonial perspective on dying at home for Chinese immigrants in Toronto, Canada

Cited by 14 publications

References 37 publications

Ideas of home in palliative care research: A concept analysis

Ideas of home in palliative care research: A concept analysis

Meaning and Perceptions in Palliative Care: over view of patients on homecare / Significados e Percepções em cuidados paliativos: olhar de pacientes domiciliares / Significados y Percepciones en Cuidados Paliativos: punto de vista de pacientes...

Transfusing our lifeblood: Reframing research impact through inter-disciplinary collaboration between health geography and nurse education

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