making a difference

Wilkins, Julie

doi:10.7748/ldp2004.02.7.1.8.c1548

Cited by 4 publications

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“…Learning disability nurses are the single professional group trained specifically to work with people with intellectual disabilities and adopt a pivotal role in identifying unmet health needs, promoting reasonable adjustments and enabling increased access to mainstream health services (UK Chief Nursing Officers, 2012). Studies designed to improve the uptake of cervical screening by women with intellectual disabilities using learning disability nurse interventions have demonstrated some improvement; however, this research also suggests that cervical screening may not be considered in the best interest of some women on the basis of their established lifestyle behaviours and low-risk status (Biswas et al, 2005; Wilkins, 2004).…”

Section: Introductionmentioning

confidence: 95%

“…Studies designed to improve the uptake of cervical screening by women with intellectual disabilities using learning disability nurse interventions have demonstrated some improvement; however this research also suggests that cervical screening may not be considered in the best interest of some women on the basis of their established lifestyle behaviours and low risk status (Wilkins, 2004;Biswas, Whalley, Foster et al, 2005). Watts (2008) in a review of the literature argued that there was 'a notable gap in the research literature of fully reported empirical studies investigating factors that prevent women with intellectual disabilities from accessing cervical screening' (p. 524).…”

Section: Introductionmentioning

confidence: 99%

“…means of invitation and place of screening). Current figures indicate that a significant number of women in the general population do not attend cervical screening (Health & Social Care Information Centre, 2012) and despite clear policy frameworks for the delivery of equitable health care for people with intellectual disabilities in the UK (Department of Health, 2003, 2004, several studies have reported particularly poor uptake among women with intellectual disabilities (Reynolds, Stanistreet and Elton, 2008;Glover, Emerson and Eccles, 2012;Osborn, Horsfall, Hassiotis et al, 2012). A similar picture is evident in the USA with the findings of a national study that substantiated existing evidence of poor uptake suggesting that women with intellectual disabilities were 72% less likely to have received cervical screening compared to nondisabled women (Parish and Saville, 2006).…”

Section: Introductionmentioning

confidence: 99%

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The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities

Lloyd¹,

Coulson

2014

J Intellect Disabil

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Access from the University of Nottingham repository:http://eprints.nottingham.ac.uk/41591/1/The%20role%20of%20learning%20disability %20nurses%20in%20promoting%20cervical%20screening%20uptake%20in%20women %20with%20intellectual%20disabilities-%20a%20qualitative%20study%20AAM.pdf Copyright and reuse:The Nottingham ePrints service makes this work by researchers of the University of Nottingham available open access under the following conditions. This article is made available under the University of Nottingham End User licence and may be reused according to the conditions of the licence. For more details see: http://eprints.nottingham.ac.uk/end_user_agreement.pdf A note on versions:The version presented here may differ from the published version or from the version of record. If you wish to cite this item you are advised to consult the publisher's version. Please see the repository url above for details on accessing the published version and note that access may require a subscription.For more information, please contact eprints@nottingham.ac.ukCitation : J Intellect Disabil. 2014 Jun;18(2):129-145. Epub 2014 Apr 3.The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities: A qualitative study. Original Article AbstractResearch suggests that the uptake of cervical screening by women with intellectual disabilities (commonly known as learning disabilities within UK policy frameworks, practice areas and health services) is poor compared to women without intellectual disabilities. The present study explored learning disability nurses' experiences of supporting women with intellectual disabilities to access cervical screening in order to examine their role in promoting attendance and elucidate potential barriers and facilitators to uptake. Ten participants recruited from a specialist learning disability service completed a semi-structured interview and data were analysed using experiential thematic analysis. Identified individual barriers included limited health literacy, negative attitudes and beliefs, and competing demands; barriers attributed to primary care professionals included time pressures, limited exposure to people with intellectual disabilities, and lack of appropriate knowledge, attitudes and skills. Attendance at cervical screening was facilitated by prolonged preparation work undertaken by learning disability nurses, helpful clinical behaviours in the primary care context, and effective joint-working.

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Section: Introductionmentioning

confidence: 95%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities

Lloyd¹,

Coulson

2014

J Intellect Disabil

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“…Furthermore, there is evidence that discriminatory judgements about the value of a learning disabled person's life are implicated in higher mortality and morbidity rates for a range of conditions (Mencap 2004). From practitioner perspectives, the issue of consent to screening or surgery is fraught with difficulties (Wilkins 2004) and, consequently, often avoided. Women with learning disabilities are, for example, much less likely to be invited to breast or cervical cancer screening than women in the general population (Pearson et al 1998;Stein & Allen 1999).…”

Section: Introductionmentioning

confidence: 99%

Meeting ‘Valuing People’ health targets: recommendations from a research workshop

Mir¹

2007

Brit J Learn Disabil

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Accessible summary• This paper is about a workshop held by researchers from the University of Leeds.• The researchers looked at one area to see if people were doing things about health that the Government said they should in Valuing People. • The research found out that there is still a lot of work to do in the area to meet these targets. People came to a workshop to talk about this. They thought that: • Learning disability services should lead the way and draw up a plan about what needs to happen. • People who run health services should make sure they set targets for GPs and hospitals that fit in with the plan. • Government should make sure that the targets they set for GPs also fit in with Valuing People targets. • This research is important because it can show what helps health services improve for people with learning disabilities and what gets in the way. SummaryResearch at the University of Leeds has evaluated how well changes to healthcare proposed in the Government White Paper Valuing People (Department of Health 2001) were being implemented in one locality and their impact on people with learning disabilities. The project had a developmental aspect and incorporated two workshops over the course of the study to disseminate preliminary findings. These were used to help key stakeholders evaluate progress and to inform discussions about what should happen next in the fieldwork area. This paper discusses recommendations from the first research workshop at which preliminary findings from the study were presented. The workshop involved health and social care providers and managers, people with learning disabilities, voluntary and community organizations. It gives an overview of local issues relevant to the White Paper health targets and highlights those that need to be resolved before these targets can This paper is based on work carried out by a research team that was based at the University be achieved. These issues are likely to be replicated in other areas of England and Wales and have implications for leadership, strategy, the allocation of resources and structures of accountability in health and social care agencies.

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Increasing the participation of women with intellectual disabilities in women's health screening: a role for disability support services

Conder

Mirfin‐Veitch

Payne

et al. 2018

Research and Practice in Intellectual and Developmental Disabil

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making a difference

Cited by 4 publications

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The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities

The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities

Meeting ‘Valuing People’ health targets: recommendations from a research workshop

Increasing the participation of women with intellectual disabilities in women's health screening: a role for disability support services

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