Making activism a participatory, inclusive and developmental process: a research programme involving mental health service users

Bryant, Wendy; Cordingley, Kevin; Adomako, Ellen; Birken, Mary

doi:10.1080/09687599.2019.1613963

Cited by 7 publications

(11 citation statements)

References 41 publications

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“…Two of the included studies published separately about PPI ( Bryant et al, 2019 ; Crabtree, Wall, et al, 2016 ), while the remaining studies included a short description of their PPI in their main findings paper. Structural challenges to reporting PPI in research papers include word limitations and no dedicated PPI sections.…”

Section: Discussionmentioning

confidence: 99%

Patient and Public Involvement in Occupational Therapy Health Research: A Scoping Review

Røssvoll

Hanssen

Rosenvinge

et al. 2022

OTJR: Occupational Therapy Journal of Research

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Patient and public involvement (PPI) in research has the potential to improve research validity and relevance. Objectives: To explore how PPI has been carried out and how its impacts have been reported in occupational therapy (OT) health research. Methodology: Scoping review based on a search in four databases for OT research with descriptions of PPI, published between 2010 and 2020. Results: Across the 17 included studies PPI was reported in all stages of research. Descriptions of how PPI was carried out varied across the studies, and details with respect to the kind of approach used were lacking. Positive impacts on research design, research ethics, public collaborators and researchers were reported, but only anecdotally. Reflections and challenges related to PPI were also addressed. Implications: In future studies, comprehensiveness and consistency is needed to document the diversity of how PPI is carried out in OT health research.

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Section: Discussionmentioning

confidence: 99%

Patient and Public Involvement in Occupational Therapy Health Research: A Scoping Review

Røssvoll

Hanssen

Rosenvinge

et al. 2022

OTJR: Occupational Therapy Journal of Research

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“…The participants in Arblaster's study (2018) believed that human connection is a core value that underpinned the recovery-oriented occupational therapy practice. Several studies (n = 11) clearly expressed the need for service providers such as occupational therapists to better understand the needs of persons with mental illness and validate their stories in practice and research (Arblaster et al, 2018;Baker & Procter, 2014;Bryant et al, 2012;Bryant et al, 2019;Bryce, 2012;Doll & Brady, 2013;Makdisi et al, 2013;O'Brien et al, 2021;Schwartz et al, 2013;Schwartz et al, 2020;Suto et al, 2021). Collaborative relationship (Arblaster et al, 2019;Bryant et al, 2012;Suto et al, 2021), learning from lived experiences (Arblaster et al, 2018;Baker & Procter, 2014;Makdisi et al, 2013), professional self-reflection, critically examining power inequity (Arblaster et al, 2019), being open to different knowledge (Bryant et al, 2019), and using co-design protocols (O'Brien et al, 2021) were mentioned as strategies to build up a shared understanding of Andonian, 2010;Arblaster et al, 2019;Bryant et al, 2010;Bryant et al, 2012;Bryant et al, 2019;Bryce, 2012;Anderson Clarke & Warner, 2016;Clark et al,1993;Cockburn & Trentham, 2002;Dixon et al, 2022;Doll & Brady, 2013;Greco et al, 2017;Ingolia & Barrett, 2019;Letts, 2003;…”

Section: Narrative Synthesismentioning

confidence: 99%

“…;Bryant et al, 2010;Bryant et al, 2012;Bryant et al, 2019;Bryce, 2012;Anderson Clarke & Warner, 2016;Doll & Brady, 2013;Ingolia & Barrett, 2019;Makdisi et al, 2013;Maniam et al, 2016;Mirza et al, 2008;O'Brien et al, 2021;Rempfer & Knott, 2002;Schwartz et al, 2013;Schwartz et al, 2020;Shaffer et al, 2020;Suto et al, 2021;Tsatsi & Plastow, …”

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Participatory Research with Persons who Experience Mental Illness in Occupational Therapy: A Scoping Review

Javadizadeh,

Oudshoorn,

Letts

et al. 2024

Can J Occup Ther

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Background. Persons who experience mental illness also face stigma and discrimination that frequently lead to a loss of ability to exercise autonomy and agency in their lives. Purpose. The range and breadth of literature exploring participatory research with persons living with mental illness are unknown in occupational therapy and occupation science. We initiated this study to fill this gap in the existing occupational therapy and occupational science literature. Method. Using the method of Arksey and O’Malley, we have conducted a scoping review to identify the range and breadth of literature. A qualitative content analysis was performed. Findings. A total of 34 articles were included in the narrative synthesis. The content analysis led to three related themes from the included studies: (1) coming together; (2) unique potential of participatory research; and (3) challenges in conducting participatory research. Conclusions. This review highlights that participatory research is well suited to research conducted with persons living with mental illness to support meaningful engagement and minimize stigma throughout the research process. This review can guide future participatory research and practice in occupational therapy and occupational science with persons living with mental illness.

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“…The roots of PAR lie in activism (Bryant et al 2019;Freire 2014). Examples within both sport and physical activity and occupational therapy research demonstrate the use of PAR and co-production to address matters of social injustice and exclusion.…”

Section: Co-production and Parmentioning

confidence: 99%

Doing together: reflections on facilitating the co-production of participatory action research with marginalised populations

Pettican

Goodman

Bryant

et al. 2022

Qualitative Research in Sport, Exercise and Health

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Recognising the limited literature detailing the practical application of coproduction principles and practices within sport, exercise and health research, critical reflections on co-production principles and practice are shared here, drawing on two participatory action research (PAR) projects in the United Kingdom (UK). Co-production and PAR are distinguished, and their commonalities discussed. Both projects were facilitated by occupational therapists and concerned with health inequities and social justice. The Voices for Inclusive Activity project brought disabled people together online to explore more accessible and inclusive approaches to evaluate disability sport and physical activity. The Positive Mental Attitude project took place with a community-based football league for people with experience of mental distress and explored the nature and value of participation. Both projects involved researching with people who are often excluded from research. Addressing power imbalances can function to engage marginalised people in processes of knowledge production and enable social justice. Co-production offers useful principles that are democratic, inclusive, collaborative, and participatory, but the process is not straightforward. The reflections within this paper focus on the challenges and opportunities the first and second authors faced as facilitators of co-produced research. Participant and co-researcher quotes reveal how participatory methods and approaches address gaps in experiential knowledge of exclusion and marginalisation. The potential for coproduced research to influence policy and practice is outlined.

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Making activism a participatory, inclusive and developmental process: a research programme involving mental health service users

Cited by 7 publications

References 41 publications

Patient and Public Involvement in Occupational Therapy Health Research: A Scoping Review

Patient and Public Involvement in Occupational Therapy Health Research: A Scoping Review

Participatory Research with Persons who Experience Mental Illness in Occupational Therapy: A Scoping Review

Doing together: reflections on facilitating the co-production of participatory action research with marginalised populations

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