“Making it All Normal”: The Role of the Internet in Problematic Pregnancy

Lowe, Pam; Powell, John; Griffiths, Frances; Thorogood, Margaret; Locock, Louise

doi:10.1177/1049732309348368

Cited by 72 publications

(83 citation statements)

References 18 publications

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“…Group identification is an essential factor in helping individuals proactively respond to and cope with stigmatizing experiences through examination of the dominant societal discourse and reframing the status in a positive light through self-negotiation (Friedman et al, 2005;Rissel, 1994;van Zomeren, Postmes, & Spears, 2008). Through sharing their experiences, offering and receiving social support, and in finding a common goal, participants gained a more positive self-perception, felt an increased sense of solidarity and empowerment, and benefited from more positive mental health outcomes-findings that are in line with previous research on other stigmatized populations (Latrofa, Vaes, Pastore, & Cadinu, 2009;LeBel, 2008;Lowe, Powell, Griffiths, Thorogood, & Locock, 2009;Wong, Sands, & Solomon, 2010). Reclaiming the word fat was a method by which participants reframed their responses to stigma by changing the power situation in which stigma was allowed to exist (Link & Phelan, 2001), which was done by taking control of the word through a transformation of its negative value into a positive one.…”

Section: Discussionsupporting

confidence: 84%

The Role of the Fatosphere in Fat Adults’ Responses to Obesity Stigma

et al. 2011

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Obese adults face pervasive and repeated weight-based stigma. Few researchers have explored how obese individuals proactively respond to stigma outside of a dominant weight-loss framework. Using a grounded theory approach, we explored the experiences of 44 bloggers within the Fatosphere--an online fat-acceptance community. We investigated participants' pathways into the Fatosphere, how they responded to and interacted with stigma, and how they described the impact of fat acceptance on their health and well-being. The concepts and support associated with the fat-acceptance movement helped participants shift from reactive strategies in responding to stigma (conforming to dominant discourses through weight loss) to proactive responses to resist stigma (reframing "fat" and self-acceptance). Participants perceived that blogging within the Fatosphere led them to feel more empowered. Participants also described the benefits of belonging to a supportive community, and improvements in their health and well-being. The Fatosphere provides an alternative pathway for obese individuals to counter and cope with weight-based stigma.

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Section: Discussionsupporting

confidence: 84%

The Role of the Fatosphere in Fat Adults’ Responses to Obesity Stigma

et al. 2011

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“…30,[78][79][80][81] These secondary analyses have led to a number of peer-reviewed publications in leading journals. 35,[82][83][84][85][86][87][88] By bringing together an expert panel of those scholars who have successfully conducted qualitative secondary analysis on the HERG interview collections and other UK data archives, such as the online Economic and Social Data Service (ESDS) Qualidata Archive and the Timescapes Project at the University of Leeds, we aimed to identify practices and principles that would help to promote the sharing and reuse of qualitative data in our field by identifying training needs and providing guidance for academic colleagues who may consider this method for future projects.…”

Section: Introductionmentioning

confidence: 99%

Informing the development of NICE (National Institute for Health and Care Excellence) quality standards through secondary analysis of qualitative narrative interviews on patients’ experiences

Ziébland

Locock

Fitzpatrick

et al. 2014

Health Services and Delivery Research

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BackgroundWe set out to explore if, and how, an archive of qualitative, narrative interviews covering over 60 health issues could be used to inform the development of National Institute for Health and Care Excellence (NICE) quality standards. We also sought to identify which aspects of health care are important to people facing different health conditions and to test a set of ‘core components’ in focus groups with people who tend to be less well represented in interview research studies.Objectives(1) To conduct qualitative secondary analysis (of collections of narrative interviews) to identify common, core components of patients’ experiences of the NHS. (2) To test these candidate components with (i) further purposive sampling of the interview collections and (ii) a series of focus groups with users. (3) To embed the project alongside the development of NICE clinical guidelines and quality standards. (4) To inform the development of measurement tools on patients’ experiences. (5) To develop and share resources and skills for secondary analysis of qualitative health research.Methods and data sourcesWe used qualitative methods including qualitative secondary analysis, interviews with team members and focus groups. We also ran a workshop on secondary analysis practice and a dissemination seminar. The secondary analysis used narrative interviews from the archive held by the Health Experiences Research Group in Oxford. These interviews have been collected over a 12-year period, number over 3500 and are copyrighted to the University of Oxford for research publications and broadcasting. Other data were digital recordings of interviews and observations at meetings. We prepared reports intended to contribute to NICE clinical guidelines and quality standards development.ResultsWe identified eight consistently important aspects of care: involving the patient in decisions; a friendly and caring attitude; an understanding of how life is affected; seeing the same health professional; guiding through difficult conversations; taking time to explain; pointing towards further support; and efficiently sharing health information across services. Expectations varied but we found few differences in what is valued, even when we tested the reach of these ideas with groups who rarely take part in mainstream health research. The asthma report for NICE highlighted several issues, but only the importance of proper inhaler training contributed to a quality statement. Several barriers were identified to using (unpublished) tailor-made analyses in NICE product development.ConclusionsWe compared the perspectives about what is most valued in health care between people with different health conditions. They were in agreement, even though their experiences of health-care relationships varied enormously. With regard to the NICE clinical guideline and quality standard development process, the usual source of evidence is published qualitative or quantitative research. Unpublished secondary analysis of qualitative data did not fit the usual criteria for evidence. We suggest that targeted secondary analysis of qualitative data has more potential when the qualitative literature is sparse, unclear or contradictory. Further work might include further testing of the identified core components in other patient groups and health conditions, and collaboration with NICE technical teams to establish whether or not it is possible to identify areas of patient experience research where targeted secondary analyses have potential to add to a qualitative literature synthesis.FundingThe National Institute for Health Research Health Services and Delivery Research programme.

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“…The best evidence for the importance of such networks in pregnancy comes from a qualitative study analyzing interviews with 66 women carrying fetuses with diagnosed anomalies (Lowe, Powell, Griffiths, Thorogood, & Locock, 2009). The analysis suggested that women use the Internet to gain understanding of the experiences of others with similar diagnoses, which can provide a framework for coping and decision making that available biomedical information does not offer.…”

Section: The Role Of Social Media In Providing Access To Support and mentioning

confidence: 99%

“…And I felt there were a number of individuals there who were giving good advice and who'd obviously had quite, you know, interesting stories that were relevant. (Lowe et al, 2009(Lowe et al, , p. 1482 Filtered through social media, medical information for pregnant women ''forms an organic, multilayered array'' (Kukla, 2007, p. 28), which includes patient and community voices, along with more traditionally authoritative sources. In the case of VBAC, the Internet offers pregnant women with prior cesarean surgery access to information about the risks and benefits of VBAC.…”

Section: The Role Of Social Media In Providing Access To Support and mentioning

confidence: 99%

Social Media, Power, and the Future of VBAC

Romano¹,

Gerber²,

Andrews³

2010

j perinat educ

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The Internet has been called a disruptive technology because it has shifted power and altered the economics of doing business, whether that business is selling books or providing health care. Social media have accelerated the pace of disruption by enabling interactive information sharing and blurring the lines between the ''producers'' and ''consumers'' of knowledge, goods, and services. In the wake of the National Institutes of Health Consensus Development Conference on Vaginal Birth After Cesarean (VBAC) and major national recommendations for maternity care reform, activated, engaged consumers face an unprecedented opportunity to drive meaningful changes in VBAC access and safety.This article examines the role of social networks in informing women about VBAC, producing lowcost, accessible decision aids, and enabling multi-stakeholder collaborations toward workable solutions that remove barriers women face in accessing VBAC.

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“Making it All Normal”: The Role of the Internet in Problematic Pregnancy

Cited by 72 publications

References 18 publications

The Role of the Fatosphere in Fat Adults’ Responses to Obesity Stigma

The Role of the Fatosphere in Fat Adults’ Responses to Obesity Stigma

Informing the development of NICE (National Institute for Health and Care Excellence) quality standards through secondary analysis of qualitative narrative interviews on patients’ experiences

Social Media, Power, and the Future of VBAC

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