Making Meaning of Pumping for Mothers of Infants With Congenital Diaphragmatic Hernia

Froh, Elizabeth B.; Deatrick, Janet A.; Curley, Martha A. Q.; Spatz, Diane L.

doi:10.1111/1552-6909.12564

Cited by 25 publications

(34 citation statements)

References 27 publications

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“…Mothers should thus be made aware about the benefits of using human milk to feed their infants that are admitted to NICU. Being able to provide their infant in NICU with human milk can be perceived as a rewarding activity during which mothers feel they can be part of their infant’s healing [33]. Furthermore, the mothers should be encouraged to use human milk and receive the support to decide on the most suitable feeding practice for them, set their personal feeding goals and they can be taught how to express breastmilk, how to do mouth care with human milk, skin-to-skin care, NNS sucking at the breast, as well as transitioning to breast feeds [34–36].…”

Section: Discussionmentioning

confidence: 99%

When is the use of pacifiers justifiable in the baby-friendly hospital initiative context? A clinician’s guide

Lubbe

Ham-Baloyi

2017

BMC Pregnancy Childbirth

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BackgroundThe use of pacifiers is an ancient practice, but often becomes a point of debate when parents and professionals aim to protect and promote breastfeeding as most appropriately for nurturing infants. We discuss the current literature available on pacifier use to enable critical decision-making regarding justifiable use of pacifiers, especially in the Baby-Friendly Hospital Initiative context, and we provide practical guidelines for clinicians.DiscussionSuck-swallow-breathe coordination is an important skill that every newborn must acquire for feeding success. In most cases the development and maintenance of the sucking reflex is not a problem, but sometimes the skill may be compromised due to factors such as mother–infant separation or medical conditions. In such situations the use of pacifiers can be considered therapeutic and even provide medical benefits to infants, including reducing the risk of sudden infant death syndrome. The argument opposing pacifier use, however, is based on potential risks such as nipple confusion and early cessation of breastfeeding. The Ten Steps to Successful Breastfeeding as embedded in the Baby-Friendly Hospital Initiative initially prohibited the use of pacifiers in a breastfeeding friendly environment to prevent potential associated risks. This article provides a summary of the evidence on the benefits of non-nutritive sucking, risks associated with pacifier use, an identification of the implications regarded as ‘justifiable’ in the clinical use of pacifiers and a comprehensive discussion to support the recommendations for safe pacifier use in healthy, full-term, and ill and preterm infants.SummaryThe use of pacifiers is justifiable in certain situations and will support breastfeeding rather than interfere with it. Justifiable conditions have been identified as: low-birth weight and premature infants; infants at risk for hypoglyceamia; infants in need of oral stimulation to develop, maintain and mature the sucking reflex in preterm infants; and the achievement of neurobehavioural organisation. Medical benefits associated with the use of pacifiers include providing comfort, contributing towards neurobehavioural organisation, and reducing the risk of sudden infant death syndrome. Guidelines are presented for assessing and guiding safe pacifier use, for specific design to ensure safety, and for cessation of use to ensure normal childhood development.

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Section: Discussionmentioning

confidence: 99%

When is the use of pacifiers justifiable in the baby-friendly hospital initiative context? A clinician’s guide

Lubbe

Ham-Baloyi

2017

BMC Pregnancy Childbirth

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“…In Philadelphia, nurses encourage mothers to milk the breast perform the NB oral stimulation with milk through a swab. 39…”

Section: Nursing Care For Enteral Nutrition Through a Gastric Tube Inmentioning

confidence: 99%

“…The centralization of care in the NB and its family, attention to maternal health, encouragement for the contact and bonding of the family with the newborn, the physical examination and evaluation of the general condition of the newborn, the positioning of the newborn during after the administration of the diet by tube, the NNS during the diet, the oral stimulation of the newborn, the observation and conduct regarding the GR, are among the nursing care indicated by the studies. 15,19,28,32,[35][36][37]39 The relationship between time, position and GR as a nursing intervention promotes the improvement and progression of the feeding of the newborn. 36,46 The prone position in the first half hour after gavage contributes to gastric emptying.…”

Section: /17mentioning

confidence: 99%

“…Oral stimulation, olfactory, NNS of the newborn and the skin-to-skin contact between mother and baby should be encouraged, helping to increase the possibility of breastfeeding. 37,39,43,45 The diversity between protocols may also be related to the adoption of different methods in the elaboration and validation of the clinical guidelines without uniformity, varying the conducts by lack of a standard methodological path. 50 It can be seen that the actions that facilitate the transition from gastric tube feeding to the maternal breast are equivalent to those highlighted by the Kangaroo method described by the Brazilian Ministry of Health.…”

Section: /17mentioning

confidence: 99%

“…51 The beginning of oral feeding should be between 32 and 34 weeks of gestational age. 39,42 They suggest half-mothering in the maternal breast, administering the tube complement if necessary. [40][41] When comparing with Brazil, it is observed that the minimum age for oral feeding is usually 34 weeks of gestational age because it is understood that around this age, coordination between sucking, swallowing and breathing.…”

Section: /17mentioning

confidence: 99%

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Care Given to Newborns Fed by Gastric Tube: Concepts and Practices

Nascimento

Santos

Silva

2019

Texto contexto - enferm.

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Objective: to describe the conduct related to feeding care through gastric tube in neonates hospitalized in the Neonatal Intensive Care Unit, from scientific articles published in the last five years. Method: an integrative literature review was developed in the databases: MEDLINE, LILACS, SciELO, CINAHL and BDENF. The search for the studies was carried out in August 2016, in English, Spanish and Portuguese. Results: 33 articles were analyzed. The level of evidence was classified as level IV (30%), level VI (27%), level II (15%), level III (18%), level I, V and VII with 3% each. The analytical categories were: Gastric tubes, their materials and their use in the Neonatal Intensive Care Unit, Nursing care for enteral nutrition through gastric tube in the Neonatal Intensive Care Unit, From the tube the oral route. The time to reach total enteral nutrition is lower, as is the decrease in length of hospital stay. The largest losses of milk fat are during gastroclysis at the expense of gavage. The relationship of food tolerance to dietary dosage form and volumes is not yet conclusive. Nursing stands out: in favor of the bond with the family, in the physical examination and evaluation, in the positioning, in the non-nutritive suction during the diet, in the oral stimulus, in the observation and conduct regarding the gastric residue. Conclusion: due to the heterogeneity of the data, more randomized and qualitative clinical trials are required to better support the conduct and improvement of nursing care.

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Patient‐reported outcomes for congenital diaphragmatic hernia: A qualitative study

et al. 2023

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Objective: To identify Patient-reported outcomes (PROs) for parents with a lived experience of a prenatal diagnosis of isolated congenital diaphragmatic hernia (CDH).Method: Thematic analysis of in-depth interview transcripts.Results: Interviews (n = 26) identified 11 PROs for given time points throughout the CDH trajectory. At the time of diagnosis, acceptable quality of life was selected as relevant PRO to decide whether to continue or terminate the pregnancy. During pregnancy, (neonatal) survival chances and the eligibility for foetal therapy were prominent outcomes with foetal and maternal complications adding distress. After birth, postnatal management options became the next milestone. When survival was deemed likely, post-hospital discharge complications and future care for infant and child became important. In retrospect, impact on family, bonding, parental mental health, and parental satisfaction with care were reported as relevant outcomes. Conclusion:PROs are relevant in addition to hard medical outcomes, as they help parents to make decisions suiting their unique needs and personal situation. Given the knowledge inherently related to the parent's perspective, our findings provide relevant directions for clinicians to support parents and their family in facing challenging decisions in healthcare. The outcomes impacting parents are essential to prepare parents for the steep journey ahead. Key pointsWhat's already known about this topic? � Following a prenatal diagnosis of congenital diaphragmatic hernia (CDH), parents are faced with many uncertainties regarding the eventual outcomes of their future child and therefore need continuous multidisciplinary care (from diagnosis to at least post-discharge), involving support in making informed decisions; � Patient-reported outcomes (PROs) have been identified in other settings to provide and enhance patient-centred care.

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Making Meaning of Pumping for Mothers of Infants With Congenital Diaphragmatic Hernia

Cited by 25 publications

References 27 publications

When is the use of pacifiers justifiable in the baby-friendly hospital initiative context? A clinician’s guide

When is the use of pacifiers justifiable in the baby-friendly hospital initiative context? A clinician’s guide

Care Given to Newborns Fed by Gastric Tube: Concepts and Practices

Patient‐reported outcomes for congenital diaphragmatic hernia: A qualitative study

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