Making Memory Sites: Extending opportunities for people with profound and multiple learning disabilities to participate in life story work.

McCormack, Noelle

doi:10.15123/pub.6363

Cited by 2 publications

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“…'Use is one quality prerequisite for warmth' (Seamon, 1979, p. 85) and so it develops over time, as people care for the spaces they are part of. As Johnson et al (2012) people with profound learning disabilities as they are not 'ignorant of structural and discriminatory practices' (Murray, 2018, p. 304) found in wider society and provide the time it can take to develop positive relationships (McCormack, 2017). Community inclusion is emphasised within services yet it is important to acknowledge the spaces in which community is most likely to be experienced, that which members experience together (Murray, 2018).…”

Section: Warmthmentioning

confidence: 99%

Day service cultures from the perspectives of autistic people with profound learning disabilities

Redmore

2023

Brit J Learn Disabil

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BackgroundService culture refers to the practices, views and values within service organisations. Developing positive cultures has been thought imperative to improving social care, though day services and their cultures remain an under‐researched area. For many autistic people with profound learning disabilities, day services are the sites at which they orientate their Monday–Friday adult lives and so service cultures are fundamental to the way they experience adulthood. It was thus the purpose of this study to explore day service culture through the perspectives and experiences of this group.MethodsThis study took a phenomenological approach involving extended participatory observations with an autistic person with profound learning disabilities at their day service, as well as broader ethnographic work within this context. Data was analysed through theory‐led thematic analysis.FindingsThe study found that autistic people with profound learning disabilities contribute their customs and values to service culture in everyday life and that space, time and place were important in this endeavour. It highlighted how these customs and values could be adopted or challenged by the service, its staff and their established culture.ConclusionIt is argued that positive service cultures are ones in which day services acknowledge and respond to the views and values of autistic people with profound learning disabilities. A potential framework is discussed to support services with this aim.

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Section: Warmthmentioning

confidence: 99%

Day service cultures from the perspectives of autistic people with profound learning disabilities

Redmore

2023

Brit J Learn Disabil

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A Phenomenological Methodology for Inclusively Researching the Views and Experiences of Autistic People with Profound Learning Disabilities

Redmore

2024

The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies

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Making Memory Sites: Extending opportunities for people with profound and multiple learning disabilities to participate in life story work.

Cited by 2 publications

References 0 publications

Day service cultures from the perspectives of autistic people with profound learning disabilities

Day service cultures from the perspectives of autistic people with profound learning disabilities

A Phenomenological Methodology for Inclusively Researching the Views and Experiences of Autistic People with Profound Learning Disabilities

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