Making the normal deviant: The introduction of predictive medicine in life insurance

Hoyweghen, Ine Van; Horstman, Klasien; Schepers, Rita

doi:10.1016/j.socscimed.2006.03.029

Cited by 18 publications

(13 citation statements)

References 17 publications

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“…In group D, only two cases, institutions such as a state legislative (Bickerstaff et al, 2008) or insurance companies (van Hoyweghen et al, 2006), acted as agents of GR.…”

Section: Categories Of Gr Studiesmentioning

confidence: 99%

“…Only two papers (code D) discussed the GR of institutions (van Hoyweghen et al, 2006;Bickerstaff et al, 2008). van Hoyweghen et al (2006) analyzed processes of responsibilization in life insurance companies and their policies, showing how they constructed different notions of being at risk.…”

Section: The Gr Of Institutions (D)mentioning

confidence: 99%

“…van Hoyweghen et al (2006) analyzed processes of responsibilization in life insurance companies and their policies, showing how they constructed different notions of being at risk. While, from the institutional point of view, genetically at-risk people were identified as victims of circumstance who deserved solidarity or "collective responsibility" [van Hoyweghen et al (2006[van Hoyweghen et al ( ), p. 1232, people with risky lifestyles and behaviors were identified as being responsible for their own health risks and were thus held accountable for themselves. According to the authors, life insurance companies functioned as a normative "technology and practice" that shaped ideas and notions of responsibility.…”

Section: The Gr Of Institutions (D)mentioning

confidence: 99%

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The Concept of “Genetic Responsibility” and Its Meanings: A Systematic Review of Qualitative Medical Sociology Literature

Leefmann

Schaper²,

Schicktanz³

2017

Front. Sociol.

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The acquisition of genetic information (GI) confronts both the affected individuals and healthcare providers with difficult, ambivalent decisions. Genetic responsibility (GR) has become a key concept in both ethical and socioempirical literature addressing how and by whom decision-making with respect to the morality of GI is approached. However, despite its prominence, the precise meaning of the concept of GR remains vague. Therefore, we conducted a systematic literature review on the usage of the concept of GR in qualitative, socioempirical studies, to identify the main interpretations and to provide conceptual clarification. The review identified 75 studies with primarily an Anglo-American setting. The studies focused on several agents: the individual, the family, the parent, the healthcare professional, and the institution and refer to the concept of GR on the basis of either a rational/principle-oriented approach or an affective/relational approach. A subtype of the rational/principle-oriented approach is the reactive approach. The review shows how the concept of GR is useful for analyzing and theorizing about socioempirical findings within qualitative socioempirical studies and also reveals conceptual deficits in terms of insufficient theoretical accuracy and heterogeneity, and in the rarity of reflection on cultural variance. The vagueness and multiplicity of meanings for GR in socioempirical studies can be avoided by more normative-theoretical explication of the underlying premises. This would provide a higher degree of differentiation of empirical findings. Thereby, the complex findings associated with the individual and social implications of genetic testing in empirical studies can be better addressed from a theoretical point of view and can subsequently have a stronger impact on normative and policy debates.

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“…In group D, only two cases, institutions such as a state legislative (Bickerstaff et al, 2008) or insurance companies (van Hoyweghen et al, 2006), acted as agents of GR.…”

Section: Categories Of Gr Studiesmentioning

confidence: 99%

Section: The Gr Of Institutions (D)mentioning

confidence: 99%

Section: The Gr Of Institutions (D)mentioning

confidence: 99%

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The Concept of “Genetic Responsibility” and Its Meanings: A Systematic Review of Qualitative Medical Sociology Literature

Leefmann

Schaper²,

Schicktanz³

2017

Front. Sociol.

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“…While the legislative focus has been on the unacceptability of genetic discrimination, other possible discrimination in insurance practices have arisen. 9 Smokers, obese individuals, and individuals who do not comply with prescribed therapy are confronted with sharply increased prices and possibly with exclusion from insurance coverage. [10][11][12][13] The exclusive legal protection of genetic risks has occurred with an increasing discrimination against lifestyle risks.…”

Section: Unintended Effectsmentioning

confidence: 99%

European Practices of Genetic Information and Insurance

Hoyweghen

Horstman²

2008

JAMA

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“…Earlier versions and parts of this chapter were published elsewhere (Van Hoyweghen 2004;Van Hoyweghen et al 2006 . Furthermore, Belgium has neither signed nor ratified the European Convention on Human Rights and Biomedicine.…”

Section: Abimentioning

confidence: 99%

Risks in the Making : Travels in Life Insurance and Genetics

Hoyweghen¹

2006

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Making the normal deviant: The introduction of predictive medicine in life insurance

Cited by 18 publications

References 17 publications

The Concept of “Genetic Responsibility” and Its Meanings: A Systematic Review of Qualitative Medical Sociology Literature

The Concept of “Genetic Responsibility” and Its Meanings: A Systematic Review of Qualitative Medical Sociology Literature

European Practices of Genetic Information and Insurance

Risks in the Making : Travels in Life Insurance and Genetics

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