Management of neurological problems in children on home invasive mechanical ventilation

Abstract

IntroductionHome invasive mechanical ventilation (HIMV) has become a crucial long‐term respiratory support for children with neurological disorders, but requires advanced technological skills and 24‐h care. The increasing global population of children on HIMV is attributed to advancements in intensive care and improved survival rates.MethodThe manuscript will review the most common neurological problems encountered in children on HIMV.ConclusionThe manuscript emphasizes the multidisciplinary nature of managing these patients, involving pediatric pulmonologists, pediatric neurologists, pediatric intensivists, nurses, therapists, dietitians, psychologists, and caregivers. The manuscript outlines the challenges posed by neurological disorders, such as spinal muscular atrophy, muscular dystrophy, cerebral palsy, spinal cord injuries, and neurodegenerative disorders, which may result in respiratory muscle weakness and impaired ventilation. The importance of individualized assessments, appropriate ventilator mode and equipment selection, training of caregivers, airway clearance techniques, nutritional support, regular follow‐up visits, psychological and educational support, and addressing specific neurological issues such as involuntary movement disorders, prolonged seizures, sleep disorders, pain, sialorrhea, and immobilization‐related complications are discussed. The treatment options for these specific challenges are outlined. This review highlights the complex nature of managing children with neurological disorders on HIMV and the importance of a collaborative approach among healthcare professionals and caregivers to optimize care and improve the quality of life for these children.