Manual development for a multi-modal, dyadic intervention for persistent pain: A Qualitative Study

Fox, Aimee; Swink, Laura A.; Prabhu, Neha; Fruhauf, Christine A.; Portz, Jennifer Dickman; Puymbroeck, Marieke Van; Sharp, Julia L.; Leach, Heather J.; Schmid, Arlene A.

doi:10.1177/20494637221090461

Cited by 4 publications

(2 citation statements)

References 34 publications

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“…The yoga component was based on our prior studies [ 18 ] and was further developed specifically for dyads with persistent pain ( Multimedia Appendix 1 ). The education component was based on literature regarding the self-management of persistent pain [ 19 ] and on stakeholder engagement [ 20 ]. Sessions included guided discussions, reflective activities, and brainstorming to address the common areas that are necessary in self-management education—problem-solving, action plans, the development of coping skills, and effective communication [ 21 , 22 ].…”

Section: Methodsmentioning

confidence: 99%

Acceptability of Online Yoga Among Individuals With Chronic Conditions and Their Caregivers: Qualitative Study

Portz¹,

Schmid²,

Fruhauf³

et al. 2023

JMIR Form Res

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Background The online delivery of yoga interventions rapidly expanded during the COVID-19 pandemic, and preliminary studies indicate that online yoga is feasible across multiple chronic conditions. However, few yoga studies provide synchronous online yoga sessions and rarely target the caregiving dyad. Online chronic disease management interventions have been evaluated across conditions, life spans, and diverse samples. However, the perceived acceptability of online yoga, including self-reported satisfaction and online delivery preferences, is underexplored among individuals with chronic conditions and their caregivers. Understanding user preferences is essential for successful and safe online yoga implementation. Objective We aimed to qualitatively examine the perceived acceptability of online yoga among individuals with chronic conditions and their caregivers who participated in an online dyadic intervention that merged yoga and self-management education to develop skills (MY-Skills) to manage persistent pain. Methods We conducted a qualitative study among 9 dyads (>18 years of age; individuals experiencing persistent moderate pain) who participated in MY-Skills online during the COVID-19 pandemic. The intervention consisted of 16 online, synchronous yoga sessions over 8 weeks for both dyad members. After the completion of the intervention, participants (N=18) participated in semistructured telephone interviews for around 20 minutes, discussing their preferences, challenges, and recommendations for improved online delivery. Interviews were analyzed by using a rapid analytic approach. Results MY-Skills participants were, on average, aged 62.7 (SD 19) years; were primarily women; were primarily White; and had a mean of 5.5 (SD 3) chronic conditions. Both participants and caregivers reported moderate pain severity scores (mean 6.02, SD 1.3) on the Brief Pain Inventory. The following three themes were identified related to online delivery: (1) participants indicated a preference for the intervention to be in person rather than online because they were distracted in the home setting, because they felt that in-person yoga would be more engaging, because the yoga therapist could physically correct positions, and because of safety concerns (eg, fear of falling); (2) participants indicated good acceptability of online MY-Skills delivery due to convenience, access, and comfort with being in their home; and (3) recommendations for improving online delivery highlighted a need for additional and accessible technical support. Conclusions Both individuals with chronic conditions and their caregivers find online yoga to be an acceptable intervention. Participants who preferred in-person yoga did so due to distractions in the home and group dynamics. Some participants preferred in-person corrections to ensure correct positioning, while others felt safe with verbal modifications in their homes. Convenience and access were the primary reasons for preferring online delivery. To improve online delivery, future yoga studies should include specific activities for fostering group engagement, enhancing safety protocols, and increasing technical support. Trial Registration ClinicalTrials.gov NCT03440320; https://clinicaltrials.gov/ct2/show/NCT03440320

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Section: Methodsmentioning

confidence: 99%

Acceptability of Online Yoga Among Individuals With Chronic Conditions and Their Caregivers: Qualitative Study

Portz¹,

Schmid²,

Fruhauf³

et al. 2023

JMIR Form Res

Self Cite

View full text Add to dashboard Cite

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“…Recent research has explored the novel benefits of couple-based interventions to improve the relationship quality of persons with chronic pain and their intimate partners, with a focus on acceptance and empathy (Caño et al, 2018). However, analogous family-based interventions addressing the impacts of chronic pain and family relationship processes among midlife adults are few (e.g., Fox et al, 2022; Tankha et al, 2018) and, to the best of our knowledge, remain untested. To develop efficacious family-based interventions for pain, it is first critical to determine family-pain pathways.…”

Section: Present Studymentioning

confidence: 99%

Family strain, but not family support, is linked to worse pain interference among midlife adults reporting new chronic pain.

Woods,

Roberson,

Abdelkhaleq

2023

Families, Systems, & Health

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Introduction: Although family relationship quality has been linked to later chronic pain incidence for aging adults, it is unclear whether the quality of these relationships is linked to the impact of pain. We estimated longitudinal associations between family relationship quality (i.e., family support and family strain) and pain interference for adults who develop novel chronic pain across 10 years of midlife. Method: We conducted a secondary analysis of data from the Midlife in the United States (MIDUS) study. Using path analysis, we tested whether family support and strain reported by participants (54% female, age M = 54.8 years) who denied having chronic pain at the study's second wave (MIDUS 2, 2004(MIDUS 2, -2006 but reported chronic pain 10 years later (MIDUS 3, 2014(MIDUS 3, -2016; N = 406) was associated with the interference of that pain with daily activities after accounting for key covariates, including sociodemographics, depression symptoms, global physical health, and MIDUS 3 reports of family support and strain. Results: The hypothesized model demonstrated good fit to the data based on multiple model fit indices. Greater family strain at baseline, but not family support, was significantly associated with greater pain interference 10 years later. Discussion: Findings build on prior studies to suggest that not only are stressful family relationships likely associated with the odds of developing chronic pain, but they are also linked to the interference of that chronic pain when it develops. We recommend biopsychosocial screening in primary care that captures family relationship quality and can inform best practices for nonpharmacological, family-based pain management. Public Significance StatementThough family relationship quality has been linked to later pain incidence for aging adults, it remains unclear whether family relationships are also linked to the impact of that pain once it develops, compromising our ability to develop effective nonpharmacological pain management interventions. This study leveraged data from an existing project on aging health to find that family strain, but not family support, was significantly associated with greater pain interference 10 years later, among aging adults who developed novel chronic pain during that time. The results imply the importance of biopsychosocial screening in primary care to capture family relationship quality and inform family-based pain self-management interventions to ameliorate aging adult pain.

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Physical pain among family caregivers to older adults: A scoping review of the literature

Turner,

Pillemer,

Demetres

et al. 2024

J American Geriatrics Society

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Background and ObjectivesScholarship on the health of family caregivers to older adults continues to expand. Although existing research suggests that many family caregivers experience pain, which impacts their ability to perform caregiving tasks and is associated with care recipients' unmet needs, the scope of research on family caregivers' pain remains poorly characterized. We conducted a scoping review of research on pain among family caregivers to older adults to characterize existing evidence and identify knowledge gaps.MethodsWe searched multiple databases spanning from January 2012 to July 2023, identified eligible studies using predefined inclusion/exclusion criteria, and extracted key data (e.g., study design/methodology, pain measurement, caregiver pain type, and major findings).ResultsWe identified 46 eligible studies conducted in the United States (n = 19) and internationally (n = 27). Studies often focused on caregivers for older adults with specific health conditions, such as cancer (n = 11), dementia (n = 8), or stroke (n = 3). The most commonly employed pain measure was a single‐item dichotomous question about pain (n = 16), followed by a visual numeric or visual analog scale (n = 11). Nine studies (five randomized controlled trials) reported on five caregiver pain management interventions, including yoga/exercise programs and caregiver education programs.DiscussionExisting research on family caregivers' pain offers an important foundation. However, more robust research designs are necessary. We identify possibilities for future studies in addition to opportunities for systematic investigations to support the family caregivers being relied upon to care for the increasing number of older adults.

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Manual development for a multi-modal, dyadic intervention for persistent pain: A Qualitative Study

Cited by 4 publications

References 34 publications

Acceptability of Online Yoga Among Individuals With Chronic Conditions and Their Caregivers: Qualitative Study

Acceptability of Online Yoga Among Individuals With Chronic Conditions and Their Caregivers: Qualitative Study

Family strain, but not family support, is linked to worse pain interference among midlife adults reporting new chronic pain.

Physical pain among family caregivers to older adults: A scoping review of the literature

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