Mapping the progress and impacts of public health approaches to palliative care: a scoping review protocol

Archibald, Daryll; Patterson, Rebecca; Haraldsdottir, Erna; Hazelwood, Mark; Fife, Shirley; Murray, Scott A

doi:10.1136/bmjopen-2016-012058

Cited by 30 publications

(36 citation statements)

References 11 publications

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“…A scoping review is the most suitable type of review for synthesizing a potentially broad and diverse literature base on MBI use in children and adolescents. Our review will provide an overview of existing evidence for MBI research, including its extent, range and nature in the realm of pediatric interventions (18).…”

Section: Methodsmentioning

confidence: 99%

Mindfulness-based interventions for children and adolescents: A scoping review protocol

Perrier

Flowers

et al. 2019

Preprint

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Background and purpose: Although mindfulness-based interventions (MBIs) are becoming increasingly popular, the application of MBIs with children and adolescents is still in its infancy. Mapping the existing literature is necessary to help guide pediatric mindfulness interventions. Our purpose is to synthesize the evidence of reported MBIs for children and adolescents with and without physical, mental, and cognitive disorders. Accordingly, we aim to identify trends and gaps in the literature, so that we can provide direction to researchers who seek to advance the evidence base for using MBIs in pediatric populations. Methods: Our search strategy will be conducted following Arksey and O’Malley’s methodological framework. It will include a comprehensive search of published studies in 7 databases, the grey literature, conference proceedings, and citations of selected articles. Two independent reviewers will evaluate all abstracts and full articles that: i) have a pediatric sample (children 2-18 years), ii) use MBIs to promote development or to remediate underlying disorders, and iii) are written in English or French. We will identify the definitions and concepts from MBIs, categorize accepted studies according to etiology and rehabilitation type, describe intervention methodology, and report outcomes of selected studies. Discussion: Our review will provide a comprehensive overview of the pediatric mindfulness intervention literature to date, involving a range of mental, cognitive and physical outcomes for healthy children and adolescents and for those with a variety of disorders in clinical and institutional settings. We will disseminate results to mindfulness practitioners and provide guidance to future pediatric researchers in their development and application of mindfulness interventions, thereby contributing to the scientific understanding of mindfulness for the ultimate betterment of child and adolescent well-being and life-long functioning. Systematic review registration: PROSPERO does not accept scoping review protocols.

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Section: Methodsmentioning

confidence: 99%

Mindfulness-based interventions for children and adolescents: A scoping review protocol

Perrier

Flowers

et al. 2019

Preprint

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“…To design our scoping review protocol, we used scoping review framework by Arksey and O’Malley20; methodological advancements for scoping studies by Levac et al 21 and other published scoping reviews protocols 22–25. Our protocol consists of six stages: (1) identifying the research question; (2) identifying relevant studies; (3) selecting studies; (4) charting the data; (5) collating, summarising and reporting the results and (6) consulting with relevant stakeholders.…”

Section: Methods and Analysismentioning

confidence: 99%

Scoping review study to identify how communities in the USA, Australia, New Zealand and Canada use quality improvement (QI) approaches to address community health and well-being

Carr

Turner

Ramaswamy³

2019

BMJ Open

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IntroductionBoth US and global communities lag on key health indicators. There has been limited progress in building capacity to improve health beyond the healthcare field. Yet, communities also need to engage in health improvement initiatives. A substantial body of literature describes standards and core components for quality improvement (QI) approaches in clinical settings. This study aims to determine how communities in the USA, Australia, New Zealand and Canada use QI approaches for health and well-being improvement and how such approaches compare to those in clinical settings.Methods and analysisWe developed a study protocol based on scoping review framework by Arksey and O’Malley, methodological advancements for scoping studies (Levac et al) and other published protocols. We developed research questions in an iterative process and used the Population, Intervention, Comparison, Outcomes strategy to determine eligibility criteria. Electronic databases deemed appropriate (Web of Science, Scopus, and Proquest Health Management) will be searched for studies that meet inclusion criteria. References of included studies will be included when relevant. Two reviewers will independently screen all abstracts and full-text studies for inclusion. A third reviewer will adjudicate disagreements that arise. An instrument will be developed to extract data from included studies. Quantitative and qualitative results will be reported.Ethics and disseminationWe developed this protocol to systematically conduct a scoping review of how US communities use QI approaches to address community health and well-being. Results will benefit multiple stakeholders by informing how to better support, design and evaluate community well-being improvement interventions. Results will be distributed through peer-reviewed journals, conferences, presentations and a public health graduate course.

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“…As part of this movement, multiple channels including schools, workplaces, government policy and the media, all became involved in spreading key health messages, for example relating to alcohol, smoking, and sexual health [15]. 'Public health palliative care' can broadly be seen as the application of these 'new public health' principles to palliative and end-of-life care [15,16]. This is achieved by moving away from solely traditional, service-orientated provision of palliative care towards wider policies and community engagement to improve experience of death, dying and loss [16].…”

Section: Introductionmentioning

confidence: 99%

“…'Public health palliative care' can broadly be seen as the application of these 'new public health' principles to palliative and end-of-life care [15,16]. This is achieved by moving away from solely traditional, service-orientated provision of palliative care towards wider policies and community engagement to improve experience of death, dying and loss [16]. The movement led to the establishment of Public Health Palliative Care International, and Public Health Palliative Care UK, in 2015 [16].…”

Section: Introductionmentioning

confidence: 99%

General practitioners’ perceptions of compassionate communities: a qualitative study

2020

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Background: General Practitioners (GPs) face challenges when providing palliative care, including an ageing, multimorbid population, and falling GP numbers. A 'public health palliative care' approach, defined as "working with communities to improve people's experience of death, dying and bereavement", is gaining momentum. 'Compassionate communities' is one example, with a focus on linking professional health carers with supportive community networks. Primary care is central to the approach, which has been incorporated into United Kingdom GP palliative care guidance. No research to date, however, has investigated GP perspectives of these approaches. Our aim, therefore, was to explore GP perceptions of a public health approach to palliative care, and compassionate communities. Methods: GPs working in the United Kingdom were recruited through university teaching and research networks using snowball sampling. Purposive sampling ensured wide representation of gender, level of experience and practice populations. Semi-structured, digitally audio-recorded interviews were conducted with nine GPs. Interviews were transcribed verbatim, and thematic analysis was undertaken, informed by a qualitative descriptive methodology. Interviews continued until data saturation was reached. Results: Most participants were unfamiliar with the term 'compassionate communities', but recognised examples within their practice. Three major themes with seven subthemes were identified: 1) Perceived potential of compassionate communities, including: 'maximising use of existing community services'; 'influencing health outside of healthcare'; and 'combatting taboo', 2) Perceived challenges of compassionate communities, including: 'patient safety'; 'limited capacity of the community'; 'limited capacity of general practice', and 'applicability of public health to palliative care', and 3) The role of the GP in compassionate communities. Conclusions: GPs recognised the importance of the wider community in caring for palliative care patients, however most were unfamiliar with the compassionate community approach. Participants held differing views regarding the application of the model, and the position of general practice within this. Further research into the approach's practical implementation, and exploring the views of other key stakeholders, would help establish the feasibility of compassionate communities in practice, and guide its future application.

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Mapping the progress and impacts of public health approaches to palliative care: a scoping review protocol

Cited by 30 publications

References 11 publications

Mindfulness-based interventions for children and adolescents: A scoping review protocol

Mindfulness-based interventions for children and adolescents: A scoping review protocol

Scoping review study to identify how communities in the USA, Australia, New Zealand and Canada use quality improvement (QI) approaches to address community health and well-being

General practitioners’ perceptions of compassionate communities: a qualitative study

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