Marital Stability Following the Birth of a Child with Spina Bifida

Tew, Brian; Laurence, K. M.; Payne, H.; Rawnsley, K.

doi:10.1192/bjp.131.1.79

Cited by 49 publications

(17 citation statements)

References 4 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…A few previous studies which involved small numbers of families also reported a higher frequency of divorce among parents of children with spina bifida (Kolin et al 1971;Martin 1975;Tew et al 1977). The frequency of divorce was three times higher among caregivers of children with the highest lesion levels than among those with the lowest level lesions and three times higher among those whose children could not walk as among those whose children had no major mobility limitations, but we cannot exclude the probability that these associations might be due to chance.…”

Section: Discussioncontrasting

confidence: 41%

Impact of Spina Bifida on Parental Caregivers: Findings from a Survey of Arkansas Families

Grosse¹,

Flores²,

Ouyang³

et al. 2009

J Child Fam Stud

View full text Add to dashboard Cite

The well-being of caregivers of children with spina bifida and other conditions is an important topic. We interviewed the primary caregivers of 98 children aged 0-17 years with spina bifida sampled from a populationbased birth defects registry in Arkansas and the caregivers of 49 unaffected children. Measures of caregiver wellbeing were compared between the groups and by level of lesion (sacral, lower lumbar, and upper lumbar/thoracic). We performed linear and logistic regression analysis to test the associations controlling for other characteristics. Among caregivers of children with spina bifida, the average number of hours of sleep was significantly less than reported by other caregivers and was associated with lesion level among children less than 7 years of age. Significant associations, often varying by child age, were also found for the caregiver's reports of lower Quality of Well-Being (QWB) score, often feeling blue, rarely feeling happy, fair or poor health, lack of leisure days, and not hosting friends, but no significant association was found with not visiting friends. The intensive long-term care required by children with spina bifida, particularly by those with higher lesions, can negatively impact caregiver health and well-being. Support for these caregivers is needed.

show abstract

Section: Discussioncontrasting

confidence: 41%

Impact of Spina Bifida on Parental Caregivers: Findings from a Survey of Arkansas Families

Grosse¹,

Flores²,

Ouyang³

et al. 2009

J Child Fam Stud

View full text Add to dashboard Cite

show abstract

“…Lower marital integration has been found in families with a mentally retarded child living at home (Farber, 1959) and in families with various kinds of handicapped children (Friedrich & Friedrich, 1981). A higher than average rate of marital breakdown was reported for parents of infants with Down syndrome (Gath, 1977) and parents of children with spina bifida (Tew, 1974;Tew & Laurence, 1973;Tew, Laurence, Payne, & Rawnsley, 1977). Psychological dysfunctioning and psychiatric problems were found frequently in parents with mentally retarded children (Schonell & Watts, 1957) and with physically handicapped and chronically ill children (Dorner, 1973;McAndrew, 1976).…”

Section: Stress and Adaptation In Parents Of Youngmentioning

confidence: 92%

Stress and Adaptation in Parents of Young Handicapped and Nonhandicapped Children: A Comparative Study

Dyson

Fewell²

1986

Journal of the Division for Early Childhood

View full text Add to dashboard Cite

Three questions were asked in this study; (1) Do parents of handicapped children experience more stress than parents of nonhandicapped children? (2) What are the sources of stress for parents of handicapped children? and (3) is stress in the parents of handicapped children mediated by an external factor of social support? Findings Indicate significantly greater stress in the families with handicapped children, and four factors are identified as significantly related to stress in these families. Perceived family support was significantly greater for families with handicapped children, and although nonsignificant (p < .057), findings suggest that families with handicapped children who have more support have less stress. Results are discussed in rotation to previous findings, particularly with regard to how the age of the child may be a critical factor determining family adjustment. m A current trend in intervention programs for young handicapped children is the movement of services from a narrowly focused child-centered base to a much broader family-centered orientation. This shift calls for an understanding of the family unit, the family's sources of support, the interactions among family members, their values and coping skills, and the stresses in their lives. Particular concerns are the parental stress that results from having a handicapped child and how that stress affects the parents, the child, and the family as a whole.Parents always want healthy, happy, &dquo;normal&dquo; children. It is natural that parents are disappointed and sad when their child has identified problems that will require many special services throughout his or her life. During the last two decades, the adaptations of families of handicapped children have become the concern of researchers. Adaptation has been studied as a general response to stress. Philp and Duckworth (1982) theorized that the presence of a child with disablement (a stress factor) would produce special problems (stress events) leading to felt needs which in turn result in a stress effect. Researchers have thus far concerned themselves with two major issues: (1) whether families of handicapped children experience more stress than other families and (2) the types of problems encountered by families of handicapped children. In most studies, stress was evident in marital difficulties, psychological dysfunctioning, and health problems in the parents. Lower marital integration has been found in families with a mentally retarded child living at home (Farber, 1959) and in families with various kinds of handicapped children (Friedrich & Friedrich, 1981). A higher than average rate of marital breakdown was reported for parents of infants with Down syndrome (Gath, 1977) and parents of children

show abstract

“…Sie ist eine wichtige Ressource für das Gedeihen und Wachsen eines von chronischer Erkrankung betroffenen Kindes. Leider scheitern Eltern jedoch nicht selten bei der Bewälti-gung dieser Belastung [18,19,20]. Gesunde Geschwisterkinder erleben hilflose Eltern, werden mit medizinischen, oft auch für Erwachsene unverständlichen Sachverhalten konfrontiert und ebenso häufig dazu angehalten, darüber nicht zu sprechen.…”

Section: Rolle Der Familieunclassified

Nicht allein mit einer seltenen Erkrankung

Jenetzky

Schwarzer²

2008

Bundesgesundheitsbl.

View full text Add to dashboard Cite

Using the German self-help organization for people with anorectal malformations (SoMA e.V.) as an example, the aim is to illustrate the particular importance of selfhelp groups for rare diseases. First, the structure and work of the German support and advocacy organization are explained by means of a case study. The special benefit for people affected with a rare disease and their relatives, but also for medical practitioners and health insurance funds are highlighted. Synergetic effects by integrating networks are presented. Meanwhile and thanks to globalization and internet, 13 national self-help groups for anorectal malformations and related continence problems are currently in touch. Even today, the fields of activity and the mutual support in coping with the handicap are frequently underestimated. Professional self-help aims to be respected as an equal partner in interdisciplinary health care systems.

show abstract

Marital Stability Following the Birth of a Child with Spina Bifida

Cited by 49 publications

References 4 publications

Impact of Spina Bifida on Parental Caregivers: Findings from a Survey of Arkansas Families

Impact of Spina Bifida on Parental Caregivers: Findings from a Survey of Arkansas Families

Stress and Adaptation in Parents of Young Handicapped and Nonhandicapped Children: A Comparative Study

Nicht allein mit einer seltenen Erkrankung

Contact Info

Product

Resources

About