Marshalling Social Support: A Care-Getting Model for Persons Living With Cancer

Kahana, Eva; Kahana, Boaz; Wykle, May L.; Kulle, Diana

doi:10.1080/10522150902874834

Cited by 15 publications

(7 citation statements)

References 80 publications

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“…In our data, highly educated people were more likely to choose "necessary" (they wanted more information before making a decision); however, less-educated people were more likely to choose "follow the provider's advice" (indicating passive acceptance). This is consistent with previous research (Kahana et al 2009). The provider's personal opinion is critical to the people who tended to follow the provider's advice.…”

Section: Discussionsupporting

confidence: 94%

Public Knowledge about Monogenic Diseases and Attitudes Toward Expanded Carrier Screening in China

Yang

Chen

et al. 2021

Preprint

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Monogenic diseases affect about 10 in 1000 live births globally and account for 20% of infant mortality and 18% of pediatric hospitalizations. Many monogenic disorders could be prevented by offering expanded carrier screening (ECS) to the general population. China is a densely populated country with 56 ethnic groups and a high incidence of congenital disabilities. Genetic variation in different ethnic groups in China has been reported. At present, the implementation of ECS in China is sporadic. There is limited data on the knowledge and acceptance of ECS in China. The purpose of our study was to assess public knowledge about monogenic diseases and attitudes toward ECS in China. Our study classified the population into the medical staff and general population to evaluate the knowledge gap and provide a reference for ECS's education programs. Using the Questionnaire Star platform, we provided the QR code of the questionnaire survey online for the general public nationwide. The respondents filled in the questionnaires through the mobile phone after scanning the WeChat QR code. We found that although the public had little knowledge about monogenic disease and ECS, most of them showed a positive attitude. Our cross-analysis showed that medical staff had more knowledge compared to the general population. Pre-test education for ECS can be carried out by medical staff who are not qualified for genetic counseling. ECS training for medical staff, especially obstetrician-gynecologist and nurse in the department of Obstetrics and Gynecology, can reduce the workload of genetic counseling.

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Section: Discussionsupporting

confidence: 94%

Public Knowledge about Monogenic Diseases and Attitudes Toward Expanded Carrier Screening in China

Yang

Chen

et al. 2021

Preprint

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“…The “on time” interpretation by some of the older adults of having a cancer diagnosis in later life may diminish the stressfulness of the diagnosis and may enhance the patients’ ability to proactively cope with the reality of their illness. Older adults may not have to grapple with disruption of role obligations that pose critical challenges during younger years [ 32 ]. Thus, nearing the end of a natural lifespan may facilitate acceptance of a cancer diagnosis with greater equanimity.…”

Section: Discussionmentioning

confidence: 99%

Elderly Cancer Survivors Reflect on Coping Strategies During the Cancer Journey

Kahana¹,

Kahana²,

Langendoerfer³

et al. 2016

J Gerontol Geriatr Res

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Purpose This paper focuses on perspectives of elderly cancer survivors on their experiences of coping with cancer during various phases of their illness journey, ranging from diagnosis phase to treatment and finally considering post treatment survivorship. Anchored in the stress paradigm, the purpose of this study was to explore the meaning of living with cancer and older adults’ orientations to coping with stressors encountered during their cancer journey as reflected in narratives of elderly cancer survivors. Methods A nonclinical sample of 174 older adults who reported a cancer diagnosis were selected from a panel study of successful aging. In-depth interviews with respondents focused on perceived stressors and coping strategies at different phases of their cancer experience. Themes were derived from narratives based on consensus by two raters. Results Most of the elderly patients accepted their diagnosis without dismay. Resolve and determination during the diagnosis phase was followed by assuming a more passive role during the treatment phase, relying on expert medical care. During the longer term survivorship phase older adults looked back at the adaptations they found most useful. The majority reported valuing active coping styles. These include seeking social support and instrumental orientations to dealing with the illness followed by religious or spiritual approaches. Conclusions The “on time” interpretation of having a cancer diagnosis in old age may diminish the stressfulness of the diagnosis and may enhance the patients’ ability to proactively deal with the reality of their illness.

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“…It is possible that for this sample of adults, receiving social support and messages of interdependence may weigh more than the desire to seek independence. The care-getting model at different stages of the life course sheds a light on this finding (Kahana et al, 2009). Kahana et al (2009) proposed a conceptual framework to understand the proactive options for care-getting for patients living with a chronic or life-threatening illness.…”

Section: Discussionmentioning

confidence: 99%

When support seekers encounter unsettling responses: A dual-factor approach

Cheng,

Taylor,

Hamby

2023

Journal of Social Work

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Summary Accumulating evidence indicates the multifaceted nature of social support. Although support seekers may receive help, they may also encounter upsetting responses. It remains unclear how seeking and receiving social support, when differentiated, are associated with individuals’ strengths and well-being. This study collected survey data from 357 adults recruited from the southeastern United States. We classified participants using the factors of support seeking and support received into four groups: Interconnected (high on support seeking and receiving), Tended (low on support seeking, high on support receiving), Rebuffed (high on support seeking, low on support receiving), and Isolated (low on support seeking and receiving). We then examined the differences among groups. Findings The study found significant differences among the four groups in measures of regulatory strengths, meaning-making strengths, interpersonal strengths, and perceived well-being. In general, the Interconnected group scored highest among the four groups, followed by the Tended group, the Rebuffed group, and lastly, the Isolated group. Applications The finding that the Rebuffed group did not score significantly lower than the Isolated group underscores the importance of support seeking. Individuals may benefit from the support seeking process even though they do not obtain the support needed. Social work practitioners should facilitate and optimize their clients’ support seeking, including removing clients’ barriers to support seeking and addressing clients’ negative experiences in the support seeking process. Social work researchers should measure multiple aspects of social support, including support received and support seeking.

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Marshalling Social Support: A Care-Getting Model for Persons Living With Cancer

Cited by 15 publications

References 80 publications

Public Knowledge about Monogenic Diseases and Attitudes Toward Expanded Carrier Screening in China

Public Knowledge about Monogenic Diseases and Attitudes Toward Expanded Carrier Screening in China

Elderly Cancer Survivors Reflect on Coping Strategies During the Cancer Journey

When support seekers encounter unsettling responses: A dual-factor approach

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