Mastery, functional disability and perceived health status in patients with multiple sclerosis

Krokavcova, Martina; Nagyová, Iveta; Dijk, Jitse P. van; Rosenberger, Jaroslav; Gavelova, Miriam; Middel, Berry; Gdovinová, Zuzana; Groothoff, Johan W.

doi:10.1111/j.1468-1331.2008.02304.x

Cited by 32 publications

(29 citation statements)

References 38 publications

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“…Compared with these previous studies, which reported the number of years since MS diagnosis ranging from 8 to 19 years,39 40 our participants have been diagnosed with MS for 24.8 (±10) years. Our respondents’ level of education aligns with most other studies of people with MS 39–41 43. The group is fairly well educated which is not surprising considering characteristics of people who respond to surveys in general 45.…”

Section: Discussionsupporting

confidence: 80%

“…When compared with the Canadian population,33 fewer of our respondents had advanced education including postsecondary degrees and postgraduate degrees. Furthermore, only about 10% of our sample was employed in any capacity which is substantially lower than other studies of older people with MS 38 40 43. Since maintaining employment is associated with better quality of life, at least in younger people with MS,43 factors associated with employment and retirement as one ages with MS will be an important area of future study.…”

Section: Discussionmentioning

confidence: 79%

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The Canadian survey of health, lifestyle and ageing with multiple sclerosis: methodology and initial results

Ploughman

Beaulieu²,

Harris

et al. 2014

BMJ Open

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ObjectivePeople with multiple sclerosis (MS) are living longer so strategies to enhance long-term health are garnering more interest. We aimed to create a profile of ageing with MS in Canada by recruiting 1250 (5% of the Canadian population above 55 years with MS) participants and focusing data collection on health and lifestyle factors, disability, participation and quality of life to determine factors associated with healthy ageing.DesignNational multicentre postal survey.SettingRecruitment from Canadian MS clinics, MS Society of Canada chapters and newspaper advertisements.ParticipantsPeople aged 55 years or older with MS symptoms more than 20 years.Outcome measuresValidated outcome measures and custom-designed questions examining MS disease characteristics, living situation, disability, comorbid conditions, fatigue, health behaviours, mental health, social support, impact of MS and others.ResultsOf the 921 surveys, 743 were returned (80.7% response rate). Participants (mean age 64.6±6.2 years) reported living with MS symptoms for an average of 32.9±9.5 years and 28.6% were either wheelchair users or bedridden. There was only 5.4% missing data and 709 respondents provided optional qualitative information. According to data derived from the 2012 Canadian Community Health Survey of Canadians above 55 years of age, older people with MS from this survey sample are about eight times less likely to be employed full-time. Older people with MS were less likely to engage in regular physical activity (26.7%) compared with typical older Canadians (45.2%). However, they were more likely to abstain from alcohol and smoking.ConclusionsDespite barriers to participation, we were able to recruit and gather detailed responses (with good data quality) from a large proportion of older Canadians with MS. The data suggest that this sample of older people with MS is less likely to be employed, are less active and more disabled than other older Canadians.

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Section: Discussionsupporting

confidence: 80%

Section: Discussionmentioning

confidence: 79%

The Canadian survey of health, lifestyle and ageing with multiple sclerosis: methodology and initial results

Ploughman

Beaulieu²,

Harris

et al. 2014

BMJ Open

View full text Add to dashboard Cite

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“…Moreover, Pearlin, Nguyen, Schieman, and Milkie (2007) noticed that extended education would indirectly influence the lifecourse mastery of older people 'through the greater occupational and financial opportunities' provided by education after high school (p. 173). Other authors indicated that although mastery is responsive to circumstances, it can also operate as a capacity (Skaff et al, 1996): it might buffer the impact of decrease in physical health on older people's well-being (Jonker, Comijs, Knipscheer, & Deeg, 2009), and it could buffer against the anxiety related to disability problems (Krokavcova et al, 2008). Furthermore, it was frequently reported that higher mastery levels are positively associated to physical and mental health outcomes, for example to lower risks of decline in functional ability (Kempen, Ranchor, Van Sonderen, Van Jaarsveld, & Sanderman, 2006), or to less depression (Krokavcova et al, 2008).…”

Section: Literature Overviewmentioning

confidence: 99%

“…Other authors indicated that although mastery is responsive to circumstances, it can also operate as a capacity (Skaff et al, 1996): it might buffer the impact of decrease in physical health on older people's well-being (Jonker, Comijs, Knipscheer, & Deeg, 2009), and it could buffer against the anxiety related to disability problems (Krokavcova et al, 2008). Furthermore, it was frequently reported that higher mastery levels are positively associated to physical and mental health outcomes, for example to lower risks of decline in functional ability (Kempen, Ranchor, Van Sonderen, Van Jaarsveld, & Sanderman, 2006), or to less depression (Krokavcova et al, 2008). Other researchers explained that a given level of control could be retained despite health decline; mainly through processes of selection, optimisation, and compensation (Baltes & Baltes, 1990) or through accommodative coping (Brandtstädter & Rothermund, 1994).…”

Section: Literature Overviewmentioning

confidence: 99%

Perceived control in health care: A conceptual model based on experiences of frail older adults

Claassens

Widdershoven

Rhijn

et al. 2014

Journal of Aging Studies

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Frail older adults are increasingly encouraged to be in control of their health care, in Western societies. However, little is known about how they themselves perceive control in health care. Therefore, this study aims to investigate the concept of health care-related perceived control from the viewpoint of frail older adults. A qualitative interview study was conducted following a Grounded Theory approach. Thirty-two Dutch frail older adults, aged 65 and over, participated in 20 in-depth interviews (n = 20) and three focus group discussions (n = 12). Data were analysed according to techniques of coding and constant comparison. From this analysis constituting factors of perceived control emerged, providing elements of a conceptual model. Perceived control reflects the feeling or belief that health care is under control, which is constituted by five, either internal or external, factors: (I) self-confidence in organising professional and/or informal care, (II) self-confidence in health management in the home setting, (III) perceived support from people in the social network, (IV) perceived support from health care professionals and organisations, and (V) perceived support from (health care) infrastructure and services. Therefore, the concept does not only consist of people's own perceived efforts, but also includes the influence of external sources. Our conceptual model points out what external factors should be taken into consideration by health care professionals and policy makers when enhancing older people's perceived control. Moreover, it can serve as the basis for the development of a measurement instrument, to enable future quantitative research on health care-related perceived control among older adults.

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“…The study sample consisted of two age subgroups of people with MS: a younger group aged 18-44 years (< 45 years) and an older group aged 45-61 years (Z 45 years). The age cut-off point of 45 years in this sample was based on previous studies in people with MS in age cohorts 18-45 and 45-90 years (Garcia and Finlayson, 2005;Krokavcova et al, 2008), and on the study mode (range 18-61 years).…”

Section: Sociodemographic Datamentioning

confidence: 99%

Employment status and perceived health status in younger and older people with multiple sclerosis

Krokavcova

Nagyová

Rosenberger

et al. 2012

International Journal of Rehabilitation Research

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Mastery, functional disability and perceived health status in patients with multiple sclerosis

Abstract: Mastery, functional disability and perceived health status in patients with multiple sclerosis Krokavcova, M.; Nagyova, I.; van Dijk, J. P.; Rosenberger, J.; Gavelova, M.; Middel, B.; Gdovinova, Z.; Groothoff, J. W.

Cited by 32 publications

References 38 publications

The Canadian survey of health, lifestyle and ageing with multiple sclerosis: methodology and initial results

The Canadian survey of health, lifestyle and ageing with multiple sclerosis: methodology and initial results

Perceived control in health care: A conceptual model based on experiences of frail older adults

Employment status and perceived health status in younger and older people with multiple sclerosis

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