Maternal and Child Health Bureau

Hutchins, Tiffany; Mateljevic, Natasa; Jou, Roger J.; Shic, Frederick; Cornew, Lauren; Roberts, Timothy P. L.; Oakes, Leona; Gray, Sarah A. O.; Stubbe, Dorothy; Mueller, Vannesa T.; Singh, Anjileen; Zierhut, Cynthia; Sulkes, Stephen; Wilczynski, Susan; Rue, Hanna C.; Offit, Paul A.; Voos, Avery; Avini, Mitrah E.; Lickenbrock, Diane M.; Boucher, Jill; Gaigg, Sebastian; Bowler, Dermot; Solages, Martine; Scott, Haleigh; Havercamp, Susan M.; Grindstaff, Jemma; Shea, Victoria; Early, Maureen; Wink, Logan; Erickson, Craig A.; McDougle, Christopher J.; Roesser, Jessica L.; Farmer, Miranda; Pilato, Madison; Moyle, Maura; Plowgian, Claire; Martí, Itxaso; Vivanti, Giacomo; Westphal, Alexander; Geno, Danielle; McDuffie, Andrea; Miller, Lucy; Schoen, Sarah; Solomon, Marjorie; Hyman, Susan; Dinstein, Ilan; Behrman, Marlene; Parvez, Rizwan; Aaronson, Benjamin; Bernier, Raphael; Kent, Lindsey; Volkmar, Fred R.; Gabig, Cheryl Smith; Dereu, Mieke; Brucker, Pamela; Hoffman, Ellen J.; Johnson, Kristin; Edelson, Lisa; El-Fishawy, Paul; Hillegers, Manon H. J.; Aalst, Karen; Scahill, Lawrence David; Macy, Kelly; Esposito, Gianluca; Mouridsen, Svend Erik; Koegel, Lynn; Koegel, Robert L.; Park, Mi Na; Ray-Subramanian, Corey; Lee, Su Mei; Zampella, Casey; Bennetto, Loisa; Brown, Ted; Lewis, Moira; Reilly, Beau; Lee, Evon Batey; Melchior, Sarah; Marcus, Lee; Grindstaff, Jemma; Lestrud, Michelle; Murdoch, John D.; Gaag, Jan Van der Rutger; Sanders, Stephan; Kim, Jinah; Rogers, Sally J.; Gulsrud, Amanda C.; Capece, Lindsey

doi:10.1007/978-1-4419-1698-3_624

Cited by 1 publication

(2 citation statements)

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“…51 Title V funded key clinical trials, academic conferences, and widely disseminated reports on newborn screening for metabolic conditions throughout the following decades. 52 When newborn screening began in the 1960s, many scientists and advocates believed that the systematic application of scientific medicine would eliminate most causes of intellectual disability by the end of the century. Early detection and treatment of phenylketonuria and hypothyroidism were seen as the first of many successes to come, and federal resources poured into research and training in developmental disabilities.…”

Section: Discussionmentioning

confidence: 99%

“…42 Through the 1940s, children with intellectual disability were not a priority for the USCB, and some states had laws that restricted the use of Title V funds to children with IQs above 75. 43 At the same time that eugenic laws were instituted, families of children with intellectual disability began to form grassroots organizations to advocate for their children's participation in school and community events. Prominent public figures such as entertainer Roy Rogers and novelist Pearl Buck told stories of their children with disabilities, transforming intellectual disability from a source of shame to one of pride and courage.…”

Section: The Promise Of Preventionmentioning

confidence: 99%

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NAVIGATING the Future Through the Past The Enduring Historical Legacy of Federal Children's Health Programs in the United States

Brosco

2012

Am J Public Health

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The United States excels at treating the most complex medical conditions, but our low-ranking health statistics (relative to other countries) do not match our high-end health care spending. One way to understand this paradox is to examine the history of federal children's health programs. In the 1800s, children's health advocates confronted social determinants of health to reduce infant mortality. Over the past 100 years, however, physicians have increasingly focused on individual doctor–patient encounters; public health professionals, meanwhile, have maintained a population health perspective but struggled with the politics of addressing root causes of disease. Political history and historical demography help explain some salient differences with European nations that date to the founding of federal children's health programs in the early 20th century. More recently, federal programs for children with intellectual disability illustrate technical advances in medicine, shifting children's health epidemiology, and the politics of public health policy.

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Section: Discussionmentioning

confidence: 99%

Section: The Promise Of Preventionmentioning

confidence: 99%