Maternal Caregiving for Children Newly Diagnosed with Acute Lymphoblastic Leukemia: Traditional Chinese Mothering as the Double-Edged Sword

Chen, Chun-Fei; Huang, Fang‐Liang; Chen, Yueh-Chih; Wang, I-Fan; Huang, Ying-Wen

doi:10.1016/j.pedn.2020.02.008

Cited by 10 publications

(9 citation statements)

References 34 publications

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“…Our findings may be placed in the context of the literature. The mean (and SD) score for the QoL for childhood cancer patients was in line with those in studies conducted in Turkey (mean = 64.51, SD = 18.27) [ 25 ] and Brazil (mean = 62.90, SD = 16.6) [ 26 , 27 ]. Our QoL scores were slightly lower compared with those of other studies, as our study included more patients with solid tumors (47.55%) than those reported in the literature [ 28 ].…”

Section: Discussionsupporting

confidence: 84%

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The Relationship between the Unmet Needs of Chinese Family Caregivers and the Quality of Life of Childhood Cancer Patients Undergoing Inpatient Treatment: A Mediation Model through Caregiver Depression

Wang

Coyte

Шао

et al. 2022

IJERPH

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A large proportion of the global burden of childhood cancer arises in China. These patients have a poor quality of life (QoL) and their family caregivers have high unmet needs. This paper examined the association between the unmet needs of family caregivers and the care recipient’s QoL. A total of 286 childhood cancer caregivers were included in this cross-sectional study. Unmet needs and depression among caregivers were assessed by the Comprehensive Needs Assessment Tool for Cancer Caregivers (CNAT-C) and the Patient Health Questionnaire (PHQ-9), respectively. The patient’s QoL was proxy-reported by the Pediatric Quality of Life Inventory Measurement Models (PedsQL 3.0 scale Cancer Module). Descriptive analyses, independent Student’s t-tests, one-way ANOVA, and mediation analyses were performed. The mean scores (standard deviations) for unmet needs, depression, and QoL were 65.47 (26.24), 9.87 (7.26), and 60.13 (22.12), respectively. A caregiver’s unmet needs (r = −0.272, p < 0.001) and depression (r = −0.279, p < 0.001) were negatively related to a care recipient’s QoL. Depression among caregivers played a mediating role in the relationship between a caregiver’s unmet needs and a care recipient’s QoL. As nursing interventions address depression among caregivers, it is important to standardize the programs that offer psychological support to caregivers.

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Section: Discussionsupporting

confidence: 84%

“…This might be due to the traditional role of Chinese mothers. Many mothers may feel guilty for their young children’s illness and blame themselves for the occurrence of cancer, thereby raising their levels of anxiety [ 26 ]. These negative emotions may be passed on to their children through daily interaction.…”

Section: Discussionmentioning

confidence: 99%

The Relationship between the Unmet Needs of Chinese Family Caregivers and the Quality of Life of Childhood Cancer Patients Undergoing Inpatient Treatment: A Mediation Model through Caregiver Depression

Wang

Coyte

Шао

et al. 2022

IJERPH

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“…The articles found showed that family members/caregivers look to their religious and spiritual beliefs for an additional resource to assist and give hope that all will be well, creating a sense of trust (e.g., Faria and Cardoso, 2010; Nafratilova et al, 2018; Sánchez, 2020). Thus, illness can be seen by family members and caregivers as serving a purpose, whereby God (or another religious/spiritual figure) would be present and accompanying them in the situation they are experiencing, and may generate a sense of comfort and peace (e.g., Cutillo et al, 2018; Chen et al, 2020; Schaefer et al, 2020). To have something to help them reduce anxieties, expectations, fears, and discomforts, the treatment journey needs to be seen in a lighter and more adjusted way in the face of the demands that may emerge (Rossato et al, 2021).…”

Section: Discussionmentioning

confidence: 99%

“…The religious and spiritual aspects of family members and caregivers were also strengthened during children and adolescents’ illness. The results showed the adoption of religious and spiritual practices as a way to get closer to God, with an openness to the use of objects and participation in rites/practices directed to R/S, such as going to certain places considered sacred (e.g., Wang et al, 2017; Ahmadi et al, 2019; Rabelais et al, 2019; Chen et al, 2020). Going to sacred places or adopting certain habits and objects linked to personal religiosity/spirituality are ways of establishing a connection and contact with a superior force that transcends concrete/material existence, and these actions are positive for people (Rossato et al, 2021).…”

Section: Discussionmentioning

confidence: 99%

Religious–spiritual experiences of family members and caregivers of children and adolescents with cancer

et al. 2021

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This integrative literature review aimed to identify the religious and spiritual experiences of family members and caregivers of children and adolescents with cancer. Through systematized searches in the databases/libraries CINAHL, PsycINFO, Pubmed, SciELO, and Lilacs, 69 articles produced between 2010 and 2020 were retrieved. There was a predominance of studies with parents developed in hospital facilities. The caregivers’ religious and spiritual experiences helped them to cope with childhood cancer, especially in maintaining hope, reducing stress and anxiety symptoms, as well as in providing psychological and social support. Negative outcomes such as questioning faith, the feeling of punishment, and disruption with the religious and spiritual group were also perceived. It is recommended to include religiosity and spirituality for the provision of more humanized and comprehensive care, as well as further investigation of the negative experiences regarding religiosity and spirituality in this public.

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“…As a result, children with cancer receive resources and services for hospital and home teaching during their treatment. However, most studies have focused on parents caring for children with cancer and on parents' experiences regarding how they adapted to the initial diagnosis and overall treatment process (Chen et al, 2020; Khoury et al, 2013; Molinaro & Fletcher, 2018; Naidoo et al, 2016). Little is known about the educational experiences of children with cancer during the treatment process.…”

Section: Introductionmentioning

confidence: 99%

Parental experiences of educational supports offered during their child's cancer treatment

Huang

Yeh

Liu

et al. 2021

Child

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Background To explore how parents of children with cancer offer educational supports during the treatment process. Methods Based on a descriptive qualitative method design, 29 mothers and 19 fathers of children with cancer were interviewed on their experiences of supporting their child's education during their child's treatment through semi‐structured interviews. Result Six themes were summarized from the parents' experiences in supporting their child's education during treatment: initial emphasis on survival over education; educational strategies important when returning to everyday life post‐treatment; parents and educators have different expectations; child's extracurricular activities provided a sense of accomplishment; preparing for transition to school; and long‐term concern was for the child's health and happiness. Conclusion Education is part of children's normal development, but education is often placed on hold for a child receiving cancer treatment. Parents of children with cancer are unable to focus on the child's education because of the threat to their child's life. When their child's illness stabilizes, they will begin to utilize their resources to arrange lessons to facilitate returning to school. Through understanding parents' learning expectations, medical professionals can support adjustments to parents' attitudes.

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Maternal Caregiving for Children Newly Diagnosed with Acute Lymphoblastic Leukemia: Traditional Chinese Mothering as the Double-Edged Sword

Cited by 10 publications

References 34 publications

The Relationship between the Unmet Needs of Chinese Family Caregivers and the Quality of Life of Childhood Cancer Patients Undergoing Inpatient Treatment: A Mediation Model through Caregiver Depression

The Relationship between the Unmet Needs of Chinese Family Caregivers and the Quality of Life of Childhood Cancer Patients Undergoing Inpatient Treatment: A Mediation Model through Caregiver Depression

Religious–spiritual experiences of family members and caregivers of children and adolescents with cancer

Parental experiences of educational supports offered during their child's cancer treatment

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