Maternal Experiences of Having a Child with a Cleft

Nguyen, Van Thai; Jagomägi, Triin

doi:10.4172/2324-8785.1000343

Cited by 3 publications

(3 citation statements)

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“…Consistent with the findings of authors such as Bonsu et al (2018) and Nguyen and Jagomagi (2018) whose studies directly explored maternal experiences and reactions of having a child with a cleft, this study found the immediate reactions of mothers' on seeing their babies born with a cleft for the first time to include sadness, worry, and disappointment. This reaction we anticipate stemmed from the fact that the delivery of a child with such a condition was never anticipated, and especially when antenatal care visits and scans may have proved that the child was fine.…”

Section: Discussionsupporting

confidence: 86%

“…In one of the few studies to directly explore the experiences of mothers after giving birth to children with cleft lip/palate in Vietnam, Nguyen and Jagomagi (2018) found that the prominent feeling among the 76 mothers who participated in their study was sadness (Nguyen and Jagomagi, 2018). A study conducted by Bonsu et al (2018) on the initial reaction and psychosocial experiences of Ghanaian mothers also revealed that mothers' described their initial reaction to the birth of the child as an unexpected event with culminating experience such as shocks and disappointment which leads to rejection of the child.…”

Section: Introductionmentioning

confidence: 99%

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Mothers’ Reactions to Seeing Their Children With Cleft for the First Time: A Qualitative Study in Ghana

Dapaah

Addo

Effe

2020

The Cleft Palate Craniofacial Journal

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Objective: Studies on the etiology, treatment, and psychosocial effects of clefts among children born with the condition abound. Limited studies, however, have focused on the mothers of these children. This study aimed to explore the immediate reaction of mothers to seeing their children born with a cleft for the first time. Mothers’ knowledge of cleft and the support systems available to them were also explored. Design: Employing a qualitative description approach, data were collected through face-to-face individual in-depth interviews using a semistructured interview guide. Participants and Research Context: Using the purposive and snowballing sampling techniques, 12 mothers who sought treatment for their children with cleft at a Tertiary health facility in Ghana were selected. The ethical principles outlined in the Declaration of Helsinki were followed during data collection. The data obtained were analyzed applying the technique of thematic analysis. Results: Mothers’ first time reaction to seeing their child born with a cleft was that of sadness, worry, and disappointment. Knowledge of cleft among the mothers was low with most of them knowing more about the condition only after the delivery of their child with a cleft. Mothers received support from family members, health care practitioners, nongovernmental organizations, and their partners. Conclusion: To reduce the psychosocial and emotional effects resulting from mothers giving birth to a child with a cleft, information on the condition should be made available to mothers and primary caregivers early enough.

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Section: Discussionsupporting

confidence: 86%

Section: Introductionmentioning

confidence: 99%

Mothers’ Reactions to Seeing Their Children With Cleft for the First Time: A Qualitative Study in Ghana

Dapaah

Addo

Effe

2020

The Cleft Palate Craniofacial Journal

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“…In the present study, 63% of parents have agreed that they felt sad and helpless about having a child with the deformity, which was similar to Nguyen et al where 61% of the parents felt sad about having the child. It was perhaps because they were upset at the defect and felt helpless to change the abnormal condition of their child [17].…”

Section: Discussionmentioning

confidence: 99%

A Cross-Sectional Study: Are Myths on Cleft Lip and Palate Still Prevalent?

Turlapati¹,

Krishna²,

Deepak³

et al. 2021

Cureus

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Background The etiology of cleft lip and palate (CL/P) remains largely unidentified. Evidence-based research shows a strong association with genetics, environmental factors, nutritional deficiency, smoking, alcohol, and drug misuse. Despite the increase in knowledge and widespread access to medical care beliefs contrary to science, folklores on CLP still occur in most developing countries. Methodology The study design was cross-sectional in nature and involved a sample of 136 parents of children with cleft lip and palate reporting to Smile Train Cleft Centers. It was conducted by using a self-structured questionnaire from December to March 2019. Results The highest recorded response was holding sharp objects, such as knives, scissors, or needles, during pregnancy (40.4%) and the least recorded response was for pregnant women going out on an auspicious day (3.7%). Conclusion The current study demonstrated that a majority of the parent’s socioeconomic status was upper lower class. Some parents still believe in the myths around the etiology of CLP despite the advances in medicine and technology.

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Problemas de Salud Mental en Niños con Fisura Labiopalatina

Ortega

Vázquez

2020

RIP

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Los niños que padecen enfermedades genéticas son una población vulnerable para desarrollar problemas de salud mental. La fisura labiopalatina (FLAP) es una anomalía congénita de tipo estructural. Objetivo: Estudiar el impacto a nivel familiar del diagnóstico de FLAP. Metodología: Alcance descriptivo, de diseño mixto y corte transversal. Se construyó un cuestionario autoadministrado compuesto por un consentimiento informado, un cuestionario de datos sociodemográficos, el Child Behavior CheckList y preguntas abiertas. El muestreo fue intencional y la muestra fue de 42 casos. Resultados: El diagnóstico de una fisura labio palatina es una experiencia difícil en los padres, quienes viven este momento de manera negativa, con tristeza y miedo. Los niños en edad preescolar con diagnóstico de fisura labiopalatina son una población en riesgo de desarrollar trastornos psicopatológicos, mayormente de tipo externalizantes.

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Maternal Experiences of Having a Child with a Cleft

Cited by 3 publications

References 0 publications

Mothers’ Reactions to Seeing Their Children With Cleft for the First Time: A Qualitative Study in Ghana

Mothers’ Reactions to Seeing Their Children With Cleft for the First Time: A Qualitative Study in Ghana

A Cross-Sectional Study: Are Myths on Cleft Lip and Palate Still Prevalent?

Problemas de Salud Mental en Niños con Fisura Labiopalatina

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