Maternal Healthcare Experiences of and Challenges for Women with Physical Disabilities in Low and Middle-Income Countries: A Review of Qualitative Evidence

Nguyen, Thi Vinh; King, Julie; Edwards, Niki; Pham, Cong Tuan; Dunne, Michael P.

doi:10.1007/s11195-019-09564-9

Cited by 13 publications

(9 citation statements)

References 36 publications

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“…Bassoumah and Mohammed ( 2020 :5) reiterate that healthcare providers often expose women with disabilities to discrimination, maltreatment and humiliation through abusive and defamatory language. A study by Nguyen et al ( 2019 :193) also reported that women with physical disabilities experienced healthcare providers looking down on them, having negative attitudes and discriminating against them, as if they were incapable of getting pregnant. These midwives discouraged them from having children and were advising them to be sterilised.…”

Section: Discussionmentioning

confidence: 99%

“…Several studies concur with the theme of participants experiencing challenges before and after giving birth related to a lack of protocols, equipment and infrastructure. In their study, Nguyen et al ( 2019 :192) reported on the long queues for women with physical disabilities. Furthermore, Ganle et al ( 2016 :8) found that information and advice from healthcare providers were sometimes irrelevant or not applicable to women with disabilities.…”

Section: Discussionmentioning

confidence: 99%

“…Many women with physical disabilities have reported barriers in accessing healthcare providers and facilities. Research further indicates that there are challenges with infrastructure and resources to accommodate the needs of women with mobility disabilities (Nguyen et al 2019 :191; Sonalkar et al 2020 :138). Ganle et al ( 2016 :8) report that women with disabilities face significant challenges in accessing skilled maternity care, as they often cannot reach the health facility because of their disabilities.…”

Section: Introductionmentioning

confidence: 99%

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Women with mobility disabilities’ experiences of maternity care during pregnancy, labour and puerperium in Eswatini

Magagula

Temane

Nolte

2022

Health SA Gesondheid

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Background: People living with disabilities are often women and the elderly and those from low-income families. There is paucity in research on women with mobility disabilities' experiences of maternity care during pregnancy, labour and puerperium in Eswatini.Aim: To explore and describe women with mobility disabilities' experiences of maternity care during pregnancy, labour and puerperium in Eswatini. Setting:The study was conducted in the Hhohho and Manzini regions in Eswatini, between March 2019 and July 2019.Methods: A qualitative, exploratory, descriptive and contextual research design was followed. Purposive sampling and snowballing techniques were used to sample women with mobility disabilities to participate in the research. Individual interviews were conducted, and Giorgi's method of data analysis was used.Results: Women with mobility disabilities experienced midwives as being brutal, unsupportive and judgemental. In addition, participants reported several maternity care challenges related to a lack of protocol and infrastructure, and they needed to be cared for by experienced midwives during pregnancy, labour and puerperium. Conclusion:Women with mobility disabilities experienced various challenges during pregnancy, labour and puerperium in Eswatini. There is a need to develop guidelines to facilitate support and holistic maternity care for these women. Contribution:The study contributed to the scientific knowledge of women with mobility disabilities' experiences of maternity care during pregnancy, labour and puerperium.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Women with mobility disabilities’ experiences of maternity care during pregnancy, labour and puerperium in Eswatini

Magagula

Temane

Nolte

2022

Health SA Gesondheid

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“…This re ects the situation in the country and the region, where the sexuality of persons with disabilities remains complex and ambiguous (6). There are multiple initiatives, health programs, consultancies, and others, implemented in countries such as Mexico (50), Argentina (51), Chile (52), Colombia (53), and Costa Rica (54), among others (55), which are focused on improving the quality of life of people with disabilities. These efforts are examples of Government strategies and policies that can be extrapolated to the Peruvian reality, given the need to have trained professionals within the national health network who provide counseling or sexual therapy to the person with disabilities and partners, as well as the importance of sex education, which is relevant due to the high percentage of the population with disabilities existing at the national level.…”

Section: Discussionmentioning

confidence: 99%

Sexuality in People with Motor Disability; Taboo, or Right?

Sologuren-García

Linares

Flores

et al. 2022

Preprint

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Background Globally 1 in 7 people experience some type of disability. In Latin America, as in other regions, there are programs focused on protecting sexual and reproductive rights. However, in Peru don’t exist programs, protocols, or guidelines that include a specialist (sexologist or trained health professional) in the health system, which allows for improving the quality of life and well-being of this population. Therefore, the study aims to analyze the experience of sexuality of people with motor disabilities to propose actions that contribute to improving their quality of life. Methods The interpretive phenomenological approach and the semi-structured in-depth interview with 60 questions were used, which was applied to 7 people (4 women and 3 men) with acquired motor disability. Results In this study observed diversity in the experience of sexuality. While some people experience it without fear; others have canceled their sexual activity. It could be because, in addition to physical limitations, they experience psychosocial limitations such as pain, functional alterations, depression, low self-esteem, discrimination, exclusion, stigma, socio-environmental barriers, etc. Therefore, the study reflected the double discrimination suffered by women (for being a woman and having a disability) and the absence of sexual education, counseling, or sexual therapy by specialized professionals. Other factors are the influence of religion, society, and culture that might condition and limit their sexuality. This reflects the current situation in Peru and other countries in the region, where the sexuality of persons with disabilities continues to be a complex and ambiguous issue. Conclusions The review of the profile and level of specialization of the health services professionals involved in the integral medical care of people with disabilities and their couples is required because of their need for adequate and specialized attention for their better adaptation to the new condition.

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“…They raise concerns about the possibility of these mothers transferring the disability trait to their children and sometimes suggest abortions to them when they get pregnant [ 26 – 28 ]. In low and middle-income countries the bizarre treatment family members and the community at large subject mothers with disabilities to leave them with low self-esteem and lack of confidence in their motherhood abilities [ 29 ].…”

Section: Introductionmentioning

confidence: 99%

Experiencing motherhood as a blind mother in the Greater Accra Region of Ghana; a qualitative study

Acheampong

Marfo

Aziato

2022

BMC Pregnancy Childbirth

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Background Females in developing countries are likely to suffer from visual impairment more than their male counterparts. People living with blindness or any other form of disability also have the right to reproduce and care for their children like all other humans. There is paucity of literature in the experiences of blind mothers in Ghana. Therefore, this study explored the experiences of blind mothers as they navigated the process of motherhood. Methods Qualitative exploratory descriptive design was used to conduct the study. Nineteen blind mothers were interviewed individually. Permission was sought for data to be audiotaped, transcribed and content analyzed inductively. Results Three main themes emerged from the data: mothering role and difficulties (sub-themes; feeding, disciplining and protection), mothering challenges (sub-themes; discrimination and prejudice, financial distress and psychological distress) and coping strategies (prayer, children and self-motivation). Most of the mothers reported difficulties in playing their roles in the areas of feeding, disciplining and protection. Challenges were poverty, discrimination, prejudices on their ability to be mothers and psychological distresses such as depression. They coped with their challenges with prayers, self motivation and the hope they had in their children. Conclusion A lot of public education is needed to make the lives of people living with disability better. Health professionals must be trained to treat blind mothers with dignity and respect.

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Maternal Healthcare Experiences of and Challenges for Women with Physical Disabilities in Low and Middle-Income Countries: A Review of Qualitative Evidence

Cited by 13 publications

References 36 publications

Women with mobility disabilities’ experiences of maternity care during pregnancy, labour and puerperium in Eswatini

Women with mobility disabilities’ experiences of maternity care during pregnancy, labour and puerperium in Eswatini

Sexuality in People with Motor Disability; Taboo, or Right?

Experiencing motherhood as a blind mother in the Greater Accra Region of Ghana; a qualitative study

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