“Me Against the World”: Parental Uncertainty Management at Home Following Neonatal Intensive Care Unit Discharge

White, Zachary; Gilstrap, Cristina M.; Hull, J. E.

doi:10.1080/15267431.2016.1233105

Cited by 17 publications

(8 citation statements)

References 27 publications

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“…The feeling of worry was exacerbated by a new feeling of ambiguity as to what types of behaviors or changes in their child signified a clinical concern as opposed to an expected change. As suggested by White et al in their analysis of uncertainty in the transition period, parents would benefit from greater support and explicit planning around uncertainty to minimize the emotional impact from this significant transition [19].…”

Section: Discussionmentioning

confidence: 99%

Uncertainty and the NICU Experience: A Qualitative Evaluation of Family and Provider Perspectives

Gorsky,

Butala,

House

et al. 2023

Children

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There is limited information regarding caregiver and provider perspectives on uncertainty across the continuum of the neonatal intensive care unit (NICU) experience. Open-ended semi-structured interviews were conducted with providers and English- and Spanish-speaking caregivers of infants with a history of admission to a quaternary safety-net NICU. Major themes were generated using inductive–deductive thematic analysis. Seventy-six individuals participated in the study: 47 caregivers and 29 providers. The median gestational age of the infants was 29 weeks and 85% were classified as having chronic complex disease per the Pediatric Medical Complexity Algorithm. Most providers were neonatologists (37%) and nurses (27%) and more than half had over ten years of experience. A conceptual model of caregiver uncertainty was developed and key domains included drivers of uncertainty and its impact, and factors influencing coping and adaptation. Our analysis found a positive association between caregiver information gathering, clinical continuity, support systems, maternal mental health supports, and witnessing a child’s progress and the development of adjustment to chronic uncertainty. These results suggest key areas for intervention that can promote parental adaptation to the uncertainty inherent in the NICU experience.

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Section: Discussionmentioning

confidence: 99%

Uncertainty and the NICU Experience: A Qualitative Evaluation of Family and Provider Perspectives

Gorsky,

Butala,

House

et al. 2023

Children

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“…Similar findings have been reported by Dellenmark-Blom & Wigert (2014) and Jackson et al (2003) . Other findings depict parents as still holding feelings of uncertainty about their parenting role and identity following discharge, with increased worries and concerns for their emotional wellbeing ( Baraldi et al, 2020 ; White et al, 2017 ). These studies, albeit depicting subjective emotional experiences that parents encountered once they were home, have not focused on the experience of bonding or forming a relationship with their infants and how parents have regained and adjusted their parenting role as a result.…”

Section: Introductionmentioning

confidence: 99%

Exploring Adjustment and Parent–Infant Relations in Mothers of Premature Infants: Thematic Analysis Using a Multisensory Approach

Suarez

Adair

Doherty

et al. 2022

Journal of Pediatric Psychology

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Objective The aim of the study was to explore mothers’ experiences of having an infant born prematurely (28–32 weeks gestation). In particular, the study aimed to explore the developing parent–infant relationship 12–30 months since birth and the developing parental identity during hospitalization and discharge. Methods Twelve mothers, aged between 22 and 43, participated in the semi-structured interviews. The mean age of infants was 19 months. Interviews comprised open-ended questions and visual stimuli consisting of photographs brought by participants, word selection, and card sorting techniques. Data were analyzed using Braun and Clarke’s thematic analysis (Braun & Clarke, 2013). Results Three themes arose from a clustering of 10 subthemes: (a) Emotional Impact, (b) Searching for Parent Identity, and (c) Moving Beyond Adversity. Participants expressed experiencing heightened emotional distress during the time of their infants’ birth and hospitalization and initially not feeling like parents. Their parental identity strengthened as they became more involved in the care of their infant and began to accept the situation. Participants described parenting their premature infants differently compared with parents of full-term infants, and described adjusting to this difference over time. Conclusions The findings highlight the emotional experience and adjustment of mothers of premature infants, from hospital and postdischarge. The need for psycho-educational interventions postdischarge and parent-partnered models during hospitalization is discussed. In addition, the study demonstrates the use of integrating visual stimuli in qualitative data collection procedures, to elicit further meaning and interaction from participants with the interview process.

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“…The stimulus can be an opportunity or a threat [2]. Unmanaged stress can lead to depression, reduce quality of life[6], and thereby, negatively affect both maternal and neonatal health [7].…”

Section: Introductionmentioning

confidence: 99%

The Effects of Training Emotional Intelligence Skills Training on Stress Among the Mothers of Premature Newborns in Neonatal Intensive Care Unit

Pouraboli

Arianfar

Abadian

et al. 2022

Preprint

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Background The mothers of premature newborns experience high levels of stress which can affect their relationships with their newborns, cause them ineffective parental role performance, and impair their newborns’ growth and development. Emotional intelligence (EI) has potential positive effects on stress. Objectives This study evaluated the effects of training EI skills on stress among the mothers of premature newborns in neonatal intensive care unit (NICU). Methods This quasi-experimental study was conducted in 2016 with a pretest-posttest design and a control group. Ninety mothers of premature newborns were selected from the NICUs of Zeinabieh and Hafez hospitals, Shiraz, Iran, and randomly allocated to an intervention and a control group. Participants in the control group received EI skills training in six sessions held twice weekly. The Parental Stress Scale was used for stress assessment before and one week after the intervention. The SPSS software (v. 16.0) was used for data analysis. Results Thirty seven participants in each group completed the study. While there was no significant difference between the intervention and the control groups respecting the pretest mean score of stress (48.89±19.02 vs. 44.92±18.55; P = 0.37), the posttest mean score of stress in the intervention group was significantly less than the control group (13.29±13.15 vs. 47.84±22.56; P < 0.001). The mean score of participants’ stress had significant relationship with their income level and their premature newborns’ birth weight. Conclusion Training EI skills is effective in significantly reducing stress among the mothers of premature newborns in NICU.

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“Me Against the World”: Parental Uncertainty Management at Home Following Neonatal Intensive Care Unit Discharge

Cited by 17 publications

References 27 publications

Uncertainty and the NICU Experience: A Qualitative Evaluation of Family and Provider Perspectives

Uncertainty and the NICU Experience: A Qualitative Evaluation of Family and Provider Perspectives

Exploring Adjustment and Parent–Infant Relations in Mothers of Premature Infants: Thematic Analysis Using a Multisensory Approach

The Effects of Training Emotional Intelligence Skills Training on Stress Among the Mothers of Premature Newborns in Neonatal Intensive Care Unit

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