Measure of Early Vision Use: development of a new assessment tool for children with cerebral palsy

Denver, Belinda Deramore; Froude, Elspeth; Rosenbaum, Peter; Imms, Christine

doi:10.1080/09638288.2021.1890241

Cited by 6 publications

(4 citation statements)

References 38 publications

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“…The following nine ICF-based measures have a primary focus on the assessment of a specific construct of interest: ICF Core Sets (ICF-CS) ( 41 ), Gait Outcomes Assessment List (GOAL) ( 45 ), Focus on the Outcomes of Communication Under Six (FOCUS ® ) ( 46 ), Questionnaire of Young People's Participation (QYPP) ( 47 ), Measure of Early Vision Use (MEVU) ( 48 ), Children's Assessment of Participation with Hands (CAP-HAND) ( 37 ), Children's Assessment of Participation and Enjoyment & Preferences for Activities of Children (CAPE & PAC) ( 39 ), the ICF-CY Based Questionnaire ( 49 ), and the Participation and Environment Measure for Children and Youth (PEM-CY) ( 38 ). These types of measures describe details of functioning, can observe and evaluate a child's abilities and limitations within the construct of interest (otherwise referred to as outcome measures—a subset of assessment measures), and in some cases, it may be used to predict within-person change over time ( 26 ).…”

Section: Resultsmentioning

confidence: 99%

“…The initial development studies for the selected measures included varying levels and types of psychometric properties conducted and described. Some studies [ICF-CS ( 41 ), GMFCS-ER ( 35 ), BFMF ( 43 ), MEVU ( 48 ), and PEM-CY ( 38 )] placed emphasis on the process that the research team experienced when developing the measure, rather than describing specific psychometric characteristics of their measure. These studies had concurrent publications that described the conceptual processes and psychometric testing separately.…”

Section: Discussionmentioning

confidence: 99%

“…With the various diagnoses categorized within NDD, these measures have a wider scope in reaching different communities, thus creating more opportunities to utilize the concepts of the ICF in clinical and research settings. It is important to note that the ICF is still considered a contemporary framework, and that measures are continuing to be developed, such as the MEVU ( 48 ) that was published 1 month prior to conducting the database search for this narrative review.…”

Section: Discussionmentioning

confidence: 99%

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A Narrative Review of Function-Focused Measures for Children With Neurodevelopmental Disorders

Shanmugarajah

Rosenbaum

Zubairi

et al. 2021

Front. Rehabilit. Sci.

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Clinical measures in health and rehabilitation settings are often used to examine child functioning to better support the diverse needs of children with neurodevelopmental disorders (NDD) and their families. The WHO's International Classification of Functioning, Disability, and Health (ICF) framework reflects a focus of health beyond biomedical deficits, using the concept of functioning to create opportunities for measurement development involving this construct. In the measures developed in the field of childhood NDD, it is unclear whether and how these tools measure and incorporate the ICF framework and its domains within health care contexts. Understanding how these measures utilize the ICF will enable researchers and clinicians to operationalize function-focused concepts in studies and clinical practice more effectively. This narrative review aims to identify and describe function-focused measures that are based on the ICF for children with NDD, as described in the peer-reviewed literature. This review used a systematic search strategy with multiple health-focused databases (Medline, PsycInfo, EMBASE, EMCARE), and identified 14 clinical measures that provide direct support for children (aged 0-21) with NDD in pediatric health (and other) settings. Results described the measures that were primarily developed for three main diagnostic populations [cerebral palsy, autism spectrum disorder, and communication disorders]; had varying contextual use (clinical-only or multiple settings); and for which authors had conducted psychometric tests in the measure's initial development studies, with the most common being content validity, interrater reliability, test-retest reliability. Participation (79%, n = 11) & Activities (71%, n = 10) were the most common ICF domains captured by the set of measurement tools. Overall (71%, n = 10) of the identified measures utilized multiple ICF domains, indicating that the “dynamic nature” of the interactions of the ICF domains was generally evident, and that this result differentiated from “linking rules,” commonly used in research and clinical practice. The implications of these findings suggest that clinical measures can be an effective application of the ICF's defined concepts of functioning for children with NDD.

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

A Narrative Review of Function-Focused Measures for Children With Neurodevelopmental Disorders

Shanmugarajah

Rosenbaum

Zubairi

et al. 2021

Front. Rehabilit. Sci.

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“…Parents of speech-impaired children often express concern about reduced speech intelligibility. Speech intelligibility refers to how much of the phonetic realization of speech is understood by listener 16,17 . Intelligibility is the result of a series of interactive processes involving phonation, articulation, resonance, and prosody 18,19 .…”

Section: Introductionmentioning

confidence: 99%

Parent’s Perspective about Intelligibility of Speech in Children with Cerebral Palsy

Khan,

Firdous,

Rehman

et al. 2023

PJMHS

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Background: The term cerebral palsy (CP) refers to a collection of long-term abnormalities of posture and movement development that limit an individual's activities. These abnormalities are thought to be caused by non-progressive disruptions in the growing fetal or infant brain. Aim: To identify the speech Intelligibility of children with cerebral palsy with different communicative partners Methods: This study employed convenient sampling over two months, conducted within the Pakistan Society for the Rehabilitation of the Disabled (PSRD) and Rising Sun Institute for Special Children. Data collection involved the ICS questionnaire, capturing parents' ratings on their child's speech intelligibility in various social contexts. Results: Out of 119 participants, predominantly aged 4 to 12 years, the study revealed varying levels of speech intelligibility. Scores on the Intelligibility in Context Scale (ICS). Parents exhibited a high level of understanding, with a mean score of 4.32±0.96 SD, signifying a substantial level of intelligibility. Immediate family members, extended family members, and the child's teachers also demonstrated relatively high mean scores, ranging from 3.91 to 3.87. In contrast, strangers had a markedly lower mean score of 2.94±1.49 SD, indicating heightened challenges in comprehending the speech of children with cerebral palsy. Conclusion: The speech of children with cerebral palsy is most easily understood by parents, while strangers encounter more significant challenges. This reinforces the crucial role of familiarity in shaping speech intelligibility for these children. The observed difficulties in communication with unfamiliar individuals emphasize the need for targeted interventions and support to address the unique challenges faced by children with cerebral palsy in diverse social contexts. Keywords: Cerebral Palsy, Speech Intelligibility, Parental Perspective, Intelligibility in Context Scale (ICS)

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Development and initial validation of a screening tool for visual ability/performance of people with polyhandicap

Rousseau,

Challe,

Charbonnier

et al. 2024

Annals of Physical and Rehabilitation Medicine

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Measure of Early Vision Use: development of a new assessment tool for children with cerebral palsy

Cited by 6 publications

References 38 publications

A Narrative Review of Function-Focused Measures for Children With Neurodevelopmental Disorders

A Narrative Review of Function-Focused Measures for Children With Neurodevelopmental Disorders

Parent’s Perspective about Intelligibility of Speech in Children with Cerebral Palsy

Development and initial validation of a screening tool for visual ability/performance of people with polyhandicap

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