2018
DOI: 10.1111/hae.13631
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Measurement of joint health in persons with haemophilia: A systematic review of the measurement properties of haemophilia‐specific instruments

Abstract: Introduction Accurate assessment of joint health in persons with haemophilia is crucial. Several haemophilia‐specific measurement tools are available, but an overview of the measurement properties is lacking. Aim To provide an overview of the measurement properties of haemophilia‐specific measurement tools to assess clinical joint health. Methods MEDLINE and EMBASE were searched for reports on reliability, validity or responsiveness of the World Federation of Haemophilia Orthopedic Joint Score (WFH), Colorado … Show more

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Cited by 40 publications
(59 citation statements)
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“…In those cases where a specific tool was considered to be mature and well‐validated, it was chosen or suggested (eg, EQ‐5D and HJHS). However, in some cases, this did not occur, despite the evidence presented from the systematic reviews 4,9,10 …”
Section: Discussionmentioning
confidence: 99%
See 4 more Smart Citations
“…In those cases where a specific tool was considered to be mature and well‐validated, it was chosen or suggested (eg, EQ‐5D and HJHS). However, in some cases, this did not occur, despite the evidence presented from the systematic reviews 4,9,10 …”
Section: Discussionmentioning
confidence: 99%
“…As a follow‐up to the 2014 Outcome Measures meeting, 1 a 5 step, modified nominal groups process 19 was followed to promote the definition of a core set, guided by the findings of the results of that meeting, and especially the systematic reviews of tools for joint health scores, 4 activity/participation, 10 health related quality of life, 9 and radiology 20 …”
Section: Methodsmentioning
confidence: 99%
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