Measuring family needs of people living with cancer. Portuguese validation and descriptive studies of the Family Inventory of Needs

Areia, Neide P.; Major, Sofia; Relvas, Ana Paula

doi:10.1016/j.ejon.2017.07.005

Cited by 8 publications

(12 citation statements)

References 9 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Within health care settings, the FDI can contribute to identify families at risk that could benefit from further clinical evaluation and a family based intervention, in line with the suggestions of Mendenhall and Ballard (2014). Importantly, in a recent study (Areia, Major, & Relvas, 2017), Portuguese family members of people living with cancer reported important needs that were not addressed by health care professionals, suggesting a failure in considering the entire family as a unit of care in this context. Although the FDI is not a measure focused on distress associated with illness, this general index could also contribute for evaluating family interventions in medical settings.…”

Section: Discussionmentioning

confidence: 92%

Psychometric study of the Portuguese version of the Family Distress Index (FDI).

Fonseca¹,

Crespo

McCubbin³

et al. 2018

Families, Systems, & Health

Self Cite

View full text Add to dashboard Cite

show abstract

Section: Discussionmentioning

confidence: 92%

Psychometric study of the Portuguese version of the Family Distress Index (FDI).

Fonseca¹,

Crespo

McCubbin³

et al. 2018

Families, Systems, & Health

Self Cite

View full text Add to dashboard Cite

show abstract

“…Life-threatening chronic diseases can affect not only the patients but also all of their family members. Since chronic diseases are considered important life crises, their effect on family life is still being researched and discussed (Fridriksdottir et al, 2006(Fridriksdottir et al, , 2011Schur et al, 2014;Buzgova et al, 2016;Areia et al, 2017). Family members are expected to participate in patient care during the diagnosis and treatment process of chronic diseases through monitoring and managing the symptoms of the patient and providing economic and emotional support to the patient (Areia et al, 2017).…”

Section: Introductionmentioning

confidence: 99%

“…Since chronic diseases are considered important life crises, their effect on family life is still being researched and discussed (Fridriksdottir et al, 2006(Fridriksdottir et al, , 2011Schur et al, 2014;Buzgova et al, 2016;Areia et al, 2017). Family members are expected to participate in patient care during the diagnosis and treatment process of chronic diseases through monitoring and managing the symptoms of the patient and providing economic and emotional support to the patient (Areia et al, 2017). The psychological and physical health statuses, work lives, and personal and social relations of family members can be affected by the care and treatment process of patients (Kristjanson and Aoun, 2004;Girgis et al, 2013;Lund et al, 2014;Hashemi et al, 2018;Preisler et al, 2019).…”

Section: Introductionmentioning

confidence: 99%

The validity and reliability of the Turkish version of the Family Inventory of Needs

Sağlam

Koç

2021

Pall Supp Care

View full text Add to dashboard Cite

Objective The aim of this methodological study was to test the validity and reliability of the Turkish version of the Family Inventory of Needs. Methods The universe of the study consisted of 300 family members of inpatients hospitalized in the palliative care units of four hospitals in northern Turkey between April 12, 2019 and December 30, 2019. The translation process was performed in multiple stages using the forward–backward translation model. The reliability of the Family Inventory of Needs was evaluated using the Cronbach α reliability coefficient and item-total score correlations. Exploratory factor analyses were applied to examine the factor structure of the scale and its construct validity. To test the time invariance of the scale, the relationships between the scores obtained from the first and second applications were examined using the intraclass correlation coefficient (ICC). Results The Kaiser–Meyer–Olkin value of the Family Inventory of Needs was found to be 0.893. The items of the Family Inventory of Needs were found to explain 45.23% of the total variance in scores. The Turkish form of the scale consisted of the importance and fulfillment subdimensions, and had 19 items. The ICCs of the test–retest scores of the importance and fulfillment subdimensions of the Family Inventory of Needs were found to be, respectively, ICC = 1.000 and ICC = 0.730 with a positive, linear, and highly significant relationship between the scores. The item-total score correlation coefficients of the scale were found to vary between 0.920 and 0.908 in the importance subdimension, and between 0.930 and 0.922 in the fulfillment subdimension. Significance of results The Turkish version of the Family Inventory of Needs was found to be a valid and reliable measurement tool that can be safely used with the family members of Turkish inpatients.

show abstract

“…Cancer is considered a “we-disease” (Kayser et al, 2007) given that it affects not only the patient but also the whole family system and its members (Rolland, 2005; Areia et al, 2017). The terminal phase of a cancer is particularly demanding for the family as a whole (Walsh and McGoldrick, 2004), and for individual family caregivers in particular, who may experience an emotional impact, psychological morbidity, and poor social, financial, spiritual, and physical well-being (Hudson et al, 2012).…”

Section: Introductionmentioning

confidence: 99%

Support interventions for families of people with terminal cancer in palliative care

et al. 2020

Self Cite

View full text Add to dashboard Cite

Objective The terminal phase of cancer represents a major crisis for the family system. Regardless of the caregiving role they undertake, family members are forced to address multiple impacts when facing the approaching death of their terminally ill loved one. International guidelines recognize the importance of integrating the family into a care plan. However, more needs to be known about how to deliver optimal family support. The purpose of this study is to review the current state of the art in family/caregiver-focused interventions of people with terminal cancer in palliative care. Method For this purpose, an overview of the literature's systematic reviews on the topic was conducted to select Randomized Controlled Trials (RCTs) on family/caregiver-focused interventions. Results Nine interventions were found in the systematic reviews of literature and meta-analysis. These family/caregiver-focused interventions were then thoroughly and critically analyzed. Despite the heterogeneity with regard to their characteristics, the interventions commonly focused on caregiving matters, were brief in duration, and delivered by non-mental health experts. The efficacy of such interventions was seen as modest. Significance of results Family/caregiver-focused interventions in palliative care remain a matter of concern and more research is needed to identify adequate and effective ways of helping families that face the crisis of terminal illness in the system.

show abstract

Measuring family needs of people living with cancer. Portuguese validation and descriptive studies of the Family Inventory of Needs

Cited by 8 publications

References 9 publications

Psychometric study of the Portuguese version of the Family Distress Index (FDI).

Psychometric study of the Portuguese version of the Family Distress Index (FDI).

The validity and reliability of the Turkish version of the Family Inventory of Needs

Support interventions for families of people with terminal cancer in palliative care

Contact Info

Product

Resources

About