Measuring health and well-being effects in family caregivers of children with craniofacial malformations

Payakachat, Nalin; Tilford, John M.; Brouwer, Werner; Exel, Job van; Grosse, Scott D.

doi:10.1007/s11136-011-9870-2

Cited by 35 publications

(43 citation statements)

References 33 publications

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“…Moreover, parents described themselves to be fairly happy, scoring more than a 7 on a 0–10 scale of happiness. This result is consistent with previous findings (Brouwer et al 2006; Hoefman et al 2011a, b, 2013b; Payakachat et al 2011). …”

Section: Discussionsupporting

confidence: 94%

“…In our sample, 40 % of parents reported high level of depressive symptoms, which is comparable to levels reported in similar studies of parents of children with ASDs (Benson 2006; Sawyer et al 2010). By contrast, the prevalence of depressive mood has been reported to be lower amongst parents of children with craniofacial malformations (Payakachat et al 2011) or among parents of typically developing children (Singer and Floyd 2006). …”

Section: Discussionmentioning

confidence: 99%

“…To date, one set of validity tests of the CarerQol has been conducted among caregivers for children, in the specific context of children with craniofacial malformations (Payakachat et al 2011). This study investigated associations between the impact of caregiving and the health of caregivers.…”

Section: Introductionmentioning

confidence: 99%

“…Moreover, the SRB was used for construct validation of the CarerQol. Results showed that better scores on the CarerQol instrument were associated with better health and lower SRB among caregivers of children with craniofacial malformations (Payakachat et al 2011). …”

Section: Introductionmentioning

confidence: 99%

“…This study is the first to investigate construct validation of the CarerQol among parents of children with ASDs. This study will also add to the knowledge on measurement of the impact of caregiving among caregivers of children in general, by using more elaborate tests than the prior CarerQol validation study among parents (Payakachat et al 2011); for example, by studying multivariate associations of associates of the CarerQol instrument and performing subgroup analyses among caregivers.…”

Section: Introductionmentioning

confidence: 99%

See 4 more Smart Citations

Caring for a Child with Autism Spectrum Disorder and Parents’ Quality of Life: Application of the CarerQol

Hoefman

Payakachat

Exel

et al. 2014

J Autism Dev Disord

Self Cite

115

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This study describes the impact of caregiving on parents of children with autism spectrum disorders (ASDs). Secondly, we investigate construct validation of the care-related quality of life instrument (CarerQol) measuring impact of caregiving. Primary caregivers of children with ASDs were included. Many parents experienced considerable problems combining daily activities with care, had financial problems or suffered from depressive mood. Validity tests showed that a higher impact of caring on the CarerQol was positively associated with higher subjective burden and lower family quality of life. Most of the associations between CarerQol scores and background characteristics confirmed previous research. The CarerQol validly measures the impact of caregiving for children with ASDs on caregivers in our sample. The CarerQol may therefore be useful for including parent outcomes in research on ASDs.

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