Measuring information needs among cancer patients

Mesters, Ilse; Borne, Bart van den; Boer, Maarten P. de; Pruyn, J.F.A.

doi:10.1016/s0738-3991(00)00166-x

Cited by 147 publications

(128 citation statements)

References 24 publications

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“…This is in line with previous research suggesting a shift from disease-related information needs to information on long term effects in the first year of followup 21 .…”

Section: Needs and Preferences; Contentsupporting

confidence: 92%

Patients’ needs and preferences in routine follow-up for early breast cancer; an evaluation of the changing role of the nurse practitioner

Hezewijk¹,

Ranke²,

Nes³

et al. 2011

European Journal of Surgical Oncology (EJSO)

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, et al.. Patients' needs and preferences in routine follow-up for early breast cancer; an evaluation of the changing role of the nurse practitioner. EJSO -European Journal of Surgical Oncology, WB Saunders, 2011, 37 (9) This is a PDF file of an unedited manuscript that has been accepted for publication. As a service to our customers we are providing this early version of the manuscript. The manuscript will undergo copyediting, typesetting, and review of the resulting proof before it is published in its final form. Please note that during the production process errors may be discovered which could affect the content, and all legal disclaimers that apply to the journal pertain. M A N U S C R I P T A C C E P T E D ACCEPTED MANUSCRIPT

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“…This is in line with previous research suggesting a shift from disease-related information needs to information on long term effects in the first year of followup 21 .…”

Section: Needs and Preferences; Contentsupporting

confidence: 92%

Patients’ needs and preferences in routine follow-up for early breast cancer; an evaluation of the changing role of the nurse practitioner

Hezewijk¹,

Ranke²,

Nes³

et al. 2011

European Journal of Surgical Oncology (EJSO)

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“…We found that only one patient desired all the information about her cancer and half of the patients rated less than 50% of the information as very important, suggesting that need for information decreases over time after a diagnosis of breast cancer. Indeed, Mesters et al (2001) also reported that the group of patients expressing no need for information increased 1 year after treatment. In our study, the median time from surgical treatment to follow-up was 3 years and ranged from 2 to 4 years, which may explain the seemingly further decrease of need for information.…”

Section: Discussionmentioning

confidence: 97%

“…The 'Expected benefits from routine followup' and 'Needs and preferences in routine follow-up' were measured with a self-developed questionnaire, because existing questionnaires (Degner et al, 1997;Graydon et al, 1997;Mesters et al, 2001) were unsuitable for measuring specific needs and benefits in breast cancer routine follow-up. In a pilot study, the feasibility of the questionnaire was tested, for acceptability and understanding, among 15 women who were in follow-up at our breast clinic and who were treated for invasive breast cancer before January 1998.…”

Section: Measurementsmentioning

confidence: 99%

Patient's needs and preferences in routine follow-up after treatment for breast cancer

et al. 2004

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The purpose of the study was to analyse the needs of women who participated in a routine follow-up programme after treatment for primary breast cancer. A cross-sectional survey was conducted using a postal questionnaire among women without any sign of relapse during the routine follow-up period. The questionnaire was sent 2 -4 years after primary surgical treatment. Most important to patients was information on long-term effects of treatment and prognosis, discussion of prevention of breast cancer and hereditary factors and changes in the untreated breast. Patients preferred additional investigations (such as X-ray and blood tests) to be part of routine follow-up visits. Less satisfaction with interpersonal aspects and higher scores on the Hospital Anxiety and Depression Scale (HADS) scale were related to stronger preferences for additional investigation. Receiving adjuvant hormonal or radiotherapy was related to a preference for a more intensive follow-up schedule. There were no significant differences between patients treated with mastectomy compared to treated with breast-conserving therapy. During routine follow-up after a diagnosis of breast cancer, not all patients needed all types of information. When introducing alternative follow-up schedules, individual patients' information needs and preferences should be identified early and incorporated into the follow-up routine care, to target resources and maximise the likelihood that positive patient outcomes will result.

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“…1,[6][7][8][9][10][11][12][13][17][18][19][20][21][22][23][24][25][26][27][28][29][30][31][32][33][34][35] The patients' expectations also depend on the type of the disease, 15,20 or the type of the malignancy. 13,15,19,25 Most of the literature data on the attitude of breast cancer patients towards being informed, and participation in treatment decision come from Canada, 15,17,18,26,32 the US, 7,10,25,[27][28][29][30][31]34 Australia, 6,9,…”

Section: Discussionmentioning

confidence: 99%

“…12 In breast, head and neck cancer and Hodgkin's' disease patients, greater information needs related to higher level of anxiety, depression and psychological complaints. 13 In a retrospective analysis, patients receiving less detailed information had significantly higher satisfaction with the consultation. 32 The conclusion was drawn that more emphasis should be placed on soliciting patient preferences for information and decision-making involvement, and tailoring both to the needs of the individual patient.…”

mentioning

confidence: 97%

Collaborative/active participationper se does not decrease anxiety in breast cancer

Kahán

Varga

Dudás

et al. 2006

Pathol. Oncol. Res.

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Measuring information needs among cancer patients

Cited by 147 publications

References 24 publications

Patients’ needs and preferences in routine follow-up for early breast cancer; an evaluation of the changing role of the nurse practitioner

Patients’ needs and preferences in routine follow-up for early breast cancer; an evaluation of the changing role of the nurse practitioner

Patient's needs and preferences in routine follow-up after treatment for breast cancer

Collaborative/active participationper se does not decrease anxiety in breast cancer

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