Measuring patient-centredness, the neglected outcome in fertility care: a random multicentre validation study

Empel, I.W.H. van; Aarts, Johanna W.M.; Cohlen, Ben J; Huppelschoten, Aleida G.; Laven, Joop; Nelen, W.L.D.M.; Kremer, J.A.M.

doi:10.1093/humrep/deq219

Cited by 104 publications

(123 citation statements)

References 46 publications

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“…Because IVF, ICSI, and TESE are more intrusive procedures than IUI, we were expecting that patients undergoing more invasive treatments would be more likely to discontinue them. However, evidence suggests that couples receiving ART treatments are usually more involved and satisfied with medical care than other patients [23,49,50]. Given that positive experiences with fertility care are related to higher intentions to comply with treatment [51], the physical burden associated with treatments might not be as relevant as previously assumed.…”

Section: Discussionmentioning

confidence: 95%

Couples’ discontinuation of fertility treatments: a longitudinal study on demographic, biomedical, and psychosocial risk factors

Pedro

Sobral

Mesquita‐Guimarães

et al. 2016

J Assist Reprod Genet

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Section: Discussionmentioning

confidence: 95%

Couples’ discontinuation of fertility treatments: a longitudinal study on demographic, biomedical, and psychosocial risk factors

Pedro

Sobral

Mesquita‐Guimarães

et al. 2016

J Assist Reprod Genet

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“…The MHPs are using high quality evidence and validated assessment tools to assist in clinical decisionmaking about which support to provide at different time points (56). For example, tools to identify concerns about fertility treatment (e.g., Concerns with Assisted Reproduction Treatment scale, CART [57]), to assess fertility quality of life (e.g., Fertility Quality of Life tool, FertiQoL [58]) during or after treatment, or patient evaluations of care (e.g., Patient Centeredness Questionnaire-Infertility [59]). The MHPs are also now called on to provide consultancy in clinics and industry on many psychosocial issues (e.g., training fertility staff in communication and emphatic skills [60]).…”

Section: Ivf and The Integration Of Mhps In Fertility Clinicsmentioning

confidence: 99%

“…Second, it places a higher emphasis on targeting clinic and organizational factors (e.g., treatment continuity, quality of information) to reduce the burden of treatment, consistent with the more patient-centered care approach in other areas of health. In recent years multiple studies (59,94,95) have addressed patient-centered care in infertility, examining patients' care preferences, and the impact of patient-centered care on treatment outcomes such as discontinuation (96). Future research needs to develop theoretically based interventions appropriate for staff and carry out evaluation studies that take an integrated approach before wide-scale implementation of these interventions can be done effectively.…”

Section: Integrated Approach To Fertility Carementioning

confidence: 99%

Evolution of psychology and counseling in infertility

Boivin

Gameiro

2015

Fertility and Sterility

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“…The top-priority of safety, effectiveness and patient centeredness is not surprising given the historical focus on effectiveness and safety (Nygren et al, 2011) and the recent popularity of patient centeredness in infertility care (Dancet et al, 2010(Dancet et al, , 2011a(Dancet et al, ,b, 2012Van Empel et al, 2010;Aarts et al, 2012a).…”

Section: Noveltymentioning

confidence: 99%

Quality indicators for all dimensions of infertility care quality: consensus between professionals and patients

Dancet¹,

D’Hooghe²,

Spiessens³

et al. 2013

Human Reproduction

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study question: What is the relative importance of the six dimensions of quality of care according to different stakeholders and can a quality indicator set address all six quality dimensions and incorporate the views from professionals working in different disciplines and from patients?summary answer: Safety, effectiveness and patient centeredness were the most important quality dimensions. All six quality dimensions can be assessed with a set of 24 quality indicators, which is face valid and acceptable according to both professionals from different disciplines and patients.what is known already: To our knowledge, no study has weighted the relative importance of all quality dimensions to infertility care. Additionally, there are very few infertility care-specific quality indicators and no quality indicator set covers all six quality dimensions and incorporated the views of professionals and patients. study design, size and duration: A three-round iterative Delphi survey including patients and professionals from four different fields, conducted in two European countries over the course of 2011 and 2012. participants/materials, settings and methods: Dutch and Belgian gynaecologists, embryologists, counsellors, nurses/midwifes and patients took part (n ¼ 43 in round 1 and finally 30 in round 3). Respondents ranked the six quality dimensions twice for importance and their agreement was evaluated. Furthermore, in round 1, respondents gave suggestions, which were subsequently uniformly formulated as quality indicators. In rounds 2 and 3, respondents rated the quality indicators for preparedness to measure and for importance (relation to quality and prioritization for benchmarking). Providing feedback allowed selecting indicators based on consensus between stakeholder groups. Measurable indicators, important to all stakeholder groups, were selected for each quality dimension.main results: All stakeholder groups and most individuals agreed that safety, effectiveness and patient centeredness were the most important quality dimensions. A total of 498 suggestions led to the development of 298 indicators. Professionals were sufficiently prepared to measure 204 of these indicators. Based on importance, 52 (7-15 per dimension; round 2) and finally 24 (4 per dimension; round 3) quality indicators were selected.limitations, reasons for caution: The final quality indicator set does not cover the entire care process, but rather takes a 'sample' of each quality dimension. Although the quality indicators are face valid and acceptable, their psychometric characteristics need to be tested by further research.wider implications of the findings: Quality management should focus on safety, effectiveness and patient centeredness of care. Clinics can use the quality indicator set to assess all quality dimensions of their care.

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Measuring patient-centredness, the neglected outcome in fertility care: a random multicentre validation study

Cited by 104 publications

References 46 publications

Couples’ discontinuation of fertility treatments: a longitudinal study on demographic, biomedical, and psychosocial risk factors

Couples’ discontinuation of fertility treatments: a longitudinal study on demographic, biomedical, and psychosocial risk factors

Evolution of psychology and counseling in infertility

Quality indicators for all dimensions of infertility care quality: consensus between professionals and patients

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