Measuring quality of life in patients with head and neck cancer: Update of the EORTC QLQ-H&amp;N Module, Phase III

Schnittger, Susanne; Araújo, Cláudia; Arrarás, Juan Ignacio; Baumann, Ingo; Boehm, Andreas; Herlofson, Bente Brokstad; Silva, Joaquim Castro; Chie, Wei‐Chu; Fisher, Susan E.; Guntinas‐Lichius, Orlando; Hammerlid, Eva; Irarrázaval, María Elisa; Hjermstad, Marianne Jensen; Jensen, Kenneth; Kiyota, Naomi; Licitra, Lisa; Nicolatou‐Galitis, Ourania; Pinto, Monica; Santos, Marcos; Schmalz, Claudia; Sherman, Allen C.; Tomaszewska, Iwona M.; Leeuw, Irma M. Verdonck‐de; Yarom, Noam; Zotti, Paola; Hofmeister, Dirk

doi:10.1002/hed.23762

Cited by 71 publications

(72 citation statements)

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“…An updated, preliminary European Organization for Research and Treatment of Cancer Quality of Life Questionnaire Head and Neck Module 43 (EORTC QLQ-H&N43) measures head and neck malignancies excluding eye and thyroid cancers. It contains additional questions to the previous version concerning problems with skin, neurological and shoulder problems [6]. Because there is no gold standard instrument currently available in the literature, it is difficult to choose a specific multi-domain questionnaire to outline head and neck cancer patient's QoL after treatment.…”

Section: Introductionmentioning

confidence: 99%

“…Measuring HRQoL varies across different studies, and the content of self-administered questionnaires is variable. Diseasespecific and generic HRQoL tools have been developed over the years [4][5][6][7]. An updated, preliminary European Organization for Research and Treatment of Cancer Quality of Life Questionnaire Head and Neck Module 43 (EORTC QLQ-H&N43) measures head and neck malignancies excluding eye and thyroid cancers.…”

Section: Introductionmentioning

confidence: 99%

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Trends in the 15D health-related quality of life over the first year following diagnosis of head and neck cancer

Aro

Bäck

Loimu

et al. 2015

Eur Arch Otorhinolaryngol

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Management of head and neck cancer influences both physical and mental wellbeing. Measuring the health-related quality of life (HRQoL) is important, as various treatment modalities are associated with significant morbidity and mortality. In this prospective cohort study, we tested the feasibility of the generic 15D HRQoL instrument in 214 head and neck cancer patients managed with surgery, definitive (chemo)radiotherapy, or with combined modality treatment. HRQoL was assessed at baseline and three times after treatment onset during 1 year, and compared with that of general population standardized for age and sex. At baseline, the patients' mean 15D score was significantly worse compared with general population. Overall HRQoL was at lowest at 3 months after treatment onset, it gradually improved towards 12 months but never reached baseline levels. The dimensions "vitality", "distress", "depression" and "sexual activity" showed marked deterioration at 3 months after the treatment onset, but improved gradually during 12 months. The 15D instrument seems useful for evaluation of HRQoL of head and neck cancer patients. Dimensions reflecting mental wellbeing improved gradually after 3 months, but they seldom reached baseline levels. The support for patients at the time of diagnosis, during treatment, and recovery is emphasized.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Trends in the 15D health-related quality of life over the first year following diagnosis of head and neck cancer

Aro

Bäck

Loimu

et al. 2015

Eur Arch Otorhinolaryngol

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“…Nevertheless, this recent review highlighted some of the module's psychometric problems, such as high percentage of missing values and low internal consistency of some scales. This initiated a joint taskforce by the EORTC Head and Neck Cancer Group and the EORTC Quality of Life Group to revise the module . Considering that the module was first developed in 1994, the group first conducted a literature review to identify potentially relevant new issues for patients with head and neck cancers .…”

Section: Introductionmentioning

confidence: 99%

“…This initiated a joint taskforce by the EORTC Head and Neck Cancer Group and the EORTC Quality of Life Group to revise the module . Considering that the module was first developed in 1994, the group first conducted a literature review to identify potentially relevant new issues for patients with head and neck cancers . Afterward, a provisional updated module was created using the EORTC item bank.…”

Section: Introductionmentioning

confidence: 99%

European Organization for Research and Treatment of Cancer Quality of Life Questionnaire–Head and Neck Module, updated version: Preliminary psychometric data from Serbian laryngectomized patients

et al. 2015

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“…It contains 13 symptom scales (pain, swallowing, senses, speech, social eating, social contact, physical contact, skin, shoulder, body image, teeth, dry mouth and sticky saliva, and anxiety) and 6 symptom items (trismus, cough, lymphedema, wound healing, neurological problems and weight) [34]. …”

Section: Methodsmentioning

confidence: 99%

Efficacy, cost-utility and reach of an eHealth self-management application 'Oncokompas' that helps cancer survivors to obtain optimal supportive care: study protocol for a randomised controlled trial

Hout

Uden–Kraan

Witte

et al. 2017

Trials

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BackgroundCancer survivors have to deal with a wide range of physical symptoms, psychological, social and existential concerns, and lifestyle issues related to cancer and its treatment. Therefore, it is essential that they have access to optimal supportive care services. The eHealth self-management application Oncokompas was developed to support cancer survivors with where they need to turn to for advice and guidance, as well as to increase their knowledge on the availability of optimal support. A randomised controlled trial will be conducted to assess the efficacy, cost-utility and reach of Oncokompas as an eHealth self-management application compared with care as usual among cancer survivors.Methods/designAdult cancer survivors diagnosed with breast, colorectal or head and neck cancer or lymphoma who are at 3 months to 5 years since curative treatment will be included. In total, 544 cancer survivors will be randomly assigned to the intervention group or a wait-list control group. The primary outcome measure is patient activation. Secondary outcome measures include self-efficacy, personal control, perceived patient-physician interaction, need for supportive care, mental adjustment to cancer and health-related quality of life. Furthermore, cost-utility outcomes will be assessed. Reach is defined as the percentage of cancer survivors who get access to Oncokompas within the context of this trial. Questionnaires will be administered at baseline, post-intervention and at 3- and 6-month follow-up.DiscussionIn this study, we will evaluate the efficacy and cost-utility of Oncokompas among cancer survivors, as well as the reach of Oncokompas. These are essential first steps in the translation of research into practice and contribute to sustainable adoption, implementation and maintenance of an evidence-based Oncokompas.Trial registrationNetherlands Trial Register identifier: NTR5774. Registered on 8 March 2016.Electronic supplementary materialThe online version of this article (doi:10.1186/s13063-017-1952-1) contains supplementary material, which is available to authorized users.

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Measuring quality of life in patients with head and neck cancer: Update of the EORTC QLQ-H&N Module, Phase III

Abstract: The preliminary EORTC QLQ-H&N43 can now be used in academic research. Psychometrics will be tested in a larger field study.

Cited by 71 publications

References 16 publications

Trends in the 15D health-related quality of life over the first year following diagnosis of head and neck cancer

Trends in the 15D health-related quality of life over the first year following diagnosis of head and neck cancer

European Organization for Research and Treatment of Cancer Quality of Life Questionnaire–Head and Neck Module, updated version: Preliminary psychometric data from Serbian laryngectomized patients

Efficacy, cost-utility and reach of an eHealth self-management application 'Oncokompas' that helps cancer survivors to obtain optimal supportive care: study protocol for a randomised controlled trial

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