Measuring quality of life of people with predementia and dementia and their caregivers: a systematic review protocol

Landeiro, Filipa; Walsh, Katie; Ghinai, Isaac; Mughal, Seher; Nye, Elsbeth; Wace, Helena; Roberts, Nia; Lecomte, Pascal; Wittenberg, Raphael; Wolstenholme, Jane; Handels, Ron; Roncancio-Diaz, Emilse; Potashman, Michele; Tockhorn‐Heidenreich, Antje; Gray, Alastair

doi:10.1136/bmjopen-2017-019082

Cited by 21 publications

(18 citation statements)

References 20 publications

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“…However, interest in measuring the quality of life as a concept has been growing along with numerous improvements in various aspects and levels of life. [11] The WHO has defined the quality of life as an individual's imaginations of his/her life status considering the culture and the value system in which they live and the relationship between these perceptions, expectations, and priorities. [12] It is also noteworthy that the quality of life is a multidimensional concept and reflects an individual's level of satisfaction and current functioning.…”

Section: Introductionmentioning

confidence: 99%

Health literacy status and its relationship with quality of life among nurses in teaching hospitals of Shiraz University Of Medical Sciences

Yusefi

Ebrahim

Bastani

et al. 2019

Iranian J Nursing Midwifery Res

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Background:Health literacy can be considered as a factor affecting healthcare providers' decision-making. The aim of this study was to investigate health literacy status and its relationship with quality of life among the nurses working in teaching hospitals affiliated with Shiraz University of Medical Sciences in Iran.Materials and Methods:This cross-sectional study was conducted in 2017. To this end, 185 nurses from hospitals were selected by stratified random sampling. The data collection instruments included the standardized Health Literacy Questionnaire and the 36-Item Short Form Health Survey. The data were analyzed through descriptive statistics as well as t test, analysis of variance, Pearson correlation coefficient, and multivariate linear regression analysis using SPSS23 (α = 5%).Results:The mean scores for health literacy and quality of life were 70.06 (12.98) and 60.86 (17.26), respectively. A significant relationship was observed between the health literacy and quality of life (p <0.001), Access (p = 0.004), reading skills (p = 0.004), understanding (p = 0.016), and application of health information (p = 0.012) as the dimensions of health literacy were identified among the predictors of quality of life. In addition, there was a significant relationship among age (r = 0.22, p = 0.008), work experience (r = 0.27, p = 0.002), and employment relationship (F = 3.89, p = 0.005) and the mean score for nurses' health literacy status.Conclusions:A significant relationship was observed between health literacy and quality of life in nurses. Healthcare policy-makers are suggested to take measures to develop programs on promoting health literacy and related skills to improve the status of quality of life among nurses.

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Section: Introductionmentioning

confidence: 99%

Health literacy status and its relationship with quality of life among nurses in teaching hospitals of Shiraz University Of Medical Sciences

Yusefi

Ebrahim

Bastani

et al. 2019

Iranian J Nursing Midwifery Res

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“…Search strategy, selection criteria and quality assessment This systematic literature review followed the reporting guidelines of the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) statement [19]. The protocol was registered with the PROSPERO international prospective register of systematic reviews (registration number CRD42017071416) and published in BMJ Open [20].…”

Section: Methodsmentioning

confidence: 99%

“…Further details of the search strategy (including the search terms used and results yielded), study participants, study designs and quality assessment of the studies included in this review are freely available online in the protocol [20]; see also Additional file 1: Appendix 1.…”

Section: Methodsmentioning

confidence: 99%

Health-related quality of life in people with predementia Alzheimer’s disease, mild cognitive impairment or dementia measured with preference-based instruments: a systematic literature review

Landeiro¹,

Mughal²,

Walsh³

et al. 2020

Alz Res Therapy

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Background Obtaining reliable estimates of the health-related quality of life (HR-QoL) of people with predementia Alzheimer’s disease [AD] (preclinical or prodromal AD), mild cognitive impairment (MCI) and dementia is essential for economic evaluations of related health interventions. Aims To provide an overview of which quality of life instruments are being used to assess HR-QoL in people with predementia AD, MCI or dementia; and, to summarise their reported HR-QoL levels at each stage of the disease and by type of respondent. Methods We systematically searched for and reviewed eligible studies published between January 1990 and the end of April 2017 which reported HR-QoL for people with predementia AD, MCI or dementia. We only included instruments which are preference-based, allowing index scores/utility values to be attached to each health state they describe based on preferences obtained from population surveys. Summary results were presented by respondent type (self or proxy), type of instrument, geographical location and, where possible, stage of disease. Health state utility values derived using the EuroQoL 5-Dimensions (EQ-5D) were meta-analysed by pooling reported results across all studies by disease severity (MCI, mild, mild to moderate, moderate, severe dementia, not specified) and by respondent (person with dementia, carer, general public, not specified), using a fixed-effects approach. Results We identified 61 studies which reported HR-QoL for people with MCI or dementia using preference-based instruments, of which 48 used the EQ-5D. Thirty-six studies reported HR-QoL for mild and/or moderate disease severities, and 12 studies reported utility values for MCI. We found systematic differences between self-rated and proxy-rated HR-QoL, with proxy-rated utility valued being significantly lower in more severe disease states. Conclusions A substantial literature now exists quantifying the impact of dementia on HR-QoL using preference-based measures, giving researchers and modellers a firmer basis on which to select appropriate utility values when estimating the effectiveness and cost-effectiveness of interventions in this area. Further research is required on HR-QoL of people with preclinical and prodromal AD and MCI, possible differences by type of dementia, the effects of comorbidities, study setting and the informal caregiver’s own HR-QoL, including any effect of that on their proxy-ratings.

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“…Therefore, person-centered approaches (Kitwood, 1997), both for diagnosis and treatment, still seem to be among the most valuable solutions for people with dementia. Moreover, it is necessary to consider that, to date, one of the arrangements that is most effective in dementia treatment is to maintain a high quality of life for people already suffering from this illness (Landeiro et al, 2018).…”

Section: Introductionmentioning

confidence: 99%

Take the First-Person Perspective to Become Dementia-Friendly: The Use of 360° Video for Experiencing Everyday-Life Challenges With Cognitive Decline

et al. 2020

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The current spread of dementia is engendering an emergency that is not limited to the medical issues but also involves its social dimension. Accordingly, it is necessary to promote a perspective change about the disease that supports a more inclusive view of people with dementia. To ensure this, Dementia-Friendly Communities (DFCs) have recently been developed. Nonetheless, it is not always effortless to deal with people with dementia in an inclusive way because of misconceptions about how they perceive everyday contexts and react in everyday situations. We asked 170 individuals (aged between 13 and 75) to "put themselves in the shoes of a person with dementia" for a few minutes, facilitating this through the use of a 360 • video, and to try to experience how activities such as going shopping feel from the first-person perspective. Before and after the experience, participants expressed their opinions about the needs and the autonomies that are deemed to be granted to a person with dementia. The results revealed changes to social perspective after having experienced firsthand what living with dementia could be like. A deeper comprehension of what it is like to live with dementia appeared to be gained, and participants' beliefs about the needs and daily autonomies of those with dementia were modified after the experience. It is possible to conclude that, through the change of perspective, people are more willing to be inclusive toward people with dementia, as is wished for in the DFC approach, although a wider formative intervention on how to be really inclusive still seems to be required.

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Measuring quality of life of people with predementia and dementia and their caregivers: a systematic review protocol

Cited by 21 publications

References 20 publications

Health literacy status and its relationship with quality of life among nurses in teaching hospitals of Shiraz University Of Medical Sciences

Health literacy status and its relationship with quality of life among nurses in teaching hospitals of Shiraz University Of Medical Sciences

Health-related quality of life in people with predementia Alzheimer’s disease, mild cognitive impairment or dementia measured with preference-based instruments: a systematic literature review

Take the First-Person Perspective to Become Dementia-Friendly: The Use of 360° Video for Experiencing Everyday-Life Challenges With Cognitive Decline

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