Measuring self-esteem after spinal cord injury: Development, validation and psychometric characteristics of the SCI-QOL Self-esteem item bank and short form

Kalpakjian, Claire Z.; Tate, Denise G.; Kisala, Pamela A.; Tulsky, David S.

doi:10.1179/2045772315y.0000000014

Cited by 16 publications

(12 citation statements)

References 33 publications

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“…Kisala et al , 38 Victorson et al , 39 Kalpakjian et al ). 40 Bivariate correlations between Firestar-simulated CAT scores and SF scores on each domain can be found in Table 8 .…”

Section: Phase Iv: Psychometric Analysis - Resultsmentioning

confidence: 99%

Methodology for the development and calibration of the SCI-QOL item banks

Tulsky¹,

Kisala²,

Victorson³

et al. 2015

The Journal of Spinal Cord Medicine

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ObjectiveTo develop a comprehensive, psychometrically sound, and conceptually grounded patient reported outcomes (PRO) measurement system for individuals with spinal cord injury (SCI).MethodsIndividual interviews (n = 44) and focus groups (n = 65 individuals with SCI and n = 42 SCI clinicians) were used to select key domains for inclusion and to develop PRO items. Verbatim items from other cutting-edge measurement systems (i.e. PROMIS, Neuro-QOL) were included to facilitate linkage and cross-population comparison. Items were field tested in a large sample of individuals with traumatic SCI (n = 877). Dimensionality was assessed with confirmatory factor analysis. Local item dependence and differential item functioning were assessed, and items were calibrated using the item response theory (IRT) graded response model. Finally, computer adaptive tests (CATs) and short forms were administered in a new sample (n = 245) to assess test-retest reliability and stability.Participants and ProceduresA calibration sample of 877 individuals with traumatic SCI across five SCI Model Systems sites and one Department of Veterans Affairs medical center completed SCI-QOL items in interview format.ResultsWe developed 14 unidimensional calibrated item banks and 3 calibrated scales across physical, emotional, and social health domains. When combined with the five Spinal Cord Injury – Functional Index physical function banks, the final SCI-QOL system consists of 22 IRT-calibrated item banks/scales. Item banks may be administered as CATs or short forms. Scales may be administered in a fixed-length format only.ConclusionsThe SCI-QOL measurement system provides SCI researchers and clinicians with a comprehensive, relevant and psychometrically robust system for measurement of physical-medical, physical-functional, emotional, and social outcomes. All SCI-QOL instruments are freely available on Assessment CenterSM.

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“…Kisala et al , 38 Victorson et al , 39 Kalpakjian et al ). 40 Bivariate correlations between Firestar-simulated CAT scores and SF scores on each domain can be found in Table 8 .…”

Section: Phase Iv: Psychometric Analysis - Resultsmentioning

confidence: 99%

Methodology for the development and calibration of the SCI-QOL item banks

Tulsky¹,

Kisala²,

Victorson³

et al. 2015

The Journal of Spinal Cord Medicine

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“…The project team made a decision to include only those items related to enacted and perceived stigma, or the way an individual believes they are being perceived or treated by others , in the new measure of SCI-related stigma. In contrast, items related to internalized stigma, or one's perception of oneself , were included in the Self-Esteem item bank 35 which assesses myriad aspects of an individual's self-appraisal.…”

Section: Methodsmentioning

confidence: 99%

Measuring stigma after spinal cord injury: Development and psychometric characteristics of the SCI-QOL Stigma item bank and short form

Kisala¹,

Tulsky²,

Pace³

et al. 2015

The Journal of Spinal Cord Medicine

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ObjectiveTo develop a calibrated item bank and computer adaptive test (CAT) to assess the effects of stigma on health-related quality of life in individuals with spinal cord injury (SCI).DesignGrounded-theory based qualitative item development methods, large-scale item calibration field testing, confirmatory factor analysis, and item response theory (IRT)-based psychometric analyses.SettingFive SCI Model System centers and one Department of Veterans Affairs medical center in the United States.ParticipantsAdults with traumatic SCI.Main Outcome MeasuresSCI-QOL Stigma Item BankResultsA sample of 611 individuals with traumatic SCI completed 30 items assessing SCI-related stigma. After 7 items were iteratively removed, factor analyses confirmed a unidimensional pool of items. Graded Response Model IRT analyses were used to estimate slopes and thresholds for the final 23 items.ConclusionsThe SCI-QOL Stigma item bank is unique not only in the assessment of SCI-related stigma but also in the inclusion of individuals with SCI in all phases of its development. Use of confirmatory factor analytic and IRT methods provide flexibility and precision of measurement. The item bank may be administered as a CAT or as a 10-item fixed-length short form and can be used for research and clinical applications.

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“…Authors such as Kalpakjian et al (2015) note that low self-esteem has frequently been linked to depression in various studies and among different populations and that there is evidence that self-esteem also plays a role in the wellbeing of persons with SCI. Thus, the literature review by Peter et al (2012) regarding psychological resources in persons with SCI demonstrates a positive association between self-esteem and mental wellbeing, health, community participation, power, hope and efficient coping and suggests that self-esteem is often compromised after suffering SCI.…”

Section: Discussionmentioning

confidence: 99%

“…Low self-esteem has been strongly associated with depression in different studies and among different populations, as have many other psychological states, both positive and negative. However, despite the popularity of self-esteem as a psychological variable and its relevance for understanding processes of adaptation and adjustment after injury, literature on this topic is scant (Kalpakjian, Tate, Kisala & Tulsky, 2015).…”

Section: Introductionmentioning

confidence: 99%

Relaciones entre sexismo e ideología de género con autoconcepto y autoestima en personas con Lesión Medular

2017

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Título: Relaciones entre sexismo e ideología de género con autoconcepto y autoestima en personas con Lesión Medular. Resumen: El proceso de adaptación a una discapacidad física sobrevenida es complejo y multidimensional. En él influyen muchas variables que pueden condicionar un adecuado ajuste vital y conseguir bienestar psicológico. Este estudio aborda los efectos específicos del sexismo y los estereotipos de género en la autoestima y autoconcepto de las personas con lesión medular (LM). El diseño es transversal y correlacional. La muestra está constituida por 127 personas con lesión medular de larga evolución, 95 varones y 32 mujeres. Los resultados de los MANOVAS no muestran diferencias estadísticamente significativas en función del género en las siguientes variables: Autoestima, Autoconcepto, Sexismo Tradicional y Neosexismo. Las relaciones entre variables sugieren que existen relaciones negativas entre neosexismo, autoestima y autoconcepto emocional y familiar en varones con LM, pero no en mujeres con LM. La discusión plantea el relevante papel que pueden tener los programas de intervención que fomenten la igualdad de género para disminuir el sexismo. Palabras clave: Género; discapacidad; lesión medular; autoestima; autoconcepto; sexismo; neosexismo. Abstract:The process of adapting to a physical disability is complex and multi-dimensional. It is influenced by many variables that affect adequate life adjustment and psychological wellbeing. This study addresses the specific effects of sexism and gender stereotypes on self-esteem and selfconcept in persons with spinal cord injury (SCI). The research design is cross-sectional and correlational. The sample comprises 127 persons, including 95 men and 32 women, with a long-term spinal injury. The results of the MANOVAs do not demonstrate statistically significant differences based on sex for the following variables: self-esteem, self-concept, traditional sexism and neosexism. The relationships among variables suggest that negative relationships exist between neosexism and family and emotional self-concept and self-esteem among men with SCI, though not among women with SCI. The discussion emphasizes the important role of intervention programs that strengthen gender equality in order to reduce sexism.

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Measuring self-esteem after spinal cord injury: Development, validation and psychometric characteristics of the SCI-QOL Self-esteem item bank and short form

Cited by 16 publications

References 33 publications

Methodology for the development and calibration of the SCI-QOL item banks

Methodology for the development and calibration of the SCI-QOL item banks

Measuring stigma after spinal cord injury: Development and psychometric characteristics of the SCI-QOL Stigma item bank and short form

Relaciones entre sexismo e ideología de género con autoconcepto y autoestima en personas con Lesión Medular

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