Measuring the impact of systemic sclerosis on oral health‐related quality of life in a UK population

Abdouh, Ismail; Porter, Stephen; Fedele, Stefano; Elgendy, Nadia; Aboalshamat, Khalid; Babkair, Hamzah; Ríordáin, Rícheal Ní

doi:10.1111/jop.13177

Cited by 6 publications

(8 citation statements)

References 28 publications

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“…Two cross-sectional studies found that oral health-related quality of life (OHQOL) was significantly worse in people with scleroderma compared with controls. 8,20 This finding was also reported in two narrative reviews 3,17 and one systematic literature review. 4 Furthermore, low OHQOL was significantly associated with low global quality of life in two cross-sectional studies 2,24 and in three literature reviews.…”

Section: Resultssupporting

confidence: 73%

“…Beaty et al’s 2 findings provide support for the results of Amin et al’s 22 research which demonstrated that ‘noticeability’ and ‘severity’ of facial differences had a significantly negative effect on self-esteem and anxiety. Similarly, Abdouh et al 8 revealed that 50% of participants with scleroderma reported difficulties in smiling without embarrassment, in comparison to just 6% of participants without scleroderma.…”

Section: Resultsmentioning

confidence: 94%

“…Eleven studies in this scoping review included discussions of quality of life or psychological well-being. [2][3][4]8,14,17,20,[22][23][24][25] Ten studies used one or more psychometric measures of psychological well-being or quality of life, and most used either the Oral Health Impact Profile (OHIP, N = 7) or the Mouth Handicap in Systemic Sclerosis (MHISS, N = 6) questionnaire. Only one study used qualitative methods to investigate the impact of orofacial symptoms on the lives of people living with scleroderma; this study also used both the OHIP-14 and MHISS to explore the impact of scleroderma on quality of life.…”

Section: Patient Experiences Quality Of Life and Wellbeingmentioning

confidence: 99%

“…The mutuality of the relationship between psychological well-being and oral health in people with scleroderma was highlighted in two cross-sectional studies 8,23 and two literature reviews. 4,14 Yuen et al 23 explored factors associated with oral hygiene in 178 people with scleroderma and found that clinically significant symptoms of depression reduced the likelihood of brushing teeth twice daily by 71%.…”

Section: Patient Experiences Quality Of Life and Wellbeingmentioning

confidence: 99%

“…Seven of the studies in this scoping review discussed factors which may act as barriers to good oral and dental care for people with scleroderma (see Table 2 for a summary). 2,5,8,17,21,23,25 As discussed in the previous section, symptoms of depression 23 and increased levels of dental anxiety 8 can also constitute barriers to good dental care. Socioeconomic status (SES) may also present barriers to good oral and dental care both in terms of access to dental professionals and oral self-care.…”

Section: Barriers To Good Oral and Dental Carementioning

confidence: 99%

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Clinician and patient experiences of managing and living with oral and dental manifestations of scleroderma: A scoping review

Mills,

Price,

Aggarwal

et al. 2023

Journal of Scleroderma and Related Disorders

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Oral and dental manifestations of scleroderma are extremely common, yet they are often overlooked within rheumatology and poorly understood within dentistry. Previous research has indicated the need to understand the oral and dental experiences of people living with scleroderma and those involved in their care. This scoping review aims, for the first time, to comprehensively map what is known regarding the identification and management of oral and dental manifestations of scleroderma, how these are experienced by people living with scleroderma, and to explore key characteristics of barriers and enablers to good oral and dental care in scleroderma. A scoping review was conducted using six databases (Embase, PubMed, PsychINFO, ASSIA, Scopus and SSCI), according to the Preferred Reporting Items for Systematic Reviews and Meta-analyses – extension for Scoping Review. Grey literature was also included. Studies were eligible for inclusion if the full text and abstract were available in English, published between 2002 and 2022, and focused on the concept of oral and dental care in adults with scleroderma, either relating to identification and management, enablers and barriers to best practice, or patient experiences and well-being. Qualitative research which seeks to understand patients’ lived experiences was a notable gap in the literature. Similarly, there was a significant lack of focus on the oral and dental manifestations of scleroderma in rheumatology. Three key features were identified which would facilitate best practice in research and clinical contexts: the necessity of multidisciplinary care; the necessity of centralising patient experience; and the necessity of mitigating barriers to dental care. We conclude that increased awareness of scleroderma within dentistry and streamlining referral procedures between the disciplines of dentistry and rheumatology, to enable the early identification and management of scleroderma, are crucial.

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