Measuring the quality of life of severely mentally ill people using the Lancashire Quality of Life Profile

Oliver, Joe; Huxley, Peter; Priebe, Stefan; Kaiser, W

doi:10.1007/bf00788924

Cited by 294 publications

(183 citation statements)

References 12 publications

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“…The Rosenberg Self -Esteem scale (RSES) which was used in the present study was designed to measure a global sense of self-worth (Rosenberg, 1965). The scale consists of ten questions which in the present study were answered with yes or no by the respondent as recommended by Oliver, Huxley, Priebe, & Kaiser (1997). The RSES has two subscales, indicating positive and negative self-esteem, and the final score, which may vary from -1 (negative) to 1 (positive), is expressed as a balance between the two.…”

Section: Profiles Of Occupational Engagement In People With Severe Mementioning

confidence: 99%

Social Networks and Social Interaction among People with Psychiatric Disabilities-Comparison of Users of Day Centres and Clubhouses

Hultqvist

Markström

Tjörnstrand

et al. 2016

GJHS

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Objective: The aim of the study was to compare users of community-based mental health day centres (DCs) and clubhouses in Sweden regarding reported social networks and social interaction and the stability of these over time. A further aim was to investigate social network predictors both cross-sectionally and longitudinally.Methods: People regularly attending DCs (n=128) or clubhouses (n=57) completed questionnaires about social network and social interaction (social engagement and social functioning), self-esteem and socio-demographics at baseline and a nine-month follow-up.Results: Perceived social engagement and social functioning did not differ between the groups and remained stable over time. Fewer in the DC reported having a close friend but there was no difference regarding having recently (the past week) seen a friend. When naming "someone with whom you can share your innermost thoughts and feelings", the DC group named more professional contacts, fewer friends and more often "nobody" compared to the clubhouse group. Finally, on both occasions the DC group scored significantly lower on size of the social network compared to the clubhouse users. Self-esteem and having recently seen a friend could predict size of the social network in the cross-sectional perspective. Strong indicators of belonging to the group with a larger social network at follow-up were being a woman, attending a clubhouse programme and having scored high on social network at baseline. Conclusion and Implication for Practice:Having friends and strengthening one's self-esteem may be essential factors for the social network of people with psychiatric disabilities in a short-term perspective. Visiting clubhouses seems advantageous in a longer-term perspective.

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Section: Profiles Of Occupational Engagement In People With Severe Mementioning

confidence: 99%

Social Networks and Social Interaction among People with Psychiatric Disabilities-Comparison of Users of Day Centres and Clubhouses

Hultqvist

Markström

Tjörnstrand

et al. 2016

GJHS

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“…SQOL was measured using the Lancashire Quality of Life Profile (LQOLP ; Oliver et al 1997) in the UK700 sample, and its short version, the Manchester Short Assessment of Quality of Life (MANSA ; Priebe et al 1999), in the DIALOG sample. The LQOLP was based on Lehman's approach, operationalizing SQOL as satisfaction with life in general and in major life domains (Lehman, 1996).…”

Section: Pro Measuresmentioning

confidence: 99%

Measuring patients' views: a bifactor model of distinct patient-reported outcomes in psychosis

et al. 2010

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Background. Patient-reported outcomes (PROs) are widely used for evaluating the care of patients with psychosis. Previous studies have reported a considerable overlap in the information captured by measures designed to assess different outcomes. This may impair the validity of PROs and makes an a priori choice of the most appropriate measure difficult when assessing treatment benefits for patients. We aimed to investigate the extent to which four widely established PROs [subjective quality of life (SQOL), needs for care, treatment satisfaction and the therapeutic relationship] provide distinct information independent from this overlap.Method. Analyses, based on item response modelling, were conducted on measures of SQOL, needs for care, treatment satisfaction and the therapeutic relationship in two large samples of patients with psychosis.Results. In both samples, a bifactor model matched the data best, suggesting sufficiently strong concept factors to allow for four distinct PRO scales. These were independent from overlap across measures due to a general appraisal tendency of patients for positive or negative ratings and shared domain content. The overlap partially impaired the ability of items to discriminate precisely between patients from lower and higher PRO levels. We found that widely used sum scores were strongly affected by the general appraisal tendency.Conclusions. Four widely established PROs can provide distinct information independent from overlap across measures. The findings may inform the use and further development of PROs in the evaluation of treatments for psychosis. Key words : Bifactor model, evaluation, patient-reported outcomes, psychosis, validity. IntroductionPatient-reported outcomes (PROs) have become increasingly important in the evaluation of treatment for patients with psychosis. A PRO can be defined as ' any report coming directly from patients (i.e. study subjects) about a health condition and its treatment ' (FDA, 2006). PRO measures can be used to assess the impact of an intervention on one or more aspects of patients' health status, hereafter referred to as PRO concepts. The term ' PRO ' has been used in an increasingly inclusive way, referring not only to purely symptomatic outcomes but also to more complex multidomain concepts such as subjective quality of life (SQOL), needs for care, treatment satisfaction, or the quality of the therapeutic relationship. For measures of multidomain concepts, a conceptual framework is generally used, in which items (e.g. satisfaction with physical health) are grouped within domains (e.g. health), and domains within more general PRO concepts (e.g. SQOL). Research evaluating treatment benefits for patients with psychosis has drawn extensively on PROs . Regulatory agencies have also proposed including well-validated PROs as effectiveness end-points in randomized controlled trials (EMEA, 2005 ;FDA, 2006). At present, in the UK, service providers are expected to use PROs for assessing the quality of routine care (DoH, 2008(DoH, , 2009.When assess...

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“…Various professions create their own interpretations, with little resemblance and much fragmentation in-between disciplines (Farquhar 1995;Rapley 2003). Nonetheless, there is a growing recognition of QoL as an important indicator for the impact of treatment, the need for health care, the evaluation of interventions and for cost-benefit analyses (Allison et al 1997;Carr and Higginson 2001;Foster et al 2000;Giacomuzzi et al 2003;Oliver et al 1997;Torrens et al 1997).…”

Section: The Concept Of Qolmentioning

confidence: 99%

Exploratory Study on Drug Users’ Perspectives on Quality of Life: More than Health-Related Quality of Life?

2008

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In drug treatment outcome literature, a focus on objective and socially desirable indicators of change (e.g. no drug use) has predominated, while outcome indicators that are important for drug users themselves (e.g. quality of life, satisfaction with treatment) have largely been neglected. Nonetheless, Quality of Life (QoL) has become an important concept to evaluate effectiveness of treatment in mental health care research and disability studies. Given the almost exclusive focus on Health-related Quality of Life (HRQOL) in substance abuse research and the neglect of clients' perspectives in this field, we explore in this study the concept of QoL as perceived by drug users. Focus group discussions (n = 9) were organised in various treatment settings and community services for drug users in the region of Ghent, Belgium to identify important dimensions of QoL and their interpretation by drug users. Data were clustered and analysed based on the theoretical framework of Robert Schalock (Quality of life. Volume 1: Conceptualization and measurement, 1996). The domains 'personal relationships', 'social inclusion' and 'self-determination' were discussed most frequently by the participants. They stressed the importance of a supportive social network in particular. It can be concluded that QoL is not primarily associated by drug users with health and it involves much more than the aspects typically represented in measures of HRQOL.

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Measuring the quality of life of severely mentally ill people using the Lancashire Quality of Life Profile

Cited by 294 publications

References 12 publications

Social Networks and Social Interaction among People with Psychiatric Disabilities-Comparison of Users of Day Centres and Clubhouses

Social Networks and Social Interaction among People with Psychiatric Disabilities-Comparison of Users of Day Centres and Clubhouses

Measuring patients' views: a bifactor model of distinct patient-reported outcomes in psychosis

Exploratory Study on Drug Users’ Perspectives on Quality of Life: More than Health-Related Quality of Life?

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