Medical alert card: a valuable tool in the management of Hirschsprung’s-associated enterocolitis from parental perspective

Medical Alert Cards for Patients with Antegrade Continence Enemas (ACEs): A Useful Tool to Increase Awareness

“…Initially, medical alert cards for pediatric colorectal patients were developed for children with Hirschsprung disease, leading to improved awareness among medical staff and increased referrals to specialized centers in more than 50% of cases [13]. In contrast, the ACE alert cards presented in our study achieved a higher rate of increased awareness among providers upon review (94% vs. 83%).…”

“…These cards facilitate patient-centered decision-making by providing case-speci c information and have the potential to expedite referrals to tertiary healthcare centers. Medical alert cards, developed for both adult [9,11,18] and pediatric [13,15] patients, have demonstrated their ability to enhance patient management by providing concise, patient-speci c information [9,[19][20][21][22][23].This readily accessible information proves especially crucial in critical situations, ensuring timely and appropriate patient care [18]. Our study corroborated these ndings, with 94% of respondents acknowledging the utility of these cards in formulating optimal diagnostic and treatment strategies based on unique patient characteristics and procedure-related considerations.…”

“…To address these challenges, personalized identi cation cards have been developed for patients with speci c medical conditions or indwelling devices [6, [9][10][11][12]. These identi cation cards have demonstrated their effectiveness in enhancing communication between specialized centers and local healthcare facilities, as well as increasing awareness of potential complications [13]. Furthermore, they serve to alleviate the emotional stress experienced by caregivers [14] and empower parents to actively participate in their child's healthcare journey [9].…”

State of the Art Bowel Management for Pediatric Colorectal Problems: Hirschsprung Disease

“…While under inpatient care, the parents are taught to irrigate to perform the manipulation at home should any symptoms of enterocolitis occur before the child presents to the emergency room (ER) or surgical clinic. A recent study conducted by Muntean et al presented medical alert cards that were created for families to facilitate the diagnosis of HAEC [ 94 ]. When given out to the families, the cards were shown to increase awareness of HAEC and improve communication between peripheral hospitals and tertiary centers [ 94 ].…”

“…A recent study conducted by Muntean et al presented medical alert cards that were created for families to facilitate the diagnosis of HAEC [ 94 ]. When given out to the families, the cards were shown to increase awareness of HAEC and improve communication between peripheral hospitals and tertiary centers [ 94 ].…”