MediLinker: a blockchain-based decentralized health information management platform for patient-centric healthcare

Bautista, John Robert; Harrell, Daniel Toshio; Hanson, Ladd; Oliveira, Eliel De; Abdul-Moheeth, Mustafa; Meyer, Eric T.; Khurshid, Anjum

doi:10.3389/fdata.2023.1146023

Front. Big Data

2023

DOI: 10.3389/fdata.2023.1146023

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MediLinker: a blockchain-based decentralized health information management platform for patient-centric healthcare

John Robert Bautista

Daniel Toshio Harrell

Ladd Hanson

et al.

Abstract: Patients' control over how their health information is stored has been an ongoing issue in health informatics. Currently, most patients' health information is stored in centralized but siloed health information systems of healthcare institutions, rarely connected to or interoperable with other institutions outside of their specific health system. This centralized approach to the storage of health information is susceptible to breaches, though it can be mitigated using technology that allows for decentralized a… Show more

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2024

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Cited by 4 publications

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Integrating Shared Decision-Making into Undergraduate Oncology Education: A Pedagogical Framework

Lawson McLean,

Lawson McLean

2024

J Canc Educ

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The integration of shared decision-making (SDM) into undergraduate oncology education represents a critical evolution in medical pedagogy, reflecting the growing complexity and patient-centric focus of contemporary healthcare. This paper introduces a comprehensive pedagogical framework designed to embed SDM within the undergraduate medical curriculum, particularly in oncology, where the multiplicity of treatment options and their profound impact on patient life underscore the necessity of this approach. Grounded in a systematic literature review and aligned with established educational theories, this framework proposes twelve strategic approaches to cultivate future physicians proficient in both clinical acumen and patient-collaborative decision-making. The framework emphasizes real-world clinical experience, role-playing, case studies, and decision aids to deepen students’ understanding of SDM. It advocates for the development of communication skills, ethical deliberation, and cultural competence, recognizing the multifaceted nature of patient care. The inclusion of patient narratives and evidence-based decision-making further enriches the curriculum, offering a holistic view of patient care. Additionally, the integration of digital tools within the SDM process acknowledges the evolving technological landscape in healthcare. The paper also addresses challenges in implementing this framework, such as curricular constraints and the need for educator training. It underscores the importance of continual evaluation and adaptation of these strategies to the dynamic field of medical education and practice. Overall, this comprehensive approach aims not only to enhance the quality of oncological care but also to prepare medical students for the complexities of modern medicine, where patient involvement in decision-making is both a necessity and an expectation.

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Integrating Shared Decision-Making into Undergraduate Oncology Education: A Pedagogical Framework

Lawson McLean,

Lawson McLean

2024

J Canc Educ

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Designing a blockchain technology platform for enhancing the pre-exposure prophylaxis care continuum

Khurshid,

Harrell,

et al. 2024

JAMIA Open

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Objectives Pre-exposure prophylaxis (PrEP) is a key biomedical intervention for ending the HIV epidemic in the United States, but its uptake is impeded by systemic barriers, including fragmented workflows and ineffective data coordination. This study aims to design PrEPLinker, a blockchain-based, client-centered platform to enhance care to address these challenges by improving care coordination and enabling clients to securely manage their identity and PrEP-related data. Materials and Methods Using Houston, Texas, as a use case, we conducted a needs assessment with PrEP collaborators to evaluate existing workflows and identify barriers in the PrEP care continuum. Based on these findings, we designed PrEPinker, a blockchain-based identity framework and digital wallet using self-sovereign identity and verifiable credentials (VCs). These features enable clients to securirely control their identity data and facilitate efficient, privacy-serving data sharing across PrEP service points, such as community testing sites, clinics, and pharmacies. Results The needs assessment identified significant gaps in data exchange for PrEP referrals and follow-up appointments. In response, PrEPLinker was designed to incorporate decentralized identifiers—unique, secure digital identifiers that are not linked to any centralized authority—and VCs for ensuring seamless transfer of digital medical records. Preliminary usability testing with 15 participants showed that over 70% rated the interactive design positively, finding it easy to use, learn, and navigate without technical support. Additionally, more than 80% expressed confidence in using the blockchain based platform to manage sensitive health information securely. Discussion and Conclusion Blockchain technology offers a promising, client-centered solution for addressing systemic barriers in PrEP care by improving data cordination, security, and client control over personal health information. The design of PrEPLinker demorates the potential to streamline PrEP referrals, follow-up processes, and data managent. These advancements in data coordination and secruity could improve PrEP uptake and adherence, supporting efforts to reduce HIV transmission in Houston and beyond.

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Blockchains in health information systems: A literature review on use cases and status of implementation of blockchains for electronic health records

Sternat,

Bernsteiner,

Ploder

et al. 2024

HSM

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BACKGROUND: The careful management of health data is crucial due to its immense value and high sensitivity. Blockchain technologies can manage data in a trustworthy way. OBJECTIVE: The central aim is to identify the current state of blockchain technologies applied to Electronic Health Records (EHR) to identify common structures and functionalities. This common ground could be the starting point for defining clear global standards. METHODS: A systematic literature review is used. RESULTS: The benefits of enhancing the digitalization and cross-institutional accessibility of health data are undoubted. Four main application areas of blockchain for the EHR can be identified: storing, sharing, audit logging, and managing the identity of data accessors. Since on-chain transactions are slow and inefficient, most research promotes a hybrid approach for handling transactions as a combination of off-chain and on-chain approaches. CONCLUSIONS: Several approaches, frameworks, and models exist for applying blockchain technologies in the context of EHR. The research revealed that a) only a few concepts are already implemented, b) the existing system implementations are based on different backgrounds and technology stacks, and c) a lack of comprehensive and global standards and norms. All these factors are barriers to a broader usage of blockchain-based EHRs.

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MediLinker: a blockchain-based decentralized health information management platform for patient-centric healthcare

Cited by 4 publications

References 22 publications

Integrating Shared Decision-Making into Undergraduate Oncology Education: A Pedagogical Framework

Integrating Shared Decision-Making into Undergraduate Oncology Education: A Pedagogical Framework

Designing a blockchain technology platform for enhancing the pre-exposure prophylaxis care continuum

Blockchains in health information systems: A literature review on use cases and status of implementation of blockchains for electronic health records

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