Meeting Physicians' Responsibilities in Providing End-of-Life Care

Shanawani, Hasan; Wenrich, Marjorie D.; Tonelli, Mark R.; Curtis, J. Randall

doi:10.1378/chest.07-2177

Cited by 44 publications

(29 citation statements)

References 141 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Palliative care throughout the continuum of illness involves addressing physical, intellectual, emotional, social and spiritual needs and to facilitate patient autonomy, access to information and choice'' [73,74]. As such, palliative care is aimed at: improving QoL; optimising function; supporting medical decision-making and identifying the goals of care; and addressing the needs of family and other caregivers [75]. In contrast, the term ''endof-life care'' usually refers to care in the final stage of life and focuses on giving care to the dying person and their family.…”

Section: Anticipatory and End Of Life Respiratory Carementioning

confidence: 99%

Chronic respiratory care for neuromuscular diseases in adults

Ambrosino¹,

Carpene²,

Gherardi³

2009

Eur Respir J

162

121

View full text Add to dashboard Cite

Neuromuscular diseases (NMD) may affect respiratory muscles, leading to respiratory failure. Studies show that long-term noninvasive mechanical ventilation (NIV) improves symptoms, gas exchange, quality of life and survival. NIV improved these parameters in muscular dystrophies and also in patients with amyotrophic lateral sclerosis without severe bulbar dysfunction. NIV should be started at the onset of nocturnal hypoventilation. In selected cases, NIV may be simpler, better accepted by patients and cheaper than invasive mechanical ventilation, but it cannot be used as an alternative. Tracheostomy may be preferred by patients unable to protect their airways and wishing to survive as long as possible, or by ventilatordependent patients.Glossopharyngeal breathing consists of taking air and propelling it into the lungs. Chest percussions and vibrations can help to mobilise airway secretions but they cannot substitute coughing. Manually assisted coughing requires substantial lung inflation through air stacking or deep lung insufflation, followed by an abdominal thrust with open glottis. The combination of mechanical in-exsufflation with an abdominal thrust is a mechanically assisted cough.In conclusion, recent advances in respiratory care of NMD have improved prognosis and many caregivers have changed from a traditional noninterventional to a more aggressive, supportive approach.

show abstract

Section: Anticipatory and End Of Life Respiratory Carementioning

confidence: 99%

Chronic respiratory care for neuromuscular diseases in adults

Ambrosino¹,

Carpene²,

Gherardi³

2009

Eur Respir J

162

121

View full text Add to dashboard Cite

show abstract

“…Patients and their family members state that communication is one of the most important skills of all involved in the process of palliative care (Shanawani, Wenrich, Tonelli & Curtis, 2008). Experts note that practitioners are obliged to talk in time and on emotionally-intelligent way to patients about their health, psychosocial and spiritual needs at the end of their lives (Quill, 2000).…”

Section: Communicationmentioning

confidence: 99%

Communication as a Component of the Quality of Life in the Integrated Care for the Dying

Berčan¹,

Ovsenik²

2016

MJSS

View full text Add to dashboard Cite

show abstract

“…Creating an environment conducive to open dialogue among patients and patients' families is a primary task that nurses should view as an obligation. 23,34,35 Although a nurse's role does not include determining individual prognoses, nurses can collect information that will support determination of a patient's prognosis, and they can provide education on a patient's most likely course. In this case, when MR's wife asks if MR is going to get better this time, JS realizes that this question is appropriate and valid.…”

Section: Communication With Patients' Familiesmentioning

confidence: 99%