1 Cleary A, Walsh F, Dowling M (2014) 'Family carers lived experience of having a relative with an ongoing mental illness'. British Journal of Mental Health Nursing, 3 (4):18-23.
Key Points: The family caregivers of relatives with an ongoing mental illness face many challenges. When their relative first becomes ill, family caregivers often lack an understanding of mental illness and need sufficient information from staff. (Clarify) Family carers can feel excluded by health care professionals who decline to share information with them when maintaining patient confidentiality. Support groups play an important role in helping family carers cope, especially in the early phase of their relative's illness.
AbstractThis study explored family caregivers' lived experience of caring for a relative with an ongoing mental illness. An interpretative phenomenological approach (IPA) was adopted.Participants (n=8) were self selecting and members of SHINE (a voluntary Irish organisation supporting persons with mental illness and their families). Three super-ordinate themes were interpreted from the interview data. The first theme 'nobody told me this was the way it is' represents participants' experiences of not understanding what was happening to their relative and what they should do when their relative was first diagnosed. The second theme, 'feeling excluded', represents the participants' sense of exclusion. For some, the reason for this exclusion was because of the confidentiality embedded in the Mental Health Act. The final theme, 'you don't feel judged' represents the importance of the support group to participants, especially at the beginning when their relative was first diagnosed. The study findings illustrate the importance of education for relatives, and the important contribution support groups play in providing support and education.