Memories of intensive care and experiences of survivors of a critical illness: an interview study

Adamson, Harriet; Murgo, Margherita; Boyle, Martin; Kerr, Suzie; Crawford, Matthew; Elliott, Doug

doi:10.1016/j.iccn.2004.06.005

Cited by 67 publications

(63 citation statements)

References 41 publications

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“…In 10 studies, patients described positive emotions related to their overall view of life in response to critical illness, such as finding a new source of motivation and strength [32, 36–44]. Acceptance was another common theme, emerging from seven studies, whereby patients described how their feelings transformed from anger and denial to accepting the consequences of their illness and trying to move on [34, 36, 38, 40–42, 45]. In addition, gratitude emerged from five studies, where patients felt thankful for surviving critical illness, with deeper appreciation of the value of life [36–39, 46].…”

Section: Resultsmentioning

confidence: 99%

Patient outcomes after critical illness: a systematic review of qualitative studies following hospital discharge

et al. 2016

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BackgroundThere is growing interest in patient outcomes following critical illness, with an increasing number and different types of studies conducted, and a need for synthesis of existing findings to help inform the field. For this purpose we conducted a systematic review of qualitative studies evaluating patient outcomes after hospital discharge for survivors of critical illness.MethodsWe searched the PubMed, EMBASE, CINAHL, PsycINFO, and CENTRAL databases from inception to June 2015. Studies were eligible for inclusion if the study population was >50 % adults discharged from the ICU, with qualitative evaluation of patient outcomes. Studies were excluded if they focused on specific ICU patient populations or specialty ICUs. Citations were screened in duplicate, and two reviewers extracted data sequentially for each eligible article. Themes related to patient outcome domains were coded and categorized based on the main domains of the Patient Reported Outcomes Measurement Information System (PROMIS) framework.ResultsA total of 2735 citations were screened, and 22 full-text articles were eligible, with year of publication ranging from 1995 to 2015. All of the qualitative themes were extracted from eligible studies and then categorized using PROMIS descriptors: satisfaction with life (16 studies), including positive outlook, acceptance, gratitude, independence, boredom, loneliness, and wishing they had not lived; mental health (15 articles), including symptoms of post-traumatic stress disorder, anxiety, depression, and irritability/anger; physical health (14 articles), including mobility, activities of daily living, fatigue, appetite, sensory changes, muscle weakness, and sleep disturbances; social health (seven articles), including changes in friends/family relationships; and ability to participate in social roles and activities (six articles), including hobbies and disability.ConclusionICU survivors may experience positive emotions and life satisfaction; however, a wide range of mental, physical, social, and functional sequelae occur after hospital discharge. These findings are important for understanding patient-centered outcomes in critical care and providing focus for future interventional studies aimed at improving outcomes of importance to ICU survivors.Electronic supplementary materialThe online version of this article (doi:10.1186/s13054-016-1516-x) contains supplementary material, which is available to authorized users.

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Section: Resultsmentioning

confidence: 99%

Patient outcomes after critical illness: a systematic review of qualitative studies following hospital discharge

et al. 2016

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“…It is not surprising to find that the need for physiologic comfort is ranked as second in the intubated patients in this study, because previous studies have found endotracheal intubation to be the main source of discomfort in patients in the ICUs. [29][30][31] The reason that self-esteem needs ranked last may be that the patients in critical condition are obviously mainly concerned with survival, physiologic comfort, and family support. The patients in surgical ICUs might consider the intubation temporary and tolerate the loss of self-control, or the administration of analgesia during or after operation would affect the patients' mental status to a degree such that they would be less concerned about their self-esteem.…”

Section: Discussionmentioning

confidence: 99%

Basic needs and their predictors for intubated patients in surgical intensive care units

2009

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“…Finally, after a critical illness, patients have expressed the need to know and understand the events that took place in the ICU to come to terms with the experience (Adamson et al, 2004;Hupcey & Zimmerman, 2000;Richman, 2000). This need has prompted some health care professionals to provide patients with a narrative of their ICU stay in the form of a diary (Backmän & Walther, 2001;Bergbom, Svensson, Berggren, & Kamsula, 1999;Combe, 2005;Storli, Lind, & Viotti, 2004).…”

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Diaries Written for ICU Patients

2007

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Diaries are written for critically ill patients, to help them understand their intensive care stay and come to terms with their illness. The aim of this content analysis of eight such diaries is to understand the potential benefits for patients and families of this care intervention. A main category emerged: Sharing throughout the ICU time. Four themes were identified: (a) Sharing the story, (b) Sharing the presence, (c) Sharing feelings, and (d) Sharing through support. The first theme reflects the narration of daily events. The second is the perceived presence of health professionals and family at the patient's bedside and the presence of the patient as a person through the diary entries. The third theme describes the expression of feelings as written throughout the text. The last theme refers to the support offered to the patient. The diaries reflect the commitment and care of contributors to the patients' welfare.

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Memories of intensive care and experiences of survivors of a critical illness: an interview study

Cited by 67 publications

References 41 publications

Patient outcomes after critical illness: a systematic review of qualitative studies following hospital discharge

Patient outcomes after critical illness: a systematic review of qualitative studies following hospital discharge

Basic needs and their predictors for intubated patients in surgical intensive care units

Diaries Written for ICU Patients

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