Men’s and Women’s Approaches to Disclosure About BRCA-Related Cancer Risks and Family Planning Decision-Making

Dean, Marleah; Rauscher, Emily

doi:10.1177/1049732318788377

Cited by 17 publications

(14 citation statements)

References 49 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Additionally, the results showed that rejection of carrier partners was associated with a negative attitude toward genetic testing and disclosure of genetic test results, which was comparable with the attitudes observed in previous studies. This suggests the importance of communicating health concerns related to BRCA1/2 mutations and their consequences not only to carriers but also to healthy populations [ 5 11 13 14 15 ].…”

Section: Discussionmentioning

confidence: 99%

Sex Differences in Attitudes Toward Marriage and Childbearing Based on the Assumption of Being BRCA1/2 Mutation Carriers Among Young People

et al. 2022

View full text Add to dashboard Cite

Purpose This study investigated changes in attitudes toward marriage and childbearing assuming a BRCA1/2 mutation carrier status among healthy, unmarried individuals in Korea. Methods A nationally representative sample of healthy, unmarried individuals aged 20–39 years was surveyed. A questionnaire on marriage and childbearing intentions was administered to the participants before and after providing them with information on BRCA1/2 mutation carriers’ breast and ovarian cancer risks and their autosomal dominant inheritance pattern. The participants were asked about their attitudes toward childbearing through preimplantation genetic diagnosis (PGD). Results Of the participants who initially wanted to marry, the assumption that they or their partners had BRCA1/2 mutation caused 25.3% to no longer want to get married and 36.2% to change their attitude from wanting to bear children to no longer wanting them. Females were more likely than males to change their attitudes toward marriage and childbearing. The participants who had negative attitudes toward genetic testing were more likely to change their attitudes regarding marriage and childbearing than those who were favorable toward both disclosure and testing. More than 50% of the participants who did not want children were willing to bear children through PGD when it was assumed that they were BRCA mutation carriers. Conclusion On the assumption of being carriers, general, young, and healthy females were more likely than males to negatively change their attitudes toward marriage and childbearing. Public education on the implications of living with mutation carriers and reproductive options may be required.

show abstract

Section: Discussionmentioning

confidence: 99%

Sex Differences in Attitudes Toward Marriage and Childbearing Based on the Assumption of Being BRCA1/2 Mutation Carriers Among Young People

et al. 2022

View full text Add to dashboard Cite

show abstract

“…The grounded theory approach was used to code, summarize, and condense the data. This approach is wellsuited for the analysis of the interview data because it is conducive to understanding how a process works (Creswell, 2006). This approach was applied to understand how physicians access psychosocial information in the course of the primary care visit.…”

Section: Discussionmentioning

confidence: 99%

How Primary Care Physicians Elicit Sensitive Health Information From Patients: Describing Access to Psychosocial Information

Senteio¹,

Yoon

2020

Qual Health Res

View full text Add to dashboard Cite

Multiple communication models describe factors that influence disclosure of sensitive health information. However, these models do not address the receiver’s perspective of health-related information, nor do they address how the receiver promotes disclosure. In the primary care chronic disease visit, the patient (sender) must disclose sensitive health-related psychosocial information to the primary care physician (PCP) (receiver) for the PCP to understand potential barriers to care (e.g., financial strain) and make treatment decisions (e.g., referral to social work). A vital gap exists in understanding how PCPs perceive that patients disclose. We conducted individual, semi-structured interviews ( n = 17) to understand PCPs’ perceptions of patient disclosure of sensitive, psychosocial information in the clinical visit. PCPs facilitate patient disclosure by (a) building and maintaining rapport and (b) nurturing the patient–provider relationship. This article describes PCPs’ perceptions of how they access psychosocial information which is vital to inform clinical decisions that facilitate personalized care.

show abstract

“…After identifying broad themes, each coder independently conducted an analysis using grounded descriptive coding techniques ( Morgan and Nica, 2020 , Braun and Clarke, 2006 , Braun and Clarke, 2019 ). This ground-up approach utilized an ongoing process in which initial insights influence the direction of subsequent questions and interview topics ( Ormondroyd et al, 2012 , Dean and Rauscher, 2018 ). Across several meetings, results were compared and thoroughly discussed for consistency with the goal of identifying the overarching (major) themes and subthemes.…”

Section: Methodsmentioning

confidence: 99%

“…A paucity of research has found that genetic mutations alter the dynamic of family systems and relationships. As outlined in past qualitative research, the nature of BRCA1 / 2 genetic mutations often suggests an impending cancer diagnosis at some point in one’s life ( Dean, 2016 , Hesse-Biber, 2018 ), which in turn can negatively impact solidarity of family relationships and communicative patterns ( Dean et al, 2017 , Dean and Rauscher, 2018 ). While genetic testing/counseling is growing in popularity and accessibility, past literature has overlooked the impact, both negative and positive, that genetic testing/counseling may have on women at risk for these mutations.…”

Section: Introductionmentioning

confidence: 99%

Perceptions and care Recommendations from Previvors: Qualitative analysis of female BRCA1/2 mutation Carriers’ experience with genetic testing and counseling

Dibble

Donorfio

Britner

et al. 2022

Gynecologic Oncology Reports

View full text Add to dashboard Cite

Men’s and Women’s Approaches to Disclosure About BRCA-Related Cancer Risks and Family Planning Decision-Making

Cited by 17 publications

References 49 publications

Sex Differences in Attitudes Toward Marriage and Childbearing Based on the Assumption of Being BRCA1/2 Mutation Carriers Among Young People

Sex Differences in Attitudes Toward Marriage and Childbearing Based on the Assumption of Being BRCA1/2 Mutation Carriers Among Young People

How Primary Care Physicians Elicit Sensitive Health Information From Patients: Describing Access to Psychosocial Information

Perceptions and care Recommendations from Previvors: Qualitative analysis of female BRCA1/2 mutation Carriers’ experience with genetic testing and counseling

Contact Info

Product

Resources

About